Wake wabhekana nekhanda elibuhlungu elingapheli, ubunzima bokuhambisa amehlo akho, noma ukulahlekelwa yibhalansi ngokuzumayo ngenkathi uhamba? Mhlawumbe uke wazibona lezi zimpawu enganeni yakho. Nakuba sivame ukunganaki izinkinga ezinjalo, ngezinye izikhathi zingaba izimpawu zesimo esibucayi sempilo. Namuhla, eNirogi Lanka , sixoxa ngesimila sobuchopho esingavamile kodwa esibalulekile ukuqonda esaziwa ngokuthi iPineoblastoma .
Iyini ngempela i-Pineoblastoma? Kalula nje…
Kalula nje, i-Pineoblastoma iyisimila esiyingozi (esinomdlavuza) esiqala endlaleni ye-pineal yobuchopho bakho. Lolu hlobo lwesimila lunamandla kakhulu ; lukhula ngokushesha futhi lungasakazeka ezicutshini zobuchopho ezizungezile kanye noketshezi olujikeleza ubuchopho bakho, okwenza kube inkinga enkulu yezokwelapha.
Linda, iyini i-Pineal Gland?
Ake siqale ngezinto eziyisisekelo. I-pineal gland iyisitho esincane, esimise okwekhoni, esilingana ne-pine nut, esitholakala ekujuleni kobuchopho bakho. Le gland inesibopho sokukhipha i-hormone ebizwa ngokuthi i-melatonin . Kungenzeka ukuthi uke wezwa nge-melatonin—ibalulekile ekulawuleni isigqi sakho se-circadian . Cabanga ngayo njengewashi langaphakathi lemvelo lomzimba wakho elikusiza ukuthi uhlale uphapheme emini futhi livuse ubuthongo ebusuku.
Luhlobo luni lwesimila i-Pineoblastoma?
I-Pineoblastoma iyisimila sobuchopho esikhula ngokushesha . Odokotela bavame ukusibeka njengesimila sobuchopho sebanga lesi-4 esingaphakathi kwekhanda . Ngenxa yokuthi iyisimila esibi , siyingozi emzimbeni futhi sinamandla okusabalala.
Ivame kangakanani i-Pineoblastoma?
I-Pineoblastoma ayivamile kakhulu . Ngokusho kwemibiko e-United States, ngaphansi kuka-0.2% wazo zonke izimila zobuchopho zitholakala njengezimila ze-pineal gland. Nakuba lolu hlobo lomdlavuza luvame ukubonakala ezinganeni ezincane noma kubantu abadala abangaphansi kweminyaka engu-20 , kubalulekile ukukhumbula ukuthi lungenzeka kunoma yimuphi ubudala.
Ziyini izimpawu zePineoblastoma?
Ake sibheke izimpawu ezingase zibonakale ngalesi simo:
- Ubuhlungu bekhanda obukhulu : Lokhu akusibo ubuhlungu bekhanda obuvamile; ngokuvamile bunamandla futhi buhlala njalo.
- Ukukhathala okuqhubekayo : Umuzwa wokukhathala ojulile kangangokuthi imisebenzi yansuku zonke iba nzima ( Ukukhathala ).
- Ubunzima bokunyakaza kwamehlo : Ungase ukuthole kunzima ukugxila amehlo akho noma ukubheka ngezindlela ezithile.
- Izinkinga ngokulinganisela nokuxhumana : Ukuzizwa ungazinzile lapho uhamba noma unenkinga yokubamba izinto.
- Izinguquko zokuziphatha : Ukushintsha okuphawulekayo kwemizwa, njengokwanda kokucasuka, ukucasuka, noma ukuyeka ngokuzumayo.
- Isicanucanu nokuhlanza .
