Yu gɛt tin dɛn bak lɛk taya we dɔn de mɔna yu fɔ sɔm dez, yu bɔdi kin at wan wan tɛm, ɔ yu jɔyn dɛn kin pen? Sɔntɛnde wi nɔ kin pe atɛnshɔn to dɛn tin ya, ɛn tink se, "Na so i bi." Bɔt sɔmtɛm biɛn dɛn smɔl smɔl sik ya kin gɛt wɛl bɔdi prɔblɛm we nid sɔm atɛnshɔn. Collagen Vascular Disease na wan pan dɛn kayn tin ya. Tide, wi go tɔk bɔt dis simpul we we yu go ɔndastand.
Wetin na Kɔlagen Vaskul Sik? Fɔ tɔk am simpul wan...
Imajin se wi bɔdi tan lɛk big os we dɛn mek wit pis dɛn we dɛn put togɛda. Dis os nid sohm kayn "adhesive system" fo kip di wol, ruf, doa en winda dem togehda en strong, no? Na so wi kin kɔl
kɔnɛktiv tisu , we na spɛshal kayn tisu we kin kɔnɛkt tin dɛn lɛk bon, mɔsul, ligamɛnt, ɛn ɔda tin dɛn na wi bɔdi, ɛn gi dɛn trɛnk ɛn shep. Jɔs lɛk di siment ɛn waya we de na bildin. naw, wan rili imכtant protin we de insay dεn kכnektiv tisu dεm na
kolagen . Dis kolagen de ɛp fɔ gi wi skin, bon, ɛn jɔyn dɛn di trɛnk ɛn fleksibiliti we dɛn nid. Kכlagen Vaskul Disiz na
wan inflameshn we de tek lכng tεm we de apin na dεn kכnektiv tisu dεm ya. "Inflammation" jכs min wan kכndyushכn lεk inflameshn, swεla, εn rεd. Dis kin pwɛl wi kɔnektiv tisu dɛn.
Ɔda nem de fɔ dis sik?
Yes, sɔmtɛm dɔktɔ dɛn kin kɔl dis "kɔnektiv tisu sik." Bɔrku tɛm, dis kolagen vaskul sik kin fɔdɔm insay di kategori fɔ
ɔtoimyun sik dɛm . "Autoimmune" min se di imyun sistεm we de protεkt wi bכdi frכm sik, de mistek bigin fכ atak wi כwn hεlty tisu dεm. Tink bɔt am lɛk se wi kɔntri in ami de mistek atak wi yon pipul dɛn. Dis na wetin kin mek di inflamɛns we wi bin tɔk bɔt.
Wetin na di kayn Kɔlagen Vaskul Sik?
Bɔrku difrɛn kayn sik de insay dis grup fɔ sik. Lɛ wi luk sɔm pan di men kayn dɛn.
Di kayn sik dɛm wae kin kam wit ɔtoimyun sik dɛm:
dis na di kayn sik dεm we de kכmכn pas כl di kolagen vaskulεr sik.
- Ankylosing Spondylitis : dis kin min fכ inflameshn fכ di joyn dεm na di spayna, we kin stif εn fכs tכgeda, we kin mek i at fכ bεnd εn tכn di spayna.
- Lupus ɔ Systemic Lupus Erythematosus: Dis kin kɔmplikt smɔl bikɔs i kin afɛkt ɔlmost ɛni ɔgan na di bɔdi, lɛk di skin, jɔyn, kidni, at , ɛn bren.
- Rimatɔyd Atraytis: Dis kin mek yu swel, stif, ɛn pen bad bad wan, mɔ na di smɔl smɔl jɔyn dɛn na di an ɛn fut. I kin rili bad na mɔnin.
- Sklerodama: Dis kin mek di skin tik ɛn at. Na sɔm pipul dɛn, i kin afɛkt di pat dɛn we de insay di bɔdi bak.
- Sjögren syndrome: Dray yay ɛn dray mɔt na di men sayn dɛm fɔ dis sik, bikɔs i kin afɛkt di salivary gland dɛm ɛn di tear gland dɛm.
- Temporal Arteritis (dεn kin kכl am bak Jaynt Cell Arteritis): Dis kin mek di bכ di vεsul dεm (temporal arteritis) na di tu say dεm na di ed inflameshn. Dis kin mek yu gɛt sɔm sayn dɛm lɛk ed we de at ɛn jaw pen we yu de it.
Tayp dɛm wae kin kam bikɔs ɔf jɛnɛtik kɔz:
Bɔku tɛm, dɛn tin ya nɔ kin apin so ɔltɛm ɛn na bikɔs ɔf di chenj dɛn we de apin na wi jin dɛn.
