Kua kī atu tō tākuta me tango katoa tō koroni me tō pūkahukahu nā te mea he mate hauora tēnei? He mea noa te mataku me te manukanuka i tēnei wā. "Me pēhea taku tūtae ? Me mau pēke rānei ahau?" Tērā pea kei te whakaaro koe. Engari kaua e manukanuka, he otinga pai tēnei. I tēnei rā kei te kōrero tātou mō te pokanga 'J-Pouch', ka taea te āwhina i a koe ki te noho noa me te kore pēke o waho i muri i taua pokanga.
He whakarāpopototanga, he aha tēnei J-Pouch?
He putea iti te J-Pouch ka hangaia e te taote pokanga i roto i tō tinana mā te whakamahi i tētahi wāhanga o tō ake whekau iti. Hei whakamārama, ka hangaia mai i te wāhanga whakamutunga o te whekau iti, te "ileum".
Whakaarohia, i muri i te tangohanga o tō whekau nui me tō pūhā, kāore he wāhi hei penapena i tō tūtae mō te wā poto. Kua hangaia tēnei putea-J hei puna hou hei whakakapi mō taua pūhā i ngaro. Ina oti, ka kiia he putea-J nā te mea he rite tōna āhua ki te reta 'J'. Ka honoa tika tēnei putea hou ki te toenga o tō pūhā (awaawa whakarara). Ko te tikanga ka taea e koe te tūtae i te āhua noa pērā i mua.
He aha te rerekētanga i waenga i te J-Pouch me te Ileostomy Bag?
I muri i te tango katoa i te puku, e rua ā mātou kōwhiringa matua. Ko tētahi ko te whai i tētahi pēke pumau i roto i te puku, e kiia nei e mātou he "ileostomy." Ko tētahi ko te whai i tētahi J-Puch. He mea tino nui kia mārama ki te rerekētanga i waenganui i ngā mea e rua.
| Pēke-J (pēke o roto) | Ileostomy (pēke o waho) |
|---|---|
| He pēke o roto i te tinana. Kāore e kitea mai i waho. | Ka kawea te whekau iti ki te mata o te kiri o te puku, ā, ka tāpirihia he putea ki waho hei kohi i ngā paru. |
| Pērā i mua, ka puta te paru mā te nono i te tikanga noa. | Ka puta te tūtae i te pūaha hou (stoma) i hangaia i roto i te puku, ka tomo ki roto i tētahi pēke. Me whakawātea tonu te pēke. |
| Kāore he take ki te pupuri i tētahi putea o waho. | Me tiaki tonu e koe tō putea o waho me tō kiri. |
He ngāwari noa iho, he otinga pumau te J-Pouch e āhei ai koe ki te ora me te kore he putea o waho, kia tata ki te hanganga taketake o tō tinana.
Ko wai ka taea te mahi i tēnei pokanga?
Ehara te pokanga J-Pouch i te mea mā te katoa. Ka tirohia e tō tākuta ētahi āhuatanga hei whakatau mēnā he pai koe mō tēnei.
- Te mahi a te uaua o te rectum: Me pai te mahi a ngā uaua me ngā io o te rectum e hiahiatia ana hei whakahaere i ngā nekehanga o te puku.
- Hauora: I te mea he pokanga maha-wāhanga tēnei, me pai tō hauora kia taea ai e koe te whakamanawanui ki te pokanga. Kia tūpato ki ētahi atu mate hauora, ki ngā rongoā rānei e tangohia ana e koe.
Me pēhea te mahi i te pokanga?
E rua, e toru rānei ngā wāhanga o tēnei pokanga. Ahakoa he ahua uaua pea tēnei, kia māmā noa iho.
1. Wāhanga 1: Tuatahi, ka whakahaerehia he pokanga "proctocolectomy" hei tango i tō whekau nui me te pūkahukahu. I te wā tonu o taua pokanga, i tētahi pokanga motuhake rānei i muri mai, ka hangaia te Pēke-J. Ka tangohia e te tākuta te pito o tō whekau iti, ka whakapikoa kia rite ki te āhua 'U', ka honoa ki waenganui hei hanga i tētahi pēke iti.
2. Ileostomy Rangitahi: Kāore e taea e tō J-Pouch hou te tuku tūtae kia ora rā anō. Nō reira, mō ētahi marama i a ia e ora ana, ka tukuna he "loop ileostomy" rangitahi ki a koe. Ko te tikanga he pēke e piri ana ki te kiri o tō puku. He wā poto noa iho tēnei, tata ki te 2-3 marama.
3. Whakamātautau J-Pouch: I muri i te 2-3 marama, ka mahia he whakamātautau motuhake hei tirotiro mēnā kua ora pai te putea hou, ā, mēnā kei te turuturu i hea. Ka kiia tēnei he "pouchogram". He rite ki te horomitanga barium, e whakaurua ai he wai mā roto i te nono, ā, ka tangohia he hihi-X .
4. Wāhanga Whakamutunga: Kia oti ngā mea katoa te whakarite, ka mahi tō tākuta i tētahi atu pokanga iti hei tango i te ileostomy rangitahi me te kati i te pūaha i roto i tō puku. Mai i taua wā, ka tīmata tō tūtae ki te haere noa i roto i te J-Pouch hou kua hangaia. Ko tēnei tukanga o te hono anō i ō whekau e kiia ana i roto i te rongoā he ileal pouch-anal anastomosis (IPAA).