Lezi zimpawu zivame ukubangelwa yisimo esibizwa ngokuthi i-hydrocephalus , lapho uketshezi lomgogodla luqongelela khona futhi lwandise ingcindezi ngaphakathi kobuchopho. Nakuba isimila singasakazeka ngalolu ketshezi siye kwezinye izingxenye ze-Central Nervous System (CNS), asivamile ukusakazeka ngaphandle kwe-CNS.
Cabanga ngengane ekhononda ngekhanda elibuhlungu njalo, eyeka ukufuna ukudlala, futhi ebonakala ecasukile ngendlela engavamile. Abazali bangase bakushaye indiva lokhu njengokuziphatha okuvamile. Kodwa-ke, uma izimpawu ziqhubeka, kubalulekile ukubonana nodokotela ngokushesha.
Yini ebangela i-Pineoblastoma?
Imbangela eyinhloko ukukhula okungalawuleki nokusheshayo kwamaseli akhethekile endlaleni ye-pineal eyaziwa ngokuthi ama-pinealocytes . Ucwaningo lubonisa ukuthi ukuguquka kwezakhi zofuzo kubangela ukuthi la maseli angasebenzi kahle futhi akhule ngendlela engavamile.
Lezi zinguquko zofuzo zingenzeka ngezindlela ezimbili:
1. Ifa (ukuguqulwa kwezakhi zofuzo) : Idluliselwa kubazali kuya enganeni ngesikhathi sokukhulelwa.
2. Ukuguquka kwezakhi zofuzo okungahleliwe : Izinguquko ezingahleliwe ezenzeka ngemva kokukhulelwa, lapho kungekho khona umlando womndeni wangaphambili walesi simo.
Ubani osengozini enkulu yokuthola i-Pineoblastoma?
Abantu abathile babhekene nengozi enkulu yokuthola i-Pineoblastoma :
- Uma une -Retinoblastoma , umdlavuza we-retina yeso, usengozini enkulu.
- Abantu abanezinguquko ezakhiweni ze -RB1 noma ze -DICER1 nabo basengozini enkulu yokuthola lo mdlavuza . Lezi zinguquko zingazuzwa njengefa noma zingabi khona.
Uma uhlela ukuqala umndeni futhi ukhathazekile ngalezi zinto eziyingozi, kungcono ukukhuluma nomhlinzeki wezempilo mayelana nokuhlolwa kofuzo .
I-Pineoblastoma itholakala kanjani?
Odokotela baxilonga i-Pineoblastoma ngokuhlanganiswa kokuhlolwa kwemitholampilo kanye nokuhlolwa kokuxilonga:
- Ukuhlolwa komzimba : Udokotela wakho uzohlola izimpawu zakho, umlando womndeni, futhi enze izivivinyo zezinzwa, okuhlanganisa nokuhlola ukuhambisana kwamehlo akho.
- Ukuxilongwa okuthuthukisiwe :
- Ukuskena kwe- Brain Magnetic Resonance Imaging ( MRI ).
- Ukuskena kwe -Computed Tomography (CT).
- Ngezinye izikhathi, kwenziwa i-scan ye- Positron Emission Tomography (PET).
- I -biopsy , lapho kuthathwa khona isampula encane yezicubu ukuze ihlolwe ukuqinisekisa uhlobo lwesimila.
- Ukuhlolwa kwegazi kanye/noma ukuhlolwa koketshezi lomgogodla ukuthola izimpawu ezithile zesimila.
Ingabe i-Pineoblastoma ingelapheka?
Lokhu kuyinto evamile ekhathazayo. Uma ngikhuluma iqiniso, okwamanje akukho ukwelashwa okujwayelekile kwe -Pineoblastoma . Kodwa-ke, sicela ungalilahli ithemba; kunezindlela ezahlukene zokwelapha. Uma isimila singakasabalali, ukususwa ngokuhlinzwa kuvame ukuba yisinyathelo sokuqala.