- Ehlers-Danlos syndrome: Dɛn pipul ya gɛt dɛn skin we kin strɛch bad bad wan, dɛn jɔyn dɛn kin chenj pasmak, ɛn i kin izi fɔ mek dɛn wund .
- Marfan syndrome: Dɛn pipul ya kin gɛt lɔng ɛn tint bɔdi. Di finga dɛn bak lɔng. Tin dɛn lɛk at, yay, ɛn blɔd vesel dɛn kin afɛkt bak.
- Osteogenesis Imperfecta: Dɛn kin kɔl dis bak "brittle bon disease." Pipul wae gɛt dis sik kin gɛt bon wae kin brok kwik kwik wan.
Wetin na Miks Kɔlagen Vaskul Sik?
Dis na spɛshal tin bak. Wetin kin apin pan dis na dat di sayn dɛm fɔ sɔm pan di ɔtoimyun sik dɛm wae wi bin dɔn tɔk bɔt kin apia togɛda, ɔr kin de ɔltɛm, pan di sem pɔrsin. I tan lɛk se yu gɛt sayn dɛm fɔ lupus, sklɛroda, ɛn ɔda sik ɔl di sem tɛm. Dɛn sayn ya kin kam ɛn go fɔ sɔm tɛm. If na so i bi, yu kin si sayn dɛm lɛk:
- Disfagia : Dis min se i nɔ kin izi fɔ swɛla it.
- I kin taya bad bad wan .
- Di finga dɛn we de swel.
- At bɔn.
- Mɔsul pen ɔ jɔyn pen.
- di tin we Raynaud kin du: Insay dis, di finga dεm εn di fut dεm kin tכn blu, blu, εn afta dat rεd we dεn de na kol. Dis kin bi bikɔs di blɔd nɔ de flɔ bɛtɛ.
- I nɔ izi fɔ blo (Dyspnea).
Udat kin gɛt di sik we dɛn kɔl Collagen Vascular Disease?
Infakt, ɛnibɔdi kin gɛt dɛn sik ya. Bɔt dɛn dɔn si se sɔm kayn sik dɛn lɛk lupus, rεumatoid at, ɛn sklɛrodama, kin bɔku smɔl pan uman dɛn. Dɛn kin tɔk bak se pipul dɛn we dɔn pas 30 ɛn 40 ia kin gɛt dɛn sik ya.
Wetin mek dis kolagen vaskul sik kin apin? Wetin na di kɔz?
Dis na smɔl tin we kɔmplikt. Dɔktɔ dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt
sik dɛn we pɔsin kin gɛt we i de fɛt insɛf . Sɔm pipul dɛn we de stɔdi bɔt dis biliv se sɔm baktri, vayrɔs, ɔ mɛrɛsin dɛn kin mek wi gɛt dɛn sik ya bay we dɛn kin chenj wi imyun sistɛm. Sɔm ɔtoimyun sik dɛm, lɛk lupus, kin rɔn na famili, we min se i kin bi se i kin gɛt jɛnɛtik prɛdispɔzishɔn. Kכlagen vaskulεr sik dεm, we kכmכt fr
כm jεnεtik fכktכ dεm, de kכz fכ mכtεshכn insay di jin dεm. Dɛn chenj ya we kin apin na di jɛnɛtiks kin kɔmɔt frɔm wan ɔ dɛn ɔl tu mama ɛn papa to pikin. Ɔ dɛn kin divɛlɔp fɔ no rizin.
Wetin na di kɔmɔn sayn dɛm fɔ Kɔlagen Vaskul Sik?
Di sayn dɛm kin difrɛn difrɛn wan fɔ di kayn Kɔlagen Vaskul Sik we yu gɛt. Bɔt dis na sɔm pan di kɔmɔn sayn dɛm wae kin kam pan bɔrku pan dɛn sik ya:
- Taya: Jɔs de fil taya.
- Fiva: Di bɔdi kin fil wam fɔ natin.
- Jɔyn pen: Jɔyn dɛn kin at ɛn swel.
- Mɔsul dɛn kin at.
- Di mɔsul dɛn we wik.
- Skin rash: Rɛd, it, ɛn blista kin kɔmɔt na di skin.
Sɔm kolagen vaskul sik dɛn kin mek yu skin rili sɛnsitiv
to ɔltra vayolɛt (UV) layt . Fɔ ɛgzampul, if pɔsin we gɛt lupus go na di san, in skin kin bɔn ɛn blista bad bad wan, jɔs lɛk
we i gɛt alɛji . Na dat mek i impɔtant fɔ tek tɛm we di san de shayn.
Aw dɔktɔ kin no bɔt dis?