He aha tāu e tumanako ai i muri i te pokanga?
I muri i te pokanga, ka roa pea te wā e taunga ai tō tinana ki tēnei pūnaha hou.
- Te nekeneke pinepine o te puku: I te tīmatanga, he iti te J-Pouch, nō reira kāore e taea te pupuri i te nui o te paru. Nō reira, me haere pea koe ki te wharepaku i ngā wā maha i te rā, i ētahi wā i te pō. Engari i roto i te wā, ka nui haere te putea, ā, ka pai haere tēnei āhuatanga. I te nuinga o te wā ka heke iho tēnei ki waenga i te 5-10 ngā wā i te rā.
- Te whakangungu anō i ngā uaua: Tērā pea kua ngoikore ngā uaua o tō pūkahukahu nā te kore e whakamahia mō tētahi wā. Me mahi pea koe i ngā mahi whakakori tinana hei whakahoki mai i te mana whakahaere o ō puku. Ka tūtohu pea tō tākuta i ngā mahi whakakori tinana pēnei i ngā mahi Kegel.
- Ngā tūtae wetekina: Ko te whekau nui te wāhanga e mimiti ana i te wai i roto i tō tūtae. Nā te mea kua kore taua wāhanga, ka nui ake te wai o tō tūtae i tō mua.
He pānga taha, he mōrearea rānei kei reira?
Pērā i ngā pokanga katoa, he tūponotanga kei reira, engari kāore i te tino puta pinepine.
- Te turuturu ā-roto: Ahakoa he turuturu iti noa iho kei te wāhi e hono ana te whekau, ka pā he mate ki roto i te puku.
- Ngā piri o te puku: I ētahi wā, ka puta he piri kiko kāore e hiahiatia i roto i te puku i muri i te pokanga, ka puta ai he aukati i te puku.
- Te Pouchitis: Koinei te raruraru tino noa. He mate pāwera, he mumura rānei o te J-Pouch. Ko ngā tohu ko te mamae o te puku, te nekeneke pinepine o te puku, me te toto i ētahi wā. I te nuinga o te wā, ka taea te whakaora katoa i tēnei mā te whakamahi i ngā paturopi .
- Te Whakawhāiti: Ka taea e te kiko koha mai i te pokanga te whakawhāiti i te ara.
Mena ka puta mai ētahi tohu rerekē pēnei i a koe, me whakamōhio tonu atu koe ki tō tākuta.
Ka taea e koe te noho i te ao noa me te J-Pouch?
Āe, ka taea e koe! Ko te angitu o te pokanga J-Pouch e eke ana ki te 95%. Ahakoa he iti noa te mamae i te tīmatanga, ka taunga tō tinana ki tēnei i roto i te wā. Ka taea e koe te haere ki te mahi, te haereere, me te whakakori tinana pērā i mua. Ko te mea nui ko te noho i tō oranga me te whakahaere, me te kore e manukanuka ki tētahi putea o waho.
Kei te hiahia koe ki te whakarerekē i tō kai?
Ae, me tino tupato koe ki tō kai ina noho koe me te J-Pouch.
- I muri i te pokanga, tīmata:I muri i te pokanga, tīmata ki te kai i ngā kai ngawari ki te nakunaku, he iti noa iho.
- Inumia he nui te wai: Nā te mea ka puta te wai nui mai i te tinana, he mea nui kia inu i te nui o te wai, o ngā hua miraka, o te parāoa, me te hupa hei ārai i te matewai .
- Hei whakahaere i te korere: Mena he wai rawa ō tūtae, ka taea e koe te whakahaere mā te kai i ngā kai māngaro pēnei i te panana, te raihi, te taro, me te rīwai. Āta karohia te huka, te kawheine, te ngako nui, me te waipiro nā te mea ka taea e ēnei te whakanui ake i te korere.
- Ngā kai hei whakaiti i te mumura: Mā te kai hauora, pērā i te hinu oriwa, te ika, te huawhenua me ngā hua, ka āwhina i te ārai i ngā āhuatanga pēnei i te pouchitis.
He pai ake te kōrero ki tō tākuta me te tohunga kai mō tēnei mea, me te waihanga i tētahi mahere kai e tika ana māu.
Karere Tangohia ki te Kāinga
- He huarahi tino angitu te pokanga J-Pouch mō te tangata kua tangohia te koroni me te tōku kia ora tonu ai me te kore he putea o waho.
- He maha ngā wāhanga o tēnei pokanga, ā, he roa te wā e hiahiatia ana mō te tinana kia taunga ki te āhuatanga hou. He mea nui te manawanui mō tēnei.
- Ahakoa me haere tonu pea koe ki te wharepaku i ngā wā tōmua i muri i te pokanga, ka āta pai haere tēnei.
- He mea tino nui te kai hauora me te nui o te wai e inumia ana.
- Me ripoata tonu atu ki tō tākuta mēnā he mamae rerekē, he toto, he tohumate rānei i muri i te pokanga. Kaua e mataku, kōrero ki tō tākuta mō ngā mea katoa.
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