Me ako tātou mō te Pokanga J-Pouch i roto i ngā kupu māmā noa iho.

Kua kī atu tō tākuta me tango katoa tō koroni me tō pūkahukahu nā te mea he mate hauora tēnei? He mea noa te mataku me te manukanuka i tēnei wā. "Me pēhea taku tūtae ? Me mau pēke rānei ahau?" Tērā pea kei te whakaaro koe. Engari kaua e manukanuka, he otinga pai tēnei. I tēnei rā kei te kōrero tātou mō te pokanga 'J-Pouch', ka taea te āwhina i a koe ki te noho noa me te kore pēke o waho i muri i taua pokanga.

He whakarāpopototanga, he aha tēnei J-Pouch?

He putea iti te J-Pouch ka hangaia e te taote pokanga i roto i tō tinana mā te whakamahi i tētahi wāhanga o tō ake whekau iti. Hei whakamārama, ka hangaia mai i te wāhanga whakamutunga o te whekau iti, te "ileum".

Whakaarohia, i muri i te tangohanga o tō whekau nui me tō pūhā, kāore he wāhi hei penapena i tō tūtae mō te wā poto. Kua hangaia tēnei putea-J hei puna hou hei whakakapi mō taua pūhā i ngaro. Ina oti, ka kiia he putea-J nā te mea he rite tōna āhua ki te reta 'J'. Ka honoa tika tēnei putea hou ki te toenga o tō pūhā (awaawa whakarara). Ko te tikanga ka taea e koe te tūtae i te āhua noa pērā i mua.

He aha te rerekētanga i waenga i te J-Pouch me te Ileostomy Bag?

I muri i te tango katoa i te puku, e rua ā mātou kōwhiringa matua. Ko tētahi ko te whai i tētahi pēke pumau i roto i te puku, e kiia nei e mātou he "ileostomy." Ko tētahi ko te whai i tētahi J-Puch. He mea tino nui kia mārama ki te rerekētanga i waenganui i ngā mea e rua.

He ngāwari noa iho, he otinga pumau te J-Pouch e āhei ai koe ki te ora me te kore he putea o waho, kia tata ki te hanganga taketake o tō tinana.

Ko wai ka taea te mahi i tēnei pokanga?

Ehara te pokanga J-Pouch i te mea mā te katoa. Ka tirohia e tō tākuta ētahi āhuatanga hei whakatau mēnā he pai koe mō tēnei.

• Te mahi a te uaua o te rectum: Me pai te mahi a ngā uaua me ngā io o te rectum e hiahiatia ana hei whakahaere i ngā nekehanga o te puku.
• Hauora: I te mea he pokanga maha-wāhanga tēnei, me pai tō hauora kia taea ai e koe te whakamanawanui ki te pokanga. Kia tūpato ki ētahi atu mate hauora, ki ngā rongoā rānei e tangohia ana e koe.

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Me pēhea te mahi i te pokanga?

E rua, e toru rānei ngā wāhanga o tēnei pokanga. Ahakoa he ahua uaua pea tēnei, kia māmā noa iho.

1. Wāhanga 1: Tuatahi, ka whakahaerehia he pokanga "proctocolectomy" hei tango i tō whekau nui me te pūkahukahu. I te wā tonu o taua pokanga, i tētahi pokanga motuhake rānei i muri mai, ka hangaia te Pēke-J. Ka tangohia e te tākuta te pito o tō whekau iti, ka whakapikoa kia rite ki te āhua 'U', ka honoa ki waenganui hei hanga i tētahi pēke iti.

2. Ileostomy Rangitahi: Kāore e taea e tō J-Pouch hou te tuku tūtae kia ora rā anō. Nō reira, mō ētahi marama i a ia e ora ana, ka tukuna he "loop ileostomy" rangitahi ki a koe. Ko te tikanga he pēke e piri ana ki te kiri o tō puku. He wā poto noa iho tēnei, tata ki te 2-3 marama.

3. Whakamātautau J-Pouch: I muri i te 2-3 marama, ka mahia he whakamātautau motuhake hei tirotiro mēnā kua ora pai te putea hou, ā, mēnā kei te turuturu i hea. Ka kiia tēnei he "pouchogram". He rite ki te horomitanga barium, e whakaurua ai he wai mā roto i te nono, ā, ka tangohia he hihi-X .

