He mau pōhaku e like me kēia i loko o kou mau maka? E aʻo kākou e pili ana i ka Optic Disc Drusen!

Ua noʻonoʻo paha ʻoe, "Auē, ua maikaʻi anei koʻu mau maka?" I kekahi manawa, hiki i nā mea liʻiliʻi ke hana i loko o ko kākou mau maka a kākou i ʻike ʻole ai. ʻO kekahi o ia ʻano he kūlana i kapa ʻia ʻo Optic Disc Drusen, a kākou e kamaʻilio ai i kēia lā. Mai hopohopo, e kamaʻilio maʻalahi kākou e pili ana i kēia.

He aha nā Optic Disc Drusen?

I ka ʻōlelo maʻalahi, ʻo Optic Disc Drusen he mau waihona liʻiliʻi o ka calcium a me nā protein momona e hana ʻia ana i loko o ka disc optic a i ʻole ke poʻo o ke aʻalolo optic o kou maka. E noʻonoʻo iā lākou he mau ʻiliʻili liʻiliʻi. ʻO ka huaʻōlelo "drusen" mai ka huaʻōlelo Kelemania no "pōhaku." Hiki i kēia mau mea ke lilo i mānoanoa iki, a paʻakikī paha, i ka hala ʻana o ka manawa.

ʻO ke aʻa o ke aʻalolo optic, a i ʻole ka mea a mākou e kapa nei ʻo "Optic Disc", ʻo ia ka ʻaoʻao mua o kou aʻalolo optic. ʻO kēia aʻalolo ka mea e lawe i nā mea āu e ʻike ai i ka lolo.

Hiki i kēia mau drusen ke loaʻa i kekahi manawa ma ka maka hoʻokahi wale nō ('Unilateral`). Eia naʻe, ʻike pinepine ʻia (ma kahi o 75%) ma nā maka ʻelua ('Bilateral`) . I kekahi mau hihia, hiki i kēia ke kumu i ka nalowale ʻana o ka ʻike .

Pehea ka maʻamau o kēia maʻi? ʻO wai ka mea i pilikia nui?

Ua manaʻo ʻia aia ma waena o 1% a me 2% o ka heluna kanaka e loaʻa paha ka optic disc drusen. Ua kau kekahi mau hōʻike i ka laha ma 1.8% a i 2.4%. Hiki i ke kūlana ke hoʻopilikia i kekahi, me ka nānā ʻole i ke kāne. Eia nō naʻe, ua ʻike ʻia he ʻoi aku ka maʻamau o ia i ka poʻe keʻokeʻo i hoʻohālikelike ʻia me nā hui lāhui ʻē aʻe.

Pehea ʻoe e ʻike ai inā loaʻa iā ʻoe kēia mau mea? He aha nā hōʻailona?

ʻO ka hapa nui o ka manawa, ʻaʻohe hōʻailona o ka poʻe me ka optic disc drusen. I kekahi manawa, e ʻike wale kāu kauka maka iā lākou ke hele ʻoe no kahi hoʻokolokolo maka maʻamau.

Eia nō naʻe, hiki i kekahi poʻe ke ʻike i nā hōʻailona. ʻO kēia mau mea:

• Nā kīnā o ke kahua ʻike: ʻO ke ʻano kēia, ʻaʻole ʻike ʻia nā ʻāpana o kāu kahua ʻike holoʻokoʻa (ʻo ka ʻike waena a me ka ʻike peripheral). Hiki i kekahi poʻe ke loaʻa kahi wahi makapō nui . E noʻonoʻo ʻoe e nānā pololei ana i mua a nalowale koke ka ʻike ʻana i kekahi e hele mai ana mai ka ʻaoʻao.
• Hiki ke lilo ka ʻike i hina a palalulu paha no kekahi manawa pōkole.
• Ka nalowale mālie o ka ʻike peripheral.
• Nā kiko keʻokeʻo a melemele paha ma ke kumu o kou aʻalolo optic ('Optic Disc`)Ke nānā ke kauka i kou mau maka, ʻike paha lākou i nā puʻupuʻu . ʻIke ʻia kekahi mau drusen (ʻike ʻia ka optic disc drusen), akā hiki i kekahi ke "hūnā ʻia" (ʻili ʻia ka optic disc drusen). He paʻakikī ke ʻike maʻalahi.

E noʻonoʻo, manaʻo pinepine ʻo Samantha ʻaʻole hiki iā ia ke ʻike maopopo i ka wā e neʻe ai kekahi mea i mua o kona mau maka. I ka wā mua, ua hoʻowahāwahā ʻo ia, akā ma hope o kona hele ʻana i ke kauka maka i ʻike ai ʻo ia he optic disc drusen kona ma nā maka ʻelua.

No ke aha i hana ʻia ai ka optic disc drusen?

