Kia ako tātou i ētahi atu kōrero mō tēnei mate tauhou e kiia nei ko te Sarcoidosis.

Kua roa koe e ngoikore ana, e maremare ana, e ihu pupuhi ana? Tērā pea kua kite koe i ngā puku iti i runga i tō kiri. He maha o ēnei tohu kāore e pā ana, ka puta pea i tētahi mate kāore pea koe e whakaaro, ko te 'Sarcoidosis' te ingoa. Ahakoa he ahua whakamataku te ingoa, me kōrero māmā noa iho, me mārama hoki mō tōna āhua, te take e puta ai, me ngā mea ka taea e koe te mahi mōna.

He aha te mea ngāwari o te Sarcoidosis?

Āe, kia mārama tātou ki tēnei. He pūnaha ārai mate tō tō tātou tinana. He rite ki tētahi ope taua tiaki i roto i tō tātou tinana. Ko te mahi a tēnei ope he tiaki i a tātou mai i ngā hoariri pērā i ngā iroriki , ngā huakita , me ngā huaketo e puta mai ana i waho.

Ko te mea ka tupu i roto i te sarcoidosis, ka kaha ake te mahi a tō tātou pūnaha ārai mate i tōna kaha e tika ana. Arā, ahakoa kāore he hoariri tūturu, ka huihui ngā pūtau o te pūnaha ārai mate (ina koa ko ngā pūtau toto mā ) ka hanga i ngā puni iti ki ngā wāhi rerekē o te tinana. Ko ēnei puni iti e kiia nei e tātou i roto i te rongoā he puranga, he granuloma rānei .

Ka taea e ēnei puku (granulomas) te hanga i ngā wāhi katoa o te tinana. Heoi, ko te nuinga o te wā ka kitea i roto i ngā pukahukahu me ngā kōpū lymph . Ka taea hoki e rātou te hanga i roto i te kiri, ngā kanohi, te ngākau , me te roro.

I ētahi wā, kāore ēnei pona e puta he tohu. Engari i ētahi wā, i runga i te wāhi i puta ai me tōna rahi, ka puta he tohu rerekē. I te wā kino rawa atu, ka puta he koha tuturu i roto i ngā wāhi i puta ai ēnei pona i roto i te wā. Ka kiia tēnei he fibrosis . Pērā i te koha e toe ana i muri i te ora o te patunga. Mena ka puta tēnei i roto i ngā pukahukahu, ka pāngia pea te tukanga manawa mō te wā roa.

Ko wai te mea tino pāngia e tēnei āhuatanga?

He mate ka pā ki te tangata katoa te sarcoidosis. Heoi anō, tera ētahi āhuatanga ka pāngia ai koe e tēnei mate:

• Tau:Ko te nuinga o te wā ka kitea tēnei mate i roto i te hunga i waenga i te 25 me te 40 tau te pakeke.
• Ira Tangata: He nui ake te tūponotanga o ngā wāhine ki te pāngia e tēnei mate i ngā tāne.
• Hītori whānau: Ehara tēnei i te mate e tukuna tika mai ana. Heoi, ki te pāngia tētahi o tō whānau tata (whaea, pāpā, tungāne, tuahine rānei) e tēnei mate, he paku teitei ake tō tūponotanga ki te pāngia e tēnei mate i te tangata noa.

E kiia ana tēnei he mate onge. Nō reira, kāore he take e manukanuka nui ai mōna, engari he mea nui kia tūpato.

He aha ngā tohu o te Sarcoidosis?

Koinei te wāhi e pōhēhē ai te tini o te tangata. Nā te mea he rerekē ngā tohu o te sarcoidosis. He rerekē rawa ngā tohu i runga i te wāhi e puta ai ngā puku (granulomas). Tērā pea kāore he tohu o ētahi tāngata, ā, ka taea te tātaritanga tūpono i te wā e mahia ana he hihi-X mō tētahi atu take.

