He whero/papura te kiri o tāu tamaiti? Tērā pea he "Tae Waina Pōti"!

Kua kite koe i tētahi ira whero, papura, he koha rānei i runga i te kiri o tō pēpi hou, o tō tamaiti rānei? I ētahi wā ka puta ēnei i te mata me te kaki. He mea noa ki te nuinga o ngā mātua te āwangawanga ina kite rātou i tētahi mea pēnei. Nō reira, i tēnei rā ka kōrero tātou mō tēnei momo tohu whānau. I roto i ngā kupu hauora, ka kiia hoki tēnei ko `(Port Wine Stain)` `(Nevus Flammeus)` rānei. Tērā pea he ahua rerekē te ingoa, engari me whakamārama noa iho.

He aha tēnei `(Port Wine Stain)`? Me whakamārama tika tāua?

He whakarāpopototanga noa iho, he tohu whānau tuturu te "Port Wine Stain". Ko te tikanga, kāore e memeha noa iho. Ka puta tuatahi mai he ira papatahi, maeneene, māwhero, whero, papura rānei i runga i te kiri o te pēpi hou. Heoi, i roto i te wā, ka pōuri ake tēnei ira, ka piki ake , ka pūkepuke .

I ahu mai tēnei ingoa i te mea he rite ki te waina whero kua maringi ki te kiri. Whakaarohia, i ētahi wā ka nui tēnei ira i te taha kotahi o te mata. Ka puta anō hoki i te ringa, i te waewae, i tētahi atu wāhi rānei o te tinana. Heoi, ko te nuinga o te wā ka kitea i te mata, i te kaki, me te tumuaki.

He pēhea te noa o te ingoa o tēnei āhuatanga ko te "Port Wine Stain"?

Ehara tēnei i te mea tino noa. I te toharite, tata ki te 3 i roto i te 1,000 pēpi hou ka pāngia e tēnei "Port Wine Stain". Ka pā pea tēnei ki ngā pēpi o ngā iwi katoa, ahakoa te ira tangata. Nō reira, ki te pāngia tō pēpi e tēnei momo ira, kaua e manukanuka, kaua e whakaaro, "He aha ko taku pēpi anake?" Kāore koe i te mokemoke.

Ka memeha haere ēnei tohu whānau?

He raruraru tēnei e pā ana ki te tini o ngā mātua. E ai ki te kōrero i mua ake nei, he tohu whānau tuturu te "Port Wine Stain". Ko te tikanga , kāore e memeha noa iho me te kore he rongoā. Ahakoa ka memeha haere ētahi tohu whānau iti i roto i te wā, he onge te "Port Wine Stain".

Ka kino haere tēnei wāhi i a koe e pakeke haere ana?

Ae, i ētahi wā ka taea. I roto i te wā, ka pouri ake, ka matotoru ake ngā ira "(Port Wine Stain)", ka piki ake ki runga ake i te kiri. Ahakoa he papatahi, he maeneene i te tīmatanga, i roto i te wā ka rite te kiri kei reira te ira ki te kirikiri me te pupuhi. Waihoki, i ētahi wā, ki te puta he whara iti ki aua wāhi, ka nui ake te toto i te mea noa, ā, ka uaua ake te whakahaere.

He aha te take e pāngia ai te pēpi e tēnei "Port Wine Stain"?

Kāore i te mōhiotia te tino take o tēnei. Heoi, e whakapono ana ngā kaipūtaiao ko te tino take ko te tipu rerekē o ngā uaua toto , arā, ngā uaua toto iti i raro i tō tātou kiri.Kua whānui haere ēnei uaua toto, arā, he nui ake i te mea noa, ā, te āhua nei kua totoro. Koinei te take i whiwhi ai te kiri i taua tae.

Kei te haere tonu ngā rangahau mō te take e whanonga rerekē ai ēnei uaua toto. I ētahi wā, ka pāngia pea ētahi mema o te whānau e tēnei mate. Heoi, kāore e taea te kī he hononga ira tōna. I ētahi wā, ka puta mai me te kore he hapa ira (whakarerekētanga ira).

He aha te āhua o tēnei tohu whānau "Port Wine Stain"?

E ai ki tā tātou i kōrero ai i mua, ko te "Port Wine Stain" he ira māwhero, whero, papura rānei i runga i te kiri. He mārama ngā rohe. Arā, ka taea e tātou te tautuhi mārama i te tīmatanga me te mutunga o te ira.

Ahakoa ka puta ēnei tohu whānau ki ngā wāhi katoa o te tinana, ka kitea nuitia ēnei i:

• I te mata
• I te kaki
• Te tumuaki (i runga i te tumuaki)

Mō ngā tamariki nohinohi, he maeneene noa iho ēnei ira "(Port Wine Stain)". I a te tamaiti e tipu ake ana, ka nui haere hoki tēnei tohu whānau. Heoi, ka tipu haere i runga i te rahi o te tinana. E ai ki te kōrero i mua ake nei, i roto i te wā, ka pōuri haere, ka matotoru haere ēnei ira, ka rite ki ngā kirikiri i raro i te kiri. Waihoki, he nui ake te tūponotanga ka toto ēnei wāhi ahakoa he whara iti noa iho.