Hoʻokumu ʻia nā Drusen e ka hōʻiliʻili ʻana o nā protein momona a me nā mea ʻē aʻe. Akā, ʻaʻole maopopo i nā kānaka ʻepekema ke kumu e hōʻiliʻili ai a mānoanoa ai kēia mau mea . I kekahi mau hihia, hiki ke hoʻoilina ʻia . ʻO ia hoʻi, inā loaʻa i kekahi o kou ʻohana kēia maʻi, ʻoi aku ka nui o kou loaʻa ʻana iā ia.

Pehea e ʻike ai nā kauka i kēia? He aha nā hoʻokolohua a lākou e hana ai?

ʻO ka hapa nui o ka manawa, hiki i kāu kauka maka ke ʻike i kēia mau drusen i ka wā o ka hoʻokolokolo maka maʻamau. A laila hiki iā lākou ke hana i nā hoʻokolohua e like me kēia e hōʻoia hou aku:

• Ka hoʻāʻo ʻana i ke kahua ʻike: Nānā kēia i kāu laulā o ka ʻike a inā he mau wahi āu e ʻike ʻole ai.
• ʻO ka Optical Coherence Tomography (OCT): He scan ʻenehana kiʻekiʻe kēia. Ua like ia me ke kiʻi ʻana i ke kiʻi o loko o ka maka a nānā iā ia ma ka papa. Hiki iā ia ke hōʻike i kahi a me ka nui o ka drusen.
• Ultrasound : He scan kēia no ka nānā ʻana i loko o ka maka. He mea kōkua nui ia i ka loaʻa ʻana o nā drusen i kanu ʻia.
• CT scan (`CT - computed tomography scan`): I kekahi manawa hiki ke hana ʻia kēia scan, ʻoiai no ka nānā ʻana i nā waihona calcium.
• ʻO ka angiography Fluorescein: Hoʻohana kēia i kahi kāmela kūikawā a me kahi kala fluorescent e kiʻi i nā kiʻi o loko o ke kua o ka maka. ʻAe kēia i ke ʻano o nā kīʻaha koko e ʻike ʻia.
• ʻO ka autofluorescence fundus: He ʻano hana kēia no ke kiʻi ʻana i nā kiʻi o loko o ka maka. Eia naʻe, ʻaʻole pono kēia i ka hoʻokomo ʻana i kahi kala. Hana ʻia kēia hoʻāʻo me ka hoʻohana ʻana i kahi pigment i kapa ʻia ʻo "Lipofuscin" i loko o ko mākou kino (kahi e hōʻiliʻili ai i ko mākou wā ʻelemakule a i ʻole kekahi mau kūlana olakino).

Aia kekahi lāʻau lapaʻau no kēia? Pehea e mālama ʻia ai?

Inā loaʻa iā ʻoe ka optic disc drusen, ʻaʻole paha ʻoe e pono i kekahi lāʻau lapaʻau a i ʻole ka hoʻokele kūikawā . ʻAʻohe ʻoki kino a lāʻau lapaʻau paha no kēia ʻano i kēia manawa. Akā, mai hopohopo, ʻaʻole pono ka hapa nui o ka poʻe e hopohopo no ia mea.

Inā loaʻa iaʻu ka Optic Disc Drusen, he aha kaʻu e manaʻo ai?

ʻO ka wānana no kekahi me ka optic disc drusen he maikaʻi loa ia . Eia nō naʻe, hiki i kekahi mau maʻi ke ʻike i kekahi nalowale o ka ʻike peripheral . ʻO ia ka mea nui e hiki ke hana.

ʻAʻole pinepine loa, hiki i kēia mau drusen ke hana i nā pilikia. ʻO kēia mau pilikia kakaikahi:

• Nā membrane neovascular choroidal (CNVM): He mau kīʻaha koko hou kēia e hana ʻia i loko o ka maka. Hiki iā lākou ke kahe ke koko, kahi e hiki ai ke nalowale ka ʻike waena. Inā hana ʻia kēia, pono paha ka mālama ʻana i ka laser e hoʻōki i ke kahe ʻana o ke koko.
• ʻO ka neuropathy optic ischemic anterior (AION): ʻO kēia ka manawa e hoʻemi ʻia ai ke kahe koko i ke aʻalolo optic, e hōʻino ana i ke aʻalolo.
• Nā pani ʻana o nā kīʻaha koko o ka retina: He pani ʻana o nā kīʻaha koko i loko o ka retina.

He mau hanana kākaʻikahi loa kēia, no laila mai hopohopo pono ʻole.

He mea weliweli anei kēia kūlana?

ʻOiai inā ʻike ʻoe i kekahi mau loli i kou ʻike, ʻaʻole ia he maʻi weliweli ka Optic Disc Drusen. Eia nō naʻe, hiki ke pili pū me nā maʻi olakino ʻē aʻe. No laila he mea nui ka ʻōlelo aʻoaʻo lapaʻau a me nā nānā mau ʻana.