If yu gɛt ɛni wan pan dɛn sayn ya, yu fɔ go to dɔktɔ. Dɔktɔ go du dɛn tin ya fɔ no if yu gɛt kolagen vaskul sik: 1.
Tɔk to yu bɔt yu sik dɛn: Wetin na yu sik, aw lɔng dɛn dɔn de, ɛn aw dɛn de go bifo? 2.
Du ɛgzam fɔ yu bɔdi: Chɛk yu skin, yu jɔyn dɛn, ɛn yu mɔsul dɛn fɔ si if ɛni chenj de. 3.
Spɛshal tɛst dɛn: Apat frɔm dat, dɛn kin du dɛn tɛst ya:
- Imej tɛst: Dɛn kin tek CT skan ɔ ɛkstrem rayt fɔ luk yu bon dɛn ɛn di ɔgan dɛn we de insay yu bɔdi.
- Urinalysis: Dɛn kin tek wan sampul pan yu urine ɛn chɛk fɔ si if i gɛt infɛkshɔn ɔ if sɔm patikyula prɔtin dɛn de.
- Blɔd tɛst: Dɛn kin du blɔd tɛst fɔ chɛk yu ɔmon lɛvɛl ɛn fɔ no ɔda tin dɛn we kin gɛt di sem kayn sik. Sɔm spɛshal blɔd tɛst dɛn de we kin ɛp fɔ no di sik dɛn we pɔsin kin gɛt we i de fɛt insɛf.
- Echocardiogram: Dɛn kin du dis tɛst fɔ luk aw yu at de wok ɛn aw blɔd de flɔ tru am.
- bayopsi: Dis involv fכ tek sכm sכm pat pan yu kכnektiv tisu (e.g., skin) εn luk am כnda maykroskכp. Dis kin mek wi ebul fɔ si ustɛm chenj dɛn de na da tisu de.
Mɛmba se nɔto ɔl dɛn tɛst ya dɛn kin du fɔ ɔlman. Di sayn dɛm wae yu gɛt ɛn di tin dɛm wae yu dɔktɔ de sɔprayz go sho us tɛst dɛm fɔ du.
Wetin na di tritmɛnt dɛm fɔ dis? Yu tink se i kin mɛn am kpatakpata?
I sɔri fɔ no se, di mɛrɛsin sayɛns we de naw
nɔ gɛt mɛrɛsin fɔ Kɔlagen Vaskul Sik. Bɔt
nɔ wɔri! Bɔrku tritmɛnt de wae kin ɛp yu fɔ kɔntrol yu sik ɛn liv nɔrmal layf. Di men tritmɛnt dɛn na:
- Kɔtikosterɔyd: Dis na di men kayn mɛrɛsin we dɛn kin gi fɔ ridyus di inflamɛns ɛn fɔ mek di imyun sistɛm kol.
- Immunosuppressants: Dɛn mɛrɛsin ya de wok bay we dɛn de ridyus di wok we di imyun sistɛm de du fayn fayn wan, we nɔ de wok fayn, so dat i nɔ go atak di tisu we gɛt wɛlbɔdi.
- Fizik tritmɛnt: Dis kin ɛp fɔ mek yu mɔsul dɛn strɔng, fɔ mek yu ebul fɔ muv mɔ ɛn mɔ, ɛn fɔ mek yu nɔ fil pen. I gɛt fɔ du wit spɛshal ɛksesaiz ɛn tritmɛnt dɛn.
Yu tink se a go nid ɔpreshɔn?
Bɔku pan di wan dɛn we gɛt kolagen vaskul sik nɔ nid fɔ gɛt ɔpreshɔn. Bɔt if sɔm sik dɛn lɛk at at sik dɔn pwɛl di jɔyn dɛn bad bad wan, dɔktɔ kin tɛl yu fɔ du ɔpreshɔn
fɔ chenj di jɔyn dɛn .
Wan we de fɔ mek wi nɔ gɛt dis sik?
infakt,
no we nɔ de fɔ mek di sik dɛn we de na di kolagen vaskyuɛl nɔ kam kpatakpata . Bɔku pan dɛn tin ya kin apin bikɔs ɔf di ɔtoimyun ɔ di jɛnɛtik tin dɛn. Bɔt wan pan di men tin dɛn we kin mek dɛn sik ya na we pɔsin kin gɛt inflamɛns we nɔ de dɔn. So, fɔ du tin dɛm wae kin ridyus inflamɛns na di bɔdi kin ɛp fɔ kɔntrol di sayn dɛm ɔr at ɔl fɔ ridyus di kayn sik. Tin dɛn lɛk:
- Fɔ it tin dɛn we nɔ de mek yu bɔdi wam: Sɔm ɛgzampul dɛn na fish we gɛt omega-3, grɛn vɛjitebul, frut, ɛn spays (lɛk tumara ɛn jinja).