4. Wāhanga Whakamutunga: Kia oti ngā mea katoa te whakarite, ka mahi tō tākuta i tētahi atu pokanga iti hei tango i te ileostomy rangitahi me te kati i te pūaha i roto i tō puku. Mai i taua wā, ka tīmata tō tūtae ki te haere noa i roto i te J-Pouch hou kua hangaia. Ko tēnei tukanga o te hono anō i ō whekau e kiia ana i roto i te rongoā he ileal pouch-anal anastomosis (IPAA).

He aha tāu e tumanako ai i muri i te pokanga?

I muri i te pokanga, ka roa pea te wā e taunga ai tō tinana ki tēnei pūnaha hou.

• Te nekeneke pinepine o te puku: I te tīmatanga, he iti te J-Pouch, nō reira kāore e taea te pupuri i te nui o te paru. Nō reira, me haere pea koe ki te wharepaku i ngā wā maha i te rā, i ētahi wā i te pō. Engari i roto i te wā, ka nui haere te putea, ā, ka pai haere tēnei āhuatanga. I te nuinga o te wā ka heke iho tēnei ki waenga i te 5-10 ngā wā i te rā.
• Te whakangungu anō i ngā uaua: Tērā pea kua ngoikore ngā uaua o tō pūkahukahu nā te kore e whakamahia mō tētahi wā. Me mahi pea koe i ngā mahi whakakori tinana hei whakahoki mai i te mana whakahaere o ō puku. Ka tūtohu pea tō tākuta i ngā mahi whakakori tinana pēnei i ngā mahi Kegel.
• Ngā tūtae wetekina: Ko te whekau nui te wāhanga e mimiti ana i te wai i roto i tō tūtae. Nā te mea kua kore taua wāhanga, ka nui ake te wai o tō tūtae i tō mua.

He pānga taha, he mōrearea rānei kei reira?

Pērā i ngā pokanga katoa, he tūponotanga kei reira, engari kāore i te tino puta pinepine.

• Te turuturu ā-roto: Ahakoa he turuturu iti noa iho kei te wāhi e hono ana te whekau, ka pā he mate ki roto i te puku.
• Ngā piri o te puku: I ētahi wā, ka puta he piri kiko kāore e hiahiatia i roto i te puku i muri i te pokanga, ka puta ai he aukati i te puku.
• Te Pouchitis: Koinei te raruraru tino noa. He mate pāwera, he mumura rānei o te J-Pouch. Ko ngā tohu ko te mamae o te puku, te nekeneke pinepine o te puku, me te toto i ētahi wā. I te nuinga o te wā, ka taea te whakaora katoa i tēnei mā te whakamahi i ngā paturopi .
• Te Whakawhāiti: Ka taea e te kiko koha mai i te pokanga te whakawhāiti i te ara.

Mena ka puta mai ētahi tohu rerekē pēnei i a koe, me whakamōhio tonu atu koe ki tō tākuta.

Ka taea e koe te noho i te ao noa me te J-Pouch?

Āe, ka taea e koe! Ko te angitu o te pokanga J-Pouch e eke ana ki te 95%. Ahakoa he iti noa te mamae i te tīmatanga, ka taunga tō tinana ki tēnei i roto i te wā. Ka taea e koe te haere ki te mahi, te haereere, me te whakakori tinana pērā i mua. Ko te mea nui ko te noho i tō oranga me te whakahaere, me te kore e manukanuka ki tētahi putea o waho.

Kei te hiahia koe ki te whakarerekē i tō kai?

Ae, me tino tupato koe ki tō kai ina noho koe me te J-Pouch.

• I muri i te pokanga, tīmata:I muri i te pokanga, tīmata ki te kai i ngā kai ngawari ki te nakunaku, he iti noa iho.
• Inumia he nui te wai: Nā te mea ka puta te wai nui mai i te tinana, he mea nui kia inu i te nui o te wai, o ngā hua miraka, o te parāoa, me te hupa hei ārai i te matewai .
• Hei whakahaere i te korere: Mena he wai rawa ō tūtae, ka taea e koe te whakahaere mā te kai i ngā kai māngaro pēnei i te panana, te raihi, te taro, me te rīwai. Āta karohia te huka, te kawheine, te ngako nui, me te waipiro nā te mea ka taea e ēnei te whakanui ake i te korere.
• Ngā kai hei whakaiti i te mumura: Mā te kai hauora, pērā i te hinu oriwa, te ika, te huawhenua me ngā hua, ka āwhina i te ārai i ngā āhuatanga pēnei i te pouchitis.

He pai ake te kōrero ki tō tākuta me te tohunga kai mō tēnei mea, me te waihanga i tētahi mahere kai e tika ana māu.