Aia kekahi ala e pale aku ai i kēia mau mea mai ka hana ʻana?

ʻO ka mea pōʻino, ʻaʻohe ala e pale ai i ke kūkulu ʻia ʻana o ka optic disc drusen i kēia manawa .

Āhea wau e ʻike ai i ke kauka?

He mea nui loa ka nānā ʻana i kou mau maka i nā manawa maʻamau (hoʻāʻo ʻike maʻamau). Eia kekahi, inā ʻike ʻoe i kekahi mau loli i kou ʻike , e ʻike koke i ke kauka. Mai hoʻowahāwahā i kekahi mea, ʻoiai inā he mea liʻiliʻi.

He aha ka ʻokoʻa ma waena o ka Optic Disc Drusen a me nā maʻi maka ʻē aʻe?

Hiki ke like ke ʻano o Drusen me nā maʻi maka ʻē aʻe, no laila he mea nui e ʻike i ka ʻokoʻa ma waena o lākou.

ʻAʻole pono e huikau me ka papilledema!

Kāhea kekahi poʻe i ka optic disc drusen he "pseudopapilledema." ʻO "Pseudo" ʻo ia hoʻi he wahaheʻe, ʻo ia hoʻi, ʻaʻole ia he mea maoli.

ʻO ka papilledemaʻO kēia ka manawa e pehu ai ke kaomi i loko o kou iwi poʻo (kaomi intracranial). He pilikia olakino kēia.

Hiki i ka optic disc drusen ke hoʻoulu i ke aʻa o ke aʻalolo optic e pehu, akā ʻaʻole ia he pehu maoli. ʻO ia ke kumu i kapa ʻia ai ʻo 'Pseudopapilledema'.

ʻO ka Glaucoma a me ka Optic Disc Drusen

Hiki i ka glaucoma a me ka optic disc drusen ke hana i nā pilikia me kāu kahua ʻike. I kekahi manawa, hiki ke hui pū ʻia nā kūlana ʻelua. No laila, pono i kāu kauka ke hiki ke hoʻokaʻawale ma waena o nā kūlana ʻelua . He maʻi maka koʻikoʻi ka Glaucoma e pono ai ka mālama ʻana.

Aia kekahi pilina me ka Retinitis Pigmentosa?

ʻOi aku ka nui o ka poʻe me ke ʻano i kapa ʻia ʻo retinitis pigmentosa (RP) i ka loaʻa ʻana o ka optic disc drusen ma mua o ka heluna kanaka maʻamau. He kiʻekiʻe loa kēia pilikia i nā poʻe me kekahi ʻano RP a me nā poʻe me ke ʻano i kapa ʻia ʻo Usher syndrome .

Ke hoʻopilikia nei hoʻi ka maʻi Noonan?

He maʻi hoʻoilina ka maʻi Noonan . Hiki i ka poʻe me kēia maʻi ke loaʻa nā pilikia me ka ulu ʻana o ka disc optic. No laila, hiki i ke kanaka me ka maʻi Noonan ke loaʻa pū kekahi optic disc drusen.

I ka hōʻuluʻulu manaʻo, nā mea e pono ai mākou e hoʻomanaʻo

ʻAe, ua kamaʻilio nui mākou e pili ana i ka Optic Disc Drusen. I ka hopena, eia kekahi o nā mea nui e pono ai ʻoe e hoʻomanaʻo:

• ʻO nā disc drusen optic he mau waihona o ka calcium a me nā protein momona e hana ana ma ke kumu o ke aʻalolo optic i loko o ka maka.
• ʻAʻole ʻike ka nui o ka poʻe i kekahi mau hōʻailona.
• ʻAʻole pilikia kēia ʻano maʻamau , akā i nā hihia kakaikahi, hiki ke loli kekahi mau ʻike a i ʻole nā ​​​​pilikia.
• ʻAʻohe lāʻau lapaʻau a lāʻau lapaʻau kūikawā paha no kēia i kēia manawa.
• ʻO ka mea nui loa, ʻo ia ke nānā pinepine ʻia kou mau maka a e ʻimi koke i ke kōkua lapaʻau inā ʻike ʻoe i kekahi loli i kou ʻike.

E hoʻomanaʻo, ʻo kou mau maka ka waiwai nui loa āu. No laila, ʻo kou kuleana ke mālama pono iā lākou. Mai hoʻowahāwahā i kekahi pilikia e pili ana i ka maka no kekahi kumu.

Inā makemake ʻoe e ʻike hou aku e pili ana i kēia, e kamaʻilio me kāu kauka maka. Hiki iā ia ke haʻi hou aku iā ʻoe.