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Tuatahi, he aha te hemophilia?
Ki te kī ngāwari, ina pāngia tātou e te motu, e te whara rānei i tētahi wāhi o te tinana, ka mutu te toto i muri i tētahi wā, tika? Ko te toto toto tēnei e kiia ana he toto toto. Pērā i te hanga pakitara, ka whakatakotoria he sima ki waenganui i ngā pereki hei whakakī i ngā āputa, ka huihui ētahi pūmua i roto i ō tātou toto hei hanga i tētahi "mono" ki te wāhi i whara ai, ā, ka mutu te toto. Ka kiia ēnei pūmua he Tauwehe Toto Toto . Kāore te tangata he hemophilia e whakaputa i tētahi, i ētahi rānei o ēnei Tauwehe Toto Toto i roto i te tinana i te nui e hiahiatia ana. Kāore rānei e mahi tika. Nō reira, ahakoa he whara iti, kāore e mutu te toto, ā, ka haere tonu. I ētahi wā, ka puta te toto i roto i te tinana, inā koa i roto i ngā hononga me ngā uaua, me te kore he whara.Me pēhea te whanaketanga o te hemophilia? He tuku iho?
Ae, he mate ira te hemophilia. Arā, he mea tuku iho i ō tātou mātua mā roto i ngā ira . Kei te ira X te ira hapa mō tēnei mate. E mōhio ana koe, e rua ngā ira X (XX) o ngā wāhine, ā, kotahi te ira X me te ira Y (XY) o ngā tāne. Nō reira, ko tēnei mate te mea tino kitea i roto i ngā tāne.- Ko ngā wāhine anake te hunga e kawe ana i te mate. Ko te tikanga, ahakoa kei a rātou te ira hapa i runga i tētahi o ā rātou ira-X, kāore rātou e whakaatu i ngā tohu nā te mea kei tētahi atu ira-X hauora. Heoi, ka taea e rātou te tuku i te ira hapa ki ā rātou tamariki.
- Ki te riro mai i te tamaiti tāne tēnei ira-X hapa i tōna whaea, ka pāngia ia e te hemophilia nā te mea koinei anake te ira-X kei a ia.
Nō reira, e mārama ana koe? Ehara te hemophilia i te mea ka pā mai i waho pērā i te makariri . He mate e haere tahi mai ana me ō tātou ira, he mea tuku iho.
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Check Availability →Nā reira, ko te pātai matua: Ka taea te ārai i te tukunga iho o te hemophilia?
Ko te whakautu poto rawa atu, me te whakautu pono rawa atu ki tēnei ko, "Kāo."E ai ki te pūtaiao hauora o nāianei, kāore he huarahi hei ārai i te tukunga iho o te ira o te tangata. Ko te tikanga, mēnā he hītori whānau mō te hemophilia, tera pea ka riro i a koe, i tāu tamaiti rānei te ira. Kāore anō kia kitea he rongoā, he kano ārai mate rānei. Kaua e manukanuka! Ahakoa kāore e taea e tātou te ārai i te tukunga iho o te mate, tera ētahi mea tino nui ka taea e tātou te mahi.Ngā mea ka taea te mahi: Te Tohutohu Ira
Mena he hemophilia tō tetahi o tō whānau, ko te mea pai rawa atu ka taea e koe te mahi i mua i tō marena, i mua rānei i tō whakaaro ki te whānau tamariki, ko te rapu tohutohu ira .- Mā wai tēnei e kōrero?
- Mena he hunga hemophilia kei roto i te whānau (i te taha o te whaea, o te pāpā rānei).
- Mena he wahine koe, ā, e hiahia ana koe ki te mōhio mēnā he kaikawe koe i te mate.
- Mena kei te whakaaro ngā mātua kua whai tamariki kē rātou me te hemophilia kia whānau he tamaiti.
- He aha ngā mea ka tupu i tēnei whakawhitiwhiti kōrero?
Ki te kore e taea te ārai i te mate, me pēhea te ārai i ngā raruraru?
Koinei te wāhanga tino nui. Ahakoa kāore e taea e tātou te ārai i te hemophilia kei riro mai i te tukunga iho, he maha ngā mea ka taea e tātou te mahi hei ārai i ngā raruraru me ngā mōrearea ka puta mai. Ka taea e ēnei mea te āwhina i a koe ki te noho hauora, ki te noho noa me te hemophilia.| Ngā raruraru ka taea te ārai | Ngā mea hei mahi |
|---|---|
| Te toto toto pinepine me te maru | - Te karo i ngā hākinakina pā atu ki te tinana pērā i te whutupōro me te mekemeke. - Te whai wāhi atu ki ngā mahi haumaru pērā i te kauhoe me te hikoi. - Mēnā he tamaiti nohinohi tāu, whakamahia he taupoki tiaki mō ngā mea koi i te kāinga, me ngā papa tiaki mō ngā turi me ngā tuke. |
| Te kino o te hononga | - Te tango i ngā matū toto totoka i tohua e te tākuta i te wā tika, me te horopeta tika. Koinei te mea nui. - Te mahi i ngā mahi whakapakari hononga e ai ki ngā tohutohu a te whakaora tinana. |
| Te toto mai i ngā niho me ngā kapia | - Kia mau tonu te akuaku o te waha. Paraia ō niho i ia rā ki te paraihe niho ngohengohe. - Haere ki tō tākuta niho i ia wā. I mua i te whai i tētahi tikanga pēnei i te tango niho, he mea nui kia whakamōhio atu koe ki tō tākuta mō tō mate hemophilia. |
| Te toto i puta mai i ngā rongoā kino | - Kaua rawa e tango i ngā rongoā hei whakaiti i te toto totoka, pērā i te aspirin me ngā NSAID (hei tauira, ibuprofen, diclofenac). - Me pātai atu ki tō tākuta i mua i te tango i tētahi rongoā. |
Karere Tangohia ki te Kāinga
- He mate ira te hemophilia e kore e taea te ārai, te whakaora rānei mā ngā tikanga o nāianei.
- Mena he hītori o te hemophilia kei roto i tō whānau, he mea tino nui kia rapu tohutohu ira koe i mua i te whakaaro ki te whānau tamariki.
- Ahakoa kāore e taea te ārai i te mate, he maha ngā mea ka taea te mahi hei ārai i ngā raruraru (te toto, te kino o ngā hononga ) i puta mai i te mate.
- He mea nui kia tika te tango i te maimoatanga (Factor Replacement Therapy) i tohua e te tākuta, kia mau ki tētahi momo noho haumaru, ā, kia karo hoki i ngā rongoā kino.
- Mena he āwangawanga, he wehi rānei āu mō tēnei mea, kaua rawa e huna ki a koe anake. Tō tākutaKōrero māhorahora ki a rātou, kia whiwhi ai koe i ngā tohutohu tika.
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