Kia tirohia tātou he aha ngā tohu matua.

Kua wehea te Sarcoidosis o ngā pukahukahu ki ngā wāhanga?

Ae, ko te Sarcoidosis (Pulmonary Sarcoidosis), he mate e pā ana ki ngā pukahukahu, kua wehea kia maha ngā wāhanga i runga i te āhua o ngā pukahukahu i runga i te hihi-X o te uma. Engari ehara i te wāhanga e ahu whakamua ana mai i tētahi wāhanga ki tētahi atu pērā i te mate pukupuku. Ko te wāhi anake e pā ana ki ngā puku (granulomas). Ka taea e te tangata te neke mai i tētahi wāhanga ki tētahi atu, te hoki ki te wāhanga tawhito, te ngaro katoa rānei o ngā puku.

• Wāhanga 0: Kāore he panoni e kitea ana i te hihi-X. He pai ngā pukahukahu me ngā kōpū waikura.
• Wāhanga 1: Kei roto noa i ngā kōpū lymph o te uma ngā pukupuku.
• Wāhanga 2: Ka kitea ngā pona i roto i ngā pona lymph i te uma me ngā pukahukahu.
• Wāhanga 3: Kei roto i ngā pūkahukahu anake ngā pukupuku. Kāore i roto i ngā kōpū lymph.
• Wāhanga 4: Kua puta he kiriuhi tuturu o ngā pukahukahu (pūkahukahu fibrosis). He uaua ki te whakakore i tēnei wāhanga.

He aha te take e puta ai te Sarcoidosis? He aha te take?

Kāore anō kia tino mārama ngā tākuta he aha te tino take o tēnei, engari ko te ariā e whakaaetia ana i nāianei ko te wā e pāngia ai te hunga whai ira tūpono ki tētahi matū motuhake i roto i te taiao (pēnei i te huakita, te huaketo, te matūriki puehu rānei), ka nui rawa te tauhohenga a tō rātou pūnaha ārai mate .

Ki te whakarapopototanga, e whakaponohia ana nā te huinga o ngā āhuatanga ira me te taiao i puta ai. Ahakoa he mate e pā ana ki te pūnaha ārai mate, kāore i te whakarōpūtia hei mate 'autoimmune'.

Me pēhea te tautuhi i te Sarcoidosis?

He uaua pea te tātaritanga o te sarcoidosis, nā te mea ka kitea anō hoki ngā tohu i kōrerotia i runga ake nei i roto i te maha atu o ngā mate. Nō reira, ka whakakorea e tō tākuta ētahi atu āhuatanga i mua i te whakatau he tūponotanga pea te sarcoidosis.

He maha ngā whakamātautau e whakamahia ana mō tēnei:

• Whakamātautau tinana: Ka whakarongo pai te tākuta ki ō tohumate, ka tirotirohia hoki ngā mea pēnei i tō kiri, ō kanohi, me ō pona lymph.
• Ngā whakamātautau whakaahua: Ko te hihi-X o te uma te mea tuatahi ka mahia e koe. Ka taea e ia te tirotiro i te āhua o ō pukahukahu me ō kōpū lymph. Hei tāpiri, me whai matawai CT , MRI rānei.
• Ko te koiora-koiora: Koinei te huarahi pai rawa atu hei whakaū i te mate 100%. Ka tangohia he wahi kiko iti rawa mai i tētahi wāhi e whakapaetia ana (hei tauira, te kiri, te kōpū lymph) ka tirohia i raro i te karu hiko.
• Ngā whakamātautau mahi a ngā pūkahukahu: Ka ine ēnei i te pai o te mahi a ngā pūkahukahu.
• Ngā whakamātautau toto me te mimi:Ka tirohia ngā mea pēnei i te mahi a ngā whekau pēnei i te ate me ngā whatukuhu me te taumata o te konupūmā i roto i te toto.
• EKG (Electrocardiogram): Ka mahia tēnei whakamātautau hei tirotiro mēnā he pānga ki te ngākau.
• Whakamātautau mate kohi: I te mea he rite tonu ngā tohu o te mate kohi ki tēnei, ka mahia he whakamātautau kiri māmā hei whakaū kāore i te pērā.

