Ngaba ungumntu oneHemophilia A? Okanye ngaba kukho umntu kusapho lwakho onale meko? Ukuba kunjalo, mhlawumbi uyazi ukuba kubaluleke kangakanani ukulawula ukopha xa kusenzeka. Namhlanje siza kuthetha ngesitofu esibaluleke kakhulu esisetyenziselwa le njongo, isitofu i-Antihemophilic Factor (AHF) okanye iFactor VIII. Masithethe nje ngokuba yintoni, sisetyenziswa njani, kwaye zeziphi izinto ekufuneka uzilumkele.
Lithini eli yeza libizwa ngokuba yiFactor VIII?
Ngamafutshane, abantu abane-hemophilia A bane-Factor VIII encinci okanye abanayo kwaphela, iproteni efunekayo ukuze igazi lijiye. Ngoko ke nokuba yingozi encinci kunokubangela ukopha okukhulu. Olu gonyo lusebenza ngokubonelela umzimba nge-Factor VIII engafanelekanga.
Oku kusetyenziswa kakhulu kwezi zinto zilandelayo:
- Ukuthintela okanye ukulawula ukopha kwizigulane ezine-hemophilia A.
- Ukuba utyando, lawula naluphi na ukopha okunokwenzeka ngelo xesha.
- Kwezinye iimeko, ezinye iintlobo zale mithi zikwasetyenziselwa ukunyanga enye imeko yokopha ebizwa ngokuba sisifo sika-von Willebrand.
Eli yeza linokuba phantsi kwamagama eempawu ezahlukeneyo ezifana ne-Advate, iKogenate, iHumate-P, iXYNTHA, njl. Nokuba ufumana liphi igama, liqulethe iFactor VIII efanayo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba uthathe amayeza
Ngaphambi kokuba uqale olu nyango, kubaluleke kakhulu ukuxoxa ngale micimbi ngokucacileyo nogqirha wakho.
- Ii-Allergy: Qiniseka ukuba uyasixelela ukuba wakha waba ne-allergy kwiiproteni zabantu okanye zezilwanyana (ezifana nenyama yenkomo, i-hamster, iimpuku, ihagu), amanye amayeza, ukutya, izithinteli, okanye iidayi.
- Ukukhulelwa: Ukuba ukhulelwe okanye uzama ukukhulelwa, yazisa ugqirha wakho.
- Ukuba ungumama oncancisayo: Ukuba ungumama oncancisayo, kufuneka ukhankanye loo nto.
Ngokusekelwe kolu lwazi, ugqirha uza kugqiba ngolona nyango lufanelekileyo nolukhuselekileyo kuwe. Ngoko ke musa ukufihla nantoni na.
Ndingayisebenzisa njani le yeza?
Olu luhlaselo oluya emthanjeni . Olu luhlaselo ludla ngokwenziwa yingcali yezonyango esibhedlele okanye eklinikhi. Nangona kunjalo, ezinye izigulana zifundiswa indlela yokunika olu hlaselo ekhaya. Ukuba unikwa olu hlaselo ekhaya, kufuneka ulandele imiyalelo ngqo . Ukuba awuqinisekanga ngendlela yokuxuba iyeza okanye ukufaka inaliti, buza ugqirha wakho kwakhona.
Xa inikwa abantwana abancinci?
Eli yeza linokunikwa abantwana bayo nayiphi na iminyaka, njengoko kufuneka. Nangona kunjalo, lifuna unonophelo olukhethekileyo. Ngoko ke, ukuba unika umntwana wakho eli yeza, thetha nogqirha wezingane ngalo kwaye ufumane ingcebiso.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Ukuba ucinga ukuba uthathe eli yeza lininzi ngempazamo, qhagamshelana neZiko loLwazi lweeTyhefu zeSizwe kwiSibhedlele sikaZwelonke eColombo ngoko nangoko . Okanye uye kwiSebe leNgxamiseko (ETU) lesibhedlele esikufutshane. Musa ukuchitha ixesha.
Amanqaku akhethekileyo ekufuneka aqwalaselwe
- Phatha ikhadi lesazisi: Ukuba une-hemophilia, kubaluleke kakhulu ukuba uphathe ikhadi lesazisi ngamaxesha onke. Lingasindisa ubomi bakho xa kukho imeko engxamisekileyo. Eli khadi kufuneka liquke igama lakho, igama kunye nomlinganiselo wamayeza owaselayo, igama kunye nenombolo yefowuni kagqirha wakho, kunye nolwazi lomntu onokuqhagamshelana naye xa kukho imeko engxamisekileyo.