- Fɔ mek yu gɛt wɛlbɔdi bɔdi mas indeks (BMI): I impɔtant fɔ mek yu gɛt wɛlbɔdi wet we fit yu ej, man ɔ uman, ɛn di kayn bɔdi we yu gɛt.
Wetin wi fɔ ɛkspɛkt we wi de liv wit dis sik? Aw wi go liv fayn wit dis sik?
Collagen Vascular Disease na
wan sik wae de kam wae yu de liv yu layf . Bɔt, dat nɔ min se yu nɔ go ebul fɔ liv gud layf. Bɔrku tin de wae yu kin du na os fɔ ɛp fɔ ridyus de sik ɛn fɔ mek yu nɔr gɛt prɔblɛm:
- Nɔ mek di san nɔ pwɛl: Yuz brayt spɛktrum sanskrin we gɛt SPF (Sun Protection Factor) we at le 30 ɛvride. Nɔ mek di san nɔ bɔku. Stay na di shed, wɛr klos we de kɔba yu bɔdi, ɛn tray fɔ de insay os di tɛm we di san kin bɔku, lɛk 10 a.m. to 4 p.m.
- It tin we gɛt fayn fayn tin dɛn fɔ it: It mɔ vɛjitebul ɛn frut dɛn. Ridyus di it dɛn we dɛn dɔn prosɛs ɛn it dɛn we gɛt bɔku shuga as yu ebul.
- Ɛksesaiz ɔltɛm: Du ɛksɛsayz we fayn fɔ yu (e.g. fɔ waka, swim, fɔ es layt wet) lɛk aw yu dɔktɔ se. Dis go mek yu mɔsul dɛn strɔng, yu jɔyn dɛn go ebul fɔ chenj, ɛn i go fayn fɔ yu maynd.
- Ridyus strɛs: Na nɔmal tin fɔ fil strɛs wae yu de liv wit sik wae nɔr de mɛn lɛk dis. So fɛn we dɛn fɔ rilaks. Tin dɛn lɛk tɔk tɛrapi , jɔnal, ɛn meditashɔn kin ɛp.
Aw Kɔlagen Vaskul Disiz kin afɛkt wi blɔd vesel dɛm?
Sɔm kayn kolagen vaskul sik, lɛk rεumatoid at, kin mek
yu blɔd vesel dɛn inflamɛns (vasculitis) . Dis inflamɛns kin mek yu blɔd vesel dɛn smɔl, we kin ambɔg di blɔd flɔ. If yu nɔ trit yu, dis blɔd we nɔ de kɔmɔt fayn kin mek yu at ɛn ɔda pat dɛn gɛt prɔblɛm. If yu gɛt wan kayn kolagen vaskul sik we de mek yu blɔd vesel dɛn smɔl, yu dɔktɔ go mɔs gi yu tritmɛnt fɔ ridyus di inflamɛns ɛn fɔ mek yu blɔd flɔ fayn.
Mɛsej we dɛn kin kɛr go na os
Okay, so na sɔm pan di impɔtant tin dɛn we wi dɔn tɔk bɔt fɔ ɛp yu fɔ mɛmba dɛn:
- Kכlagen Vaskul Disiz na wan inflamεshכn we de fכ lכng tεm we de apin na wi kכnektiv tisu dεm .
- Bɔrku tɛm, dɛn sik ya na ɔtoimyun sik dɛm , we min se wi yon imyun sistɛm de wok agens wi yon bɔdi. Sɔm kayn wae nɔr kin bɔrku kin kam bak bikɔs ɔf jɛnɛtiks.
- Yu kin si sɔm sayn dɛm lɛk fɔ taya, fɔ gɛt mɔsul pen, fɔ gɛt pen na yu jɔyn, ɛn fɔ gɛt rɔsh na yu skin pan dɛn sik ya.
- Dɛn sik yaPan ɔl we nɔrbɔdi nɔr de fɔ mɛn am kɔmplit wan, tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik dɛn ɛn liv gud layf.
- If yu gɛt dɛn sik ya, nɔ shem fɔ go to dɔktɔ fɔ advays . Fɔ no di sik kwik kwik wan rili impɔtant fɔ mek di tritmɛnt go bifo.
- Fɔ liv fayn layf (gud it, ɛksesaiz, fɔ protɛkt yusɛf frɔm di san, fɔ gɛt wɛlbɔdi) go gi yu bɔku trɛnk we yu de liv wit dɛn sik ya.
So, a op se dis infɔmeshɔn go ɛp yu. If yu gɛt ɛni ɔda kwɛstyɔn, nɔ fɔgɛt fɔ aks dɔktɔ.
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