Ngenxa yokuthi i-Pineoblastoma uhlobo lomdlavuza olunamandla, kunzima ukwelapha. Izinkinga zingaba khona, futhi ukubikezela kwesikhathi eside kungathinteka. Ngaphezu kwalokho, kuhlale kukhona ithuba lokuthi umdlavuza uphinde ubuye ngemva kokwelashwa.
Yiziphi izindlela zokwelapha i-Pineoblastoma?
Ukwelashwa kwe -Pineoblastoma kungafaka okulandelayo:
- Ukuhlinzwa : Ukuhlinzwa kuvame ukwenziwa ukuze kususwe ingxenye noma lonke isimila. Udokotela wakho ohlinzayo uzochaza inqubo kanye nezingozi zayo ngokuningiliziwe.
- Ukuhlinzwa Kwe-Hydrocephalus : Ukuze kuncishiswe ukunqwabelana koketshezi (uketshezi lomgogodla) oluzungeze ubuchopho, kungafakwa i-shunt—ithubhu elincane—ukuze kukhishwe uketshezi oluningi futhi kuncishiswe ingcindezi.
- Ukwelashwa Ngemisebe : Lokhu kuyindlela yokwelapha evame ukwenziwa ngemva kokuhlinzwa. Ukwelashwa ngemisebe kungasiza ekunciphiseni izicubu zesimila ezisele noma kubhubhise amangqamuzana omdlavuza.
- Ukwelashwa ngamakhemikhali : Uma kusetshenziswa kanye nokuhlinzwa kanye nemisebe, ukwelashwa ngamakhemikhali kungasiza ekunciphiseni isimila ngaphambi kokuhlinzwa noma kuqede amaseli omdlavuza asele ngemva kwalokho.
- Ukwelashwa Nge-Chemotherapy Enomthamo Omkhulu kanye Nokufakelwa Kwamaseli E-Autologous Stem : Kule nqubo, amaseli akho e-stem aqoqwa ngaphambi kokuthi uthole i-chemotherapy enomthamo ophezulu. Lawa maseli abe esefakwa emzimbeni wakho ukuze asize uhlelo lwakho lululame ngemva kokwelashwa.
Njengoba ucwaningo lwezokwelapha luqhubeka, ungase ube nethuba lokubamba iqhaza ezivivinyweni zemitholampilo. Lokhu kungase kuhilele ukuhlola izindlela zokwelapha ezintsha eziqondiwe noma ama-immunotherapy.
Ubani oseqenjini lakho lokunakekela?
Uma kutholakale ukuthi une-Pineoblastoma, ithimba lakho lokunakekela eNirogi Lanka lingafaka:
- Udokotela Wezinzwa
- Udokotela Wezifo Zomdlavuza
- Udokotela Wezifo Zomdlavuza Wemisebe
- Udokotela Wezinzwa
Ingabe ikhona imiphumela emibi kulezi zindlela zokwelapha?
Yebo, ezinye izindlela zokwelapha, ikakhulukazi imisebe, zingadala imiphumela emibi. Lokhu kungathinta ukusebenza kwe-endocrine yakho, okuhlanganisa:
- Ukukhula
- Amazinga wamandla
- Ukuzala
Ngaphambi kokuqala ukwelashwa, xoxa nodokotela wakho ngemiphumela emibi engaba khona . Bazokuqapha njalo futhi bathathe izinyathelo ezidingekayo zokuphatha noma yiziphi izinkinga eziphakamayo.
Ungasinda yini ku-Pineoblastoma?
Yebo, iziguli eziningi ziyasinda ePineoblastoma. Izinga lokusinda kweminyaka emihlanu lePineoblastoma lisukela ku -60% kuya ku-69.5% . Nakuba lokhu kutholakala kungashintsha impilo, kunezindlela zokwelapha ezisebenzayo ezenzelwe ukukusiza uphile kahle futhi wandise isikhathi sakho sokuphila.
Iyini i-Pineoblastoma ebikezelwayo?