He kino ngā paru waina Port?

I te nuinga o te wā, kāore ngā ira `(Port Wine Stain)` e kino ki te hauora. Arā, kāore e puta he mamae motuhake, he mate kino rānei. Heoi, mō ētahi tamariki, inā koa he ira tēnei kei te mata, inā koa he nui, he pōuri te tae, ka waiho hei pūtake nui o te ahotea. Mā te whakaaro ki tō rātou āhua ka puta te whakama me te wehi, ka arahi pea ki te iti o te whakaaro ki a rātou anō me te heke o tō rātou hiahia ki te whakahoahoa ki ētahi atu.

He tino onge te hononga o ēnei ira "Port Wine Stain" ki ngā mate hauora uaua pēnei i te "Klippel-Trenaunay syndrome" me te "Sturge-Weber syndrome". Ko te hunga i whānau mai me ēnei mate, he rerekē anō hoki ō rātou uaua toto i ētahi atu wāhanga o ō rātou tinana. Nō reira, me tirotirohia rātou e te tākuta kia kitea ai mēnā he raruraru nui kei roto.

Waihoki, ki te nui haere te paru waina port, ā, ka kitea nuitia i muri mai i te pakeketanga, he tohu pea tēnei mō tētahi atu raruraru hauora, he take rānei mō ētahi atu raruraru. Hei tauira, ki te whara te ira, ka tere ake te toto i te kiri noa. Waihoki, ko te hunga he paru waina port huri noa i ngā kanohi, he nui ake te tūponotanga ki te pāngia e te mate kanohi e kiia nei ko te glaucoma.

Me pēhea koe e mōhio ai mēnā he "taera waina Port" tōu?

Mā te tirotiro i te kiri o te pēpi, ka taea e te tākuta te mōhio mēnā he "Port Wine Stain" kei roto i te pēpi. I te nuinga o te wā, ka kitea ēnei i te whānautanga.Ka pātai atu anō te tākuta ki a koe mō tō hītori hauora whānau.

He maha ngā wā, he raruraru āhua noa iho te paru waina o te pēpi e pā ana ki te kiri. Heoi, ka whakahaerehia e te tākuta o tō pēpi he whakamātautau hei whakatau mēnā he tohu tēnei o tētahi mate kino ake, pērā i te mate Sturge-Weber.

Mena he ruarua kei te tākuta, e hiahia ana rānei ki te whakakore i tētahi atu mate hauora, ka tūtohu pea ia i ētahi atu whakamātautau. Hei tauira:

• Ngā whakamātautau kanohi e ine ana i te pēhanga kanohi
• Ngā whakamātautau whakaahua pēnei i te hihi-X, te matawai CT , te MRI rānei
• He whakamātautau e tango ana i tētahi wāhanga iti o te kiri (koiora kiri)

He aha ngā rongoā mō te `(Port Wine Stain)`?

Ko ngā paru waina port wine kāore e pā ana ki tētahi raruraru hauora motuhake, kāore e hiahiatia he maimoatanga hauora. Heoi, ko ētahi tāngata e whiriwhiri ana ki te rapu maimoatanga. He maha ngā take mō tēnei:

• Te mōrearea o te toto nui me te mate pāwera mēnā ka whara.
• Ā muri ake nei, ka mātotoru pea te kiri, ka pupuhi, ka memeha haere te tae.
• Te pānga ki te whakaaro nui ki a ia anō me ngā whanaungatanga pāpori .

Ko te rongoā tino noa, tino whai hua hoki ko te rongoā taiaho. Mā te whakaiti i ngā oko toto kua nui rawa te rahi, ka whakaiti i te tae o te tohu whānau, ka tino whai hua tēnei rongoā mēnā ka tīmata i te wā taitamariki, i te wā e iti tonu ana ngā oko toto.

He poto noa ngā wā maimoatanga taiaho, he torutoru meneti noa iho te roa. He maha ngā tāngata me whakahou i te maimoatanga i ia torutoru marama. I muri i te maimoatanga taiaho, ka whero pea te kiri, ā, ka rite ki te mea kua wera i te rā. Mena he tino kore whakamarie te maimoatanga, ka taea e koe te tono ki tō tākuta kia hoatu he rehu whakangote, he kirīmi rānei. I ētahi wā ka hoatu he rongoā whakamoe whānui ki ngā tamariki nohinohi, kia taea ai e rātou te moe i te wā e maimoatanga ana.

Ka taea te ārai i te paru waina Port?

