Ingabe ingane yakho encane ayinankinga yokuyeka ukopha? Ake sixoxe nge-hemophilia!

Njengomama noma ubaba, noma ngabe ingane yakho ilimele kancane noma yopha igazi, uzizwa ukwesaba okukhulu nokukhathazeka, akunjalo? Kujwayelekile kakhulu. Kodwa kwabanye abantwana, ngisho noma benokulimala okuncane, ukopha igazi kungase kungapheli ngokushesha njengokujwayelekile. Ngezinye izikhathi, bangase bophe igazi ngaphandle kwesizathu nhlobo. Isizathu esiyinhloko salokhu kungaba yisