Uke wezwa ngomdlavuza wendlala encane ebuchosheni bakho? (Pineoblastoma) Ake sixoxe ngalokhu!

Wake wabhekana nekhanda elibuhlungu, ubunzima bokuhambisa amehlo akho, noma ukuzizwa ungazinzile lapho uhamba? Mhlawumbe uke wabona ingane yakho inalezi zimpawu. Nakuba ngezinye izikhathi sizishaya indiva, ezimweni ezingavamile, lezi zinto zingaba izimpawu zesifo esibi. Namuhla sizokhuluma ngohlobo olungavamile kakhulu lomdlavuza wobuchopho okubaluleke kakhulu ukuluqaphela. Lokhu kubizwa ngokuthi `(Pineoblastoma)`.

Kuyini lokhu `(i-Pineoblastoma)`? Kalula nje...

Kalula nje, `(Pineoblastoma)` iyisimila esinomdlavuza (esisibiza ngokuthi `(malignant)`) esikhula `(pineal gland)` ebuchosheni bethu. Lolu hlobo lomdlavuza lukhula ngokushesha kakhulu futhi lungasakazeka ezicutshini ezizungezile kanye noketshezi oluzungeze ubuchopho. Lesi yisimo esibi kakhulu.

Linda kancane, iyini le ndlala yephayini?

Kulungile, ake siqale sifunde kancane ngale `(Pineal Gland)`. Lena yindlala encane kakhulu, efana nekhoni, efana nesimo se-cashew nut. Itholakala phakathi kobuchopho bethu. Le ndlala ikhipha i-hormone ebizwa ngokuthi `(Melatonin)` . Kumelwe ukuthi uke wezwa nge `(Melatonin)`. Yilokhu okusiza ukulawula iphethini yomsebenzi wansuku zonke wemizimba yethu, okungukuthi, `(circadian rhythm)`. Kalula nje, lokhu kufana newashi lemvelo lemizimba yethu elisisiza sihlale siphapheme emini futhi silale ebusuku.

Uhlobo luni lomdlavuza oluyi-`(Pineoblastoma)`?

Lesi `(i-Pineoblastoma)` siyisimila sobuchopho esikhula ngokushesha . Odokotela bangase basibize nangokuthi `(isimila sobuchopho sebanga lesi-4 esingaphakathi kwekhanda)`. Futhi, lesi `(isimila esibi)`, okusho ukuthi isimila somdlavuza. Lokhu kusho ukuthi siyingozi emzimbeni wethu futhi singasakazeka.

Sivame kangakanani lesi sifo esibizwa ngokuthi ``i-Pineoblastoma''?

I-Pineoblastoma empeleni iyisifo esingavamile kakhulu . E-United States, ngaphansi kuka-0.2% wezimila zobuchopho ezitholakala njengezimila ze-pineal gland. Lolu hlobo lomdlavuza luvame ukubonakala ezinganeni ezincane noma kubantu abangaphansi kweminyaka engu-20. Kodwa-ke, kubalulekile ukukhumbula ukuthi lungakhula kunoma ubani wanoma yimuphi ubudala.

Ziyini izimpawu zalesi sifo `(Pineoblastoma)`?

Kulungile, manje ake sibone ukuthi hlobo luni lwezimpawu esizibonayo lapho kuvela le `(Pineoblastoma)`.

• Ungase ube nekhanda elibuhlungu kakhulu . Lokhu akulona nje ikhanda elibuhlungu elivamile, kodwa elibuhlungu kancane.
• Ukuzizwa ukhathele ngaso sonke isikhathi (`( Ukukhathala )`) . Ungase uzizwe ukhathele kangangokuthi awukwazi ukwenza lutho.
• Ubunzima bokuhambisa amehlo akho . Kungase kube nzima nokubuka indawo eyodwa.
• Izinkinga ngokulinganisela nokuxhumanaKufana nokungakwazi ukulinganisela lapho uhamba, noma ukuba nobunzima bokubamba izinto.
• Izinguquko ekuziphatheni . Izinto ezinjengokuthukuthela, ukucasuka kakhulu, noma ukuthula kunangaphambili.
• Isicanucanu nokuhlanza .

Lezi zimpawu zivame ukubangelwa yisimo esibizwa ngokuthi `(hydrocephalus)`. Okusho ukuthi, ingcindezi ku-`(cerebrospinal fluid)` (siyibiza ngokuthi i-cerebrospinal fluid) ezungeze ubuchopho iyakhula. Lo mdlavuza ungasakazeka ngo-`(cerebrospinal fluid)` uye kwezinye izingxenye zobuchopho kanye nesistimu yezinzwa ephakathi (CNS). Kodwa-ke, umdlavuza we-`(pineoblastoma)` awuvamile ukusakazeka ngale kwe-`(CNS)`.

Cabanga ukuthi unengane encane ehlala ikhala ngekhanda, ingasadlali kakhulu njengakuqala, futhi ibonakala ithukuthela kakhulu. Abazali bangase bacabange ukuthi lokhu kuyinto evamile. Kodwa uma lezi zimpawu ziqhubeka, kubaluleke kakhulu ukubona udokotela.

Yiziphi izimbangela zalokhu `(i-Pineoblastoma)`?

Isizathu esiyinhloko salokhu ukuthi uhlobo lweseli olubizwa ngokuthi ``amangqamuzana e-pinealocyte'' e-pineal gland ebuchosheni bethu lukhula ngokungalawuleki futhi ngokweqile . Ucwaningo lusikisela ukuthi la maseli angaqala ukusebenza ngendlela engajwayelekile ngenxa yoshintsho kumajini ethu (``ukuguqulwa kwezakhi zofuzo''). Kunezinhlobo ezimbili zalezi zinguquko zezakhi zofuzo: 1. Lezo ezizuzwe kubazali (``ukuguqulwa kwezakhi zofuzo'') : Lokhu kwenzeka ngesikhathi sokukhulelwa, okungukuthi, lapho isidoda sikamama nesikababa sihlangana. 2. Lezo ezenzeka ngokungahleliwe ngemva kokukhulelwa (``ukuguqulwa kwezakhi zofuzo okungavamile'') : Kulesi simo, akekho emndenini okungenzeka ukuthi wayenalolu shintsho lwezakhi zofuzo ngaphambili.

Ubani osengozini enkulu yokuthola i-`(Pineoblastoma)`?

Abanye abantu basengozini enkulu kancane yokuthola le "Pineoblastoma".

• Uma une-retinoblastoma, uhlobo lomdlavuza oluvela ku-retina yeso, usengozini enkulu yokuthola i-pineoblastoma.
• Futhi, abantu abanezinguquko ezithile kuma-gene `(RB1)` kanye `(DICER1)` nabo banamathuba amaningi okuthola lo mdlavuza . Njengoba kushiwo ngaphambili, lokhu kuguquka kwezakhi zofuzo kungazuzwa kubazali, noma kungenzeka ngokungahleliwe.

Uma uhlela ukuqala umndeni, kungumqondo omuhle ukukhuluma nodokotela mayelana nokuhlolwa kwezakhi zofuzo ukuze uthole ukuthi unazo yini lezi zinto eziyingozi.

I-Pineoblastoma itholakala kanjani?

Udokotela uxilonga lesi sifo (i-Pineoblastoma) ngokukuhlola nokwenza izivivinyo ezahlukahlukene.

• Ukuhlolwa komzimba : Okokuqala, udokotela uzokubuza ngezimpawu zakho, ukuthi ukhona yini emndenini wakho oke waba nezimo ezifanayo, futhi uzohlola nendlela amehlo akho ahamba ngayo.
• Ukuhlolwa okukhethekile :
• Ukuskena kobuchopho (i-Magnetic Resonance Imaging - i-MRI ).
• Isikeni se-`(Computed Tomography - CT)`.
• Mhlawumbe iskena se-`(Positron Emission Tomography - PET)`.
• I-biopsy inqubo lapho kuthathwa khona ingxenye encane yezicubu esigaxeni bese ihlolwa. Yilokhu okunquma ukuthi umdlavuza ungowohlobo luni nokuthi ungowohlobo luni.
• Ukuhlolwa kwegazi kanye/noma uketshezi lwe-cerebrospinal (uketshezi oluzungeze ubuchopho) kwenziwa ukuze kubhekwe noma yiziphi izimpawu zesimila.

Ingabe i-`(Pineoblastoma)` ingelapheka ngokuphelele?

Lona umbuzo abantu abaningi abanawo. Uma ngikhuluma iqiniso, okwamanje alikho ikhambi le-`(Pineoblastoma)`. Kodwa, ungakhathazeki, kunezindlela eziningana zokwelapha. Uma isimila singasakazekanga, udokotela angasisusa ngokuhlinzwa. Kodwa-ke, i-`(Pineoblastoma)` uhlobo lomdlavuza oluyinselele ukwelapha. Ngakho-ke, ingozi yezinkinga ezivela kulo mdlavuza iphezulu. Izimpawu zingase zibe zimbi ngokuhamba kwesikhathi futhi isikhathi sokuphila singancishiswa. Futhi, kungenzeka ukuthi umdlavuza uphinde ubuye ngemva kokwelashwa.

Yiziphi izindlela zokwelapha `(i-Pineoblastoma)`?

Lokhu okulandelayo kungenziwa njengokwelashwa kwe-`(Pineoblastoma)`:

• Ukuhlinzwa : Ukuhlinzwa kwenziwa ukuze kususwe ingxenye noma lonke isimila. Udokotela wakho ohlinzayo uzochaza ukuthi ukuhlinzwa kungakwenzani kanye nezingozi ezihilelekile.
• Ukuhlinzwa Kwe-Hydrocephalus : Kungafakwa i-shunt (ithubhu elincane) ukuze kuncishiswe ukunqwabelana koketshezi lomgogodla oluzungeze ubuchopho. Lokhu kususa uketshezi oluningi futhi kunciphise ingcindezi.
• Ukwelashwa ngemisebe : Lokhu kuyindlela yokwelapha evamile ngemva kokuhlinzwa. Ukwelashwa ngemisebe kunganciphisa izimila noma kubulale amangqamuzana omdlavuza.
• Ukwelashwa ngamakhemikhali : Ukwelashwa okunikezwa ngaphezu kokwelashwa ngemisebe nokuhlinzwa. Ukwelashwa ngamakhemikhali kunganciphisa isimila ngaphambi kokuhlinzwa futhi kubulale noma yimaphi amangqamuzana omdlavuza asele ngemva kokuhlinzwa.
• Ukwelashwa ngamakhemikhali anomthamo ophezulu kanye nokufakelwa kwamaseli e-stem e-autologous : Kulokhu, amaseli akho e-stem aqoqwa ngaphambi kokwelashwa ngamakhemikhali anomthamo ophezulu. Ngemuva kwalokho, ngemva kokwelashwa ngamakhemikhali, lawo maseli e-stem aphinde afakwe emzimbeni wakho.

Njengoba imithi emisha kanye nokwelashwa kutholakala, ungase ube nethuba lokubamba iqhaza "ezivivinyweni zemitholampilo." Lokhu kungafaka phakathi ukuhlola imithi emisha efana "nokwelashwa okuqondiwe" noma "ukwelashwa nge-immunotherapy."

Ubani ohilelekile kulezi zindlela zokwelapha?

Uma une-pineoblastoma, ithimba lakho lezokwelapha lingafaka:

• Udokotela wezinzwa (udokotela wezinzwa)
• Udokotela wezifo zomdlavuza (uchwepheshe womdlavuza)
• Udokotela we-radiation oncologist
• Udokotela Wezinzwa (`(Udokotela Wezinzwa)`)

Ingabe ikhona imiphumela emibi yokwelashwa?

Yebo, ezinye izindlela zokwelapha, ikakhulukazi ukwelashwa ngemisebe, zingadala imiphumela emibi. Lokhu kungathinta ukusebenza kwe-endocrine yakho. Lokhu kusho ukuthi:

• Ukukhula (`(Ukukhula)`)
• Amazinga Amandla (`(Amazinga Amandla)`)
• Ukuzala (`(Ukuzala)`)

Ngaphambi kokuba uqale ukwelashwa, khuluma nodokotela wakho ngemiphumela emibi engaba khona . Bazokuqapha njalo futhi baphathe noma yimiphi imiphumela emibi engase ivele.

Ungasinda yini `(Pineoblastoma)`?

Yebo, abanye abantu bayasinda ePineoblastoma. Izinga lokusinda kweminyaka emihlanu lePineoblastoma lingama -60% kuya kuma-69.5% . Lokhu kusho ukuthi abantu abaphakathi kuka-60% no-70% abanalesi sifo basaphila ngemva kweminyaka emihlanu. Nakuba iPineoblastoma inganciphisa isikhathi sokuphila kwakho, kunezindlela zokwelapha ezingakusiza uhlale uphilile futhi uphile isikhathi eside.

Iyini i-prognosis ye-Pineoblastoma?

Ngemva kokuxilongwa kwe-`(Pineoblastoma)`, udokotela wakho uzokutshela ngesimo sokubikezela. Njengoba kushiwo ngaphambili, ayikho ikhambi le-`(Pineoblastoma)`, kodwa kunezindlela zokwelapha. Isikhathi sokuphila komuntu sincike ezintweni eziningi, njengempilo yakho iyonke, indlela osabela ngayo ekwelashweni, nokuthi isimila sikhula ngokushesha kangakanani . Ngemva kokuxilongwa kwe-`(Pineoblastoma)`, kuzodingeka ubone udokotela njalo. Lokhu kungenxa yokuthi bazokuqapha nganoma yimiphi imiphumela emibi futhi benze okudingekayo.

Ingabe i-Pineoblastoma ingavinjelwa?

Ngeshwa, okwamanje ayikho indlela eyaziwayo yokuvimbela i-Pineoblastoma.

Kufanele ngimbone nini udokotela?

Izimpawu ze-`(Pineoblastoma)` kuwe noma enganeni yakho, ezihlanganisa:

• Ikhanda elibuhlungu
• Izinguquko ekuziphatheni
• Ubunzima bokuhambisa amehlo

Uma unanoma yikuphi kwalokhu okulandelayo, bona udokotela ngokushesha . Uma utholakale une-`(Pineoblastoma)` futhi uphathwa, tshela udokotela wakho uma uhlangabezana nanoma yimiphi imiphumela emibi. Uma ingane yakho isencane, ukwelashwa kungathinta ukukhula kwayo. Uma unomuzwa wokuthi ingane yakho ithatha isikhathi eside ukukhula ngesilinganiso esifanele iminyaka yayo, khuluma nodokotela wakho ngalokho futhi.

Yimiphi imibuzo okufanele ngiyibuze udokotela wami?

Uma ubona udokotela, kuwumqondo omuhle ukubuza imibuzo efana nale:

• Hlobo luni lokwelashwa olunconywayo?
• Ingabe umdlavuza usabalele?
• Ingabe ngidinga ukuhlinzwa?
• Iyini imiphumela emibi yokwelashwa?
• Iyini isikhathi sami sokuphila noma isibikezelo?

Kuvamile ukuzizwa ushaqekile, udabukile, futhi wesaba uma uzwa amagama athi "unomdlavuza." Ngokungazelelwe, unemibuzo eminingi mayelana nokuthi yini okufanele uyenze ngokulandelayo, yini okufanele uyilindele, nokuthi yini okufanele uyilindele. Ungakhathazeki . Udokotela wakho kanye nethimba lezokwelapha bazokusiza ukubhekana nalokhu kuxilongwa futhi ukhethe ukwelashwa okungcono kakhulu kuwe. Phakathi nalesi sikhathi, qiniseka ukuthi uzungezwe umndeni nabangane abakusekelayo. Ucwaningo ngemithi emisha ye-pineoblastoma luyaqhubeka, ngakho-ke hlala unethemba.

Umlayezo Wokuya Nawe Ekhaya

• I-Pineoblastoma umdlavuza ongavamile kodwa okhula ngokushesha okhula endlaleni ye-pineal yobuchopho.
• Izimpawu ezifana nobuhlungu bekhanda, izinkinga zamehlo, ukulahlekelwa ibhalansi, kanye nezinguquko zokuziphatha zingase zibe khona. Lokhu kungase kubangelwe yi-hydrocephalus (ukunqwabelana koketshezi ebuchosheni) .
• Imbangela ivame ukuba yizakhi zofuzo. Abantu abane-`(Retinoblastoma)` kanye nalabo abane-`(RB1)` kanye ne-`(DICER1)` zokuguqulwa kwezakhi zofuzo basengozini enkulu.
• Ukuhlolwa okufana ne-MRI, i-CT scan, kanye ne-biopsy kwenziwa ukuze kutholakale ukuthi kukhona yini isifo.
• Nakuba kungekho ukwelashwa okuphelele, kunezindlela zokwelapha ezifana nokuhlinzwa, ukwelashwa ngemisebe, kanye ne-chemotherapy.
• Uma unezimpawu , funa iseluleko sezokwelapha ngokushesha . Ungesabi ukubuza imibuzo.
• Nakuba lesi kuyisimo esiyinselele, bhekana nokwelashwa ngethemba namandla . Awuwedwa.

Ngiyethemba ukuthi lolu lwazi luzokusiza. Uma ungabaza nganoma yiziphi izimpawu, sicela ubonane nodokotela.

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