He aha ngā maimoatanga mō tēnei?

Ko te rongo pai, kāore e hiahiatia he maimoatanga mō te katoa e pāngia ana e te sarcoidosis. Mō te rua hautoru o te tangata, ka ora ake te mate i roto i ngā tau e rua ki te toru, me te kore he maimoatanga.

Ko te tīmatanga o te maimoatanga, kāore rānei, kei runga i te kaha o ō tohu me te wāhi kei reira ngā pukupuku. Hei tauira, ki te pāngia ngā kanohi, te ngākau, te pūnaha io rānei, ka tīmata wawe te maimoatanga hei aukati i te kino o ngā whekau.

Ko ngā whāinga matua o te maimoatanga ko:

1. Te whakahaere i ngā tohumate.

2. Te whakaiti i te mumura i roto i te tinana.

3. Te ārai i te kino tuturu (fibrosis) ki ngā whekau.

Ko ngā momo rongoā matua e hoatu ana mō tēnei ko:

• Corticosteroids: Koinei te momo rongoā e whakamahia whānuitia ana (hei tauira, Prednisone). Ka mahi ēnei mā te pehi i te pūnaha ārai mate me te whakaiti tere i te mumura i roto i te tinana. Kei te wātea mai ēnei i roto i te ahua o ngā pire, ngā inhaler, ngā kirīmi rānei e pania ana ki te kiri.
• Ngā rongoā ārai mate: Haunga ngā corticosteroids, hei whakaiti rānei i te horopeta, ka hoatu hoki ētahi atu rongoā hei whakahaere i te pūnaha ārai mate (hei tauira, Methotrexate).
• Ngā paturopi anti-TNF-alpha: He momo rongoā werohanga (whaowhio) ēnei e aro ana ki tētahi matū motuhake i roto i te pūnaha ārai mate.
• Ngā NSAID (rongoā mamae): Ka taea te hoatu i ēnei hei whakahaere i ngā tohumate rangitahi pēnei i te mamae o ngā hononga.

Ngā mea hei mōhio māu i te wā e noho tahi ana me te sarcoidosis

He maha ngā mea ka taea e te tangata e pāngia ana e te sarcoidosis te mahi hei whakahaere i tōna āhua.

• Whāia ngā tohutohu a tō tākuta: tangohia tō rongoā kia rite ki te whakahaunga, haere ki te whare hauora i ngā rā kua whakaritea, ā, whakamōhio atu ki tō tākuta mēnā he huringa kei roto i ō tohumate.
• Te āhua noho hauora:He mea nui kia kai i tētahi kai taurite, kia kaua e hikareti rawa (ina koa mēnā kua pā ki ngā pukahukahu), ā, kia taurite te whakakori tinana kia rite ki ngā tohutohu a tō tākuta.
• Kai: E kī ana ētahi rangahau mā te whakaiti i ngā kai huka, māngaro, me te kai i ngā huawhenua, ngā hua rākau, me ngā kai whai omega-3 (hei tauira, ngā ika ririki) ka āwhina i te whakaiti i te mumura. Heoi, me kōrero ki tō tākuta i mua i te hanga i tētahi huringa nui ki te kai.

Ka taea e te nuinga o te tangata te noho noa, te noho harikoa me te sarcoidosis. Kāore i te maha ngā wā ka whakapotohia te roanga o te oranga (1%-5%). Ko te mea nui ko te kaua e wehi i te mate, engari kia mārama tika ki tēnei mate, me te mahi tahi me tō tākuta ki te whakawhanake i te mahere whakahaere pai rawa atu e pai ana mōu.