Ngemva kokuxilongwa kwakho, udokotela wakho uzoxoxa ngesimo sakho. Nakuba kungekho "khambi" elilodwa, kunezindlela eziningi zokwelapha. Umphumela wesiguli unqunywa yizici ezifana nempilo iyonke, impendulo yomzimba wakho ekwelashweni, kanye nesivinini sokukhula kwesimila .
Ngemva kokuxilongwa kwakho, uzoba nokuhlolwa okuphindaphindiwe ukuze ithimba lakho lezokwelapha likwazi ukuqapha imiphumela emibi futhi linikeze ukwesekwa okudingekayo.
Ingabe i-Pineoblastoma ingavinjelwa?
Ngeshwa, okwamanje ayikho indlela eyaziwayo yokuvimbela i-Pineoblastoma .
Kufanele ubonane nini nodokotela?
Uma wena noma ingane yakho nibona izimpawu zePineoblastoma, njenge:
- Ubuhlungu bekhanda obuqhubekayo
- Izinguquko zokuziphatha
- Ubunzima ngokunyakaza kwamehlo
Sicela ubonane nodokotela ngokushesha.
Uma okwamanje uphathwa futhi uhlangabezana nemiphumela emisha emibi, yazisa ithimba lakho lokunakekela. Uma ukhathazekile ngokukhula noma intuthuko yengane yakho ngesikhathi sokwelashwa, xoxa ngalezi zinto ezibonwe udokotela wezingane noma udokotela wezifo zomdlavuza.
Yimiphi imibuzo okufanele ngiyibuze udokotela wami?
Uma uhlangana nodokotela wakho, kuyasiza ukubuza:
- Yikuphi ukwelashwa okuncomayo?
- Ingabe umdlavuza usabalele?
- Ingabe ngidinga ukuhlinzwa?
- Yimiphi imiphumela emibi engaba khona yalokhu kwelashwa?
- Iyini iphrojekthi yami?
Ukuzwa igama elithi "umdlavuza" kungaba yinto eqeda amandla futhi ethuse. Kujwayelekile ukuzizwa ushaqekile noma ukhathazekile ngekusasa. Ungazizwa uwedwa. Ithimba lakho lezokwelapha eNirogi Lanka lilapha ukuzokusiza ukuthi ubhekane nalesi sifo futhi ukhethe uhlelo lokwelashwa olukufanele kakhulu. Thembela kubangani bakho nomndeni wakho ukuze uthole ukwesekwa. Ucwaningo oluqhubekayo mayelana nokwelashwa okusha kwePineoblastoma luyaqhubeka nokunikeza ithemba.
Umlayezo Wokuya Nawe Ekhaya
- I-Pineoblastoma iyisimila esingavamile nesikhula ngokushesha esikhula endlaleni ye-pineal yobuchopho.
- Izimpawu ezifana nekhanda elibuhlungu, izinkinga zokubona, ukulahlekelwa ibhalansi, kanye nezinguquko zokuziphatha zingavela, ngokuvamile ngenxa ye -hydrocephalus (ukunqwabelana koketshezi ebuchosheni).
- Imbangela ivame ukuba yizakhi zofuzo; abantu abane-Retinoblastoma noma i-RB1/DICER1 gene mutations basengozini enkulu.
- Ukuxilongwa kuhilela i-MRI, i-CT scans, kanye ne-biopsies.
- Nakuba kuyinselele, ukwelashwa okuphumelelayo njengokuhlinzwa, imisebe, kanye ne-chemotherapy kuyatholakala.
- Uma ubona izimpawu, funa iseluleko sezokwelapha ngokushesha . Unganqikazi ukubuza imibuzo.
- Hlala unethemba futhi uqine; awuwedwa kulolu hambo.
Sithemba ukuthi lolu lwazi luwusizo. Uma unemibuzo mayelana nempilo yakho, sicela uhlele i-aphoyintimenti nochwepheshe wezempilo.