- Umthombo wamayeza: Amanye ala mayeza enziwe ngeplasma yegazi lomntu. Kukho umngcipheko omncinci kakhulu wokudlulisela iintsholongwane okanye iintsholongwane kwezi. Nangona kunjalo, zonke ezi mveliso zicutshungulwa kakhulu ukuze zibulale uninzi lweentsholongwane kunye neentsholongwane. Ukuba unemibuzo malunga noku, ungathandabuzi ukuthetha nogqirha wakho.
- Musa ukwabelana ngeyeza: Eli yeza lelakho wedwa. Ungaze wabelane ngalo nabanye abantu.
Iziphumo ebezingalindelekanga ezinokubakho zale yeza
Njengayo nayiphi na imithi, le inokuba nemiphumo emibi. Kubalulekile ukwazi ukuba yintoni na kwaye wenze ntoni xa isenzeka.
| Imiphumela | Inkcazo kunye nento omawuyenze |
|---|---|
| Ukuba ezi mpawu ziyenzeka, yazisa ugqirha wakho ngoko nangoko. | |
| Iimpendulo ze-Allergic | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe okanye ulwimi, ubunzima bokuphefumla. |
| Iintlungu zesifuba | Intlungu yesifuba ebangelwa kukubetha kwentliziyo ngokukhawuleza okanye ngokungangqalanga. |
| Ukudinwa kunye nokuquleka | Ukudinwa ngequbuliso, ukubona izinto ezingaqondakaliyo, okanye ukuziva utyhafile. |
| Umkhuhlane kunye neempawu ezifana nomkhuhlane | Iimpawu ezinje ngomkhuhlane, ukubanda kunye nokungcangcazela. |
| Ukungabi nangqondo kwamalungu | Ukuba ndindisholo okanye ukuphelelwa yimvakalelo ezandleni okanye ezinyaweni. |
| Ukutyheli kwamehlo okanye ulusu | Ukutyheli kwamhlophe emehlweni okanye kulusu. |
| Ukuba ezi zinto ziyaqhubeka okanye ziyakukhathaza, xelela ugqirha wakho. | |
| Intloko ebuhlungu, isicaphucaphu, ukuhlanza | Intloko ebuhlungu kancinci, isicaphucaphu, okanye ukuhlanza. |
| Umbono ofipheleyo | Umbono ofiphele kancinci. |
Ungayigcina njani iyeza?
Ukuba uyisebenzisa ekhaya, kubaluleke kakhulu ukugcina iyeza ngokufanelekileyo.
- Gcina kude nabantwana.
- Uninzi lweemveliso kufuneka zigcinwe efrijini kumaqondo obushushu aphakathi kwe-2 kunye ne-8 degrees Celsius (2-8 °C). Ungaze uzigcine efrijini.
- Lahla naliphi na iyeza eliphelelwe lixesha ngaphandle kokulisebenzisa.
- Nje ukuba ulwelo lwegonyo luxutywe, kufuneka lusetyenziswe kwisithuba seyure enye ukuya kwezintathu. Lahla naluphi na ulwelo oluseleyo.
Ukuba kukho imiyalelo ekhethekileyo malunga nemveliso oyifumanayo, yilandele ngokuchanekileyo.
Umyalezo Wokuya Ekhaya
- I-Factor VIII liyeza elibaluleke kakhulu elibuyisela i-blood clotting factor engekho emzimbeni wabantu abane-hemophilia A kwaye lilawula ukopha.
- Xelela ugqirha wakho ngazo zonke izinto ezikubangela ukuba ungabi namdla kunye nolwazi ngempilo yakho ngaphambi kokuba uqale unyango.
- Landela imiyalelo yokusetyenziswa kunye nokugcinwa kweyeza ngokuchanekileyo. Ukuba unamathandabuzo, buza kwakhona.
- Soloko uphatha ikhadi lesazisi eliqinisekisa ukuba unesifo segazi.
- Ukuba ufumana isiphumo esibi kakhulu esifana nokusabela okunamandla kokunganyamezelani komzimba, iintlungu zesifuba, okanye ubunzima bokuphefumla, funa ingcebiso kagqirha ngoko nangoko.
- Eli yeza lenzelwe wena kuphela. Ungaze wabelane ngalo nabanye abantu.
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