I te mea kāore anō kia mōhiotia e ngā kaipūtaiao te tino take o ngā "Port Wine Stains", kāore he huarahi hei ārai i ēnei tohu whānau. Kāore ēnei tohu whānau i puta mai i tētahi mea e pā ana ki te wā e hapu ana. Nō reira kaua e manukanuka, me te whakaaro, "Nāku rānei tēnei i mahi?"

Mena kei a au te `(Nevus Flammeus)`, he aha taku e tumanako ai?

Kāore ngā paru waina Port e memeha noa iho. Ki te kore e rongoatia, ka nui haere, ka pōuriuri, ka matotoru, ka pūpūpū hoki i roto i te wā.

Ki te nuinga o te tangata, he āhua noa iho ēnei tohu whānau, ā, kāore e puta he raruraru hauora nui. Heoi, ki te mea he "Port Wine Stain" tōu, tō tamaiti rānei, he mea pai kia tirohia e te tākuta i ia wā, i ia wā.

Ahakoa ka taea e te maimoatanga taiaho te whakaiti i te tae o ēnei tohu whānau, ka rerekē pea ngā hua i ia tangata, i ia tangata. Ahakoa i muri i te maimoatanga angitu, i ētahi wā he maha ngā tau i muri mai, ka puta anō pea ēnei tohu `(Nevus Flammeus)`, ka pouri ake rānei.

Me pēhea taku āwhina i taku tamaiti kia ora me te "Port Wine Stain"?

Ka taea e te "Port Wine Stain", inā koa i te mata, te whakama me te whakaiti i te whakaaro ki a ia anō i roto i te tamaiti. Tērā pea ka titiro kē ētahi tāngata ki tēnei mea, ā, ka kōrero kino. Whakamātauria ēnei mea hei āwhina i tāu tamaiti kia ora ai i tēnei āhuatanga:

• Kōrerohia mā te ngākau mārama ki tāu tamaiti mō tēnei tohu whānau mā te whakamahi i ngā kupu māmā noa iho.
• Me whakamārama ki a ia ko tēnei "Waiini Pōti" he wāhanga o tōna tinana, he mea ahurei, he mea motuhake, he mea kanapa ki a ia .
• Ki te pai ki tāu tamaiti, āwhina i a ia ki te whakamahi i tētahi momo meke-ā-kanohi hei huna i te ira.
• Kōrero ki ngā tāngata e taunekeneke ana tāu tamaiti (hei tauira, ngā kaiako, ngā hoa) mō te tohu whānau. Me whakarite kia whakaratohia e te kura he taiao tautoko e taea ai e tāu tamaiti te ako me te taunekeneke ki ētahi atu, me te kore e whakatoi, e aukati rānei .
• Whakaharatauhia te whakautu i ngā pātai ina pātai mai tetahi mō tēnei mea. Hei tauira, whakaharatauhia te kī i tētahi mea māmā pēnei i te, "Koinei taku tohu whānau."
• Whakaakona tāu tamaiti kia whakaaro ki tēnei tohu whānau he āhuatanga noa iho o tōna tinana , pērā i te tae o ngā kanohi.

Me whai tiaki kiri motuhake te `(Port Wine Stain)`?

Ka maroke pea te kiri i ētahi wā ina kitea he "Port Wine Stain". Nō reira, he mea nui kia whakamakuku pai te wāhi.

Mena kua whara te kiri (hei tauira, he karawarawa, he motu), tera pea ka nui ake te toto i te kiri noa. Nō reira, kia ma tonu te wāhi mā te horoi pai ki te hopi me te wai. Kātahi ka pēhia te wāhi ki te takai ma.

Āhea koe me rapu tohutohu hauora mō te `(Nevus Flammeus)`?

Mena kei a koe, kei tāu tamaiti rānei tētahi o ēnei tohu o te "Port Wine Stain", me toro atu ki te tākuta tonu:

• Mena kei te toto koe, ina koa kaore e taea te aukati i te toto.
• Mena te āhua kua pangia (hei tauira, whero, pupuhi, kī tonu i te pupuhi ).
• Mena he mamae.
• Ki te rakuraku koe.
• Mena kei te rere tetahi mea pēnei i te wai.

Hei whakamutunga, ngā mea hei maumahara (Karere hei tango ki te kāinga)

Ko te `(Port Wine Stain)`, `(Nevus Flammeus)` rānei, he tohu whānau tuturu e puta pinepine ana i te mata. Ka puta mai he ira papatahi, māwhero, whero, papura rānei i runga i te kiri o te pēpi hou, engari i roto i te wā ka nui haere, ka matotoru, ka pōuri haere. Ahakoa he kore kino, he onge te hononga ki ētahi atu mate hauora. Nō reira, ki te mea he tohu whānau pēnei i a koe, i tāu tamaiti rānei, he pai ake te toro atu ki te tākuta mō ētahi tohutohu. Ka taea e te maimoatanga laser te whakaiti i tōna āhua. He mea tino nui hoki te āwhina i te tamaiti ki te aro atu ki tēnei mate i te taha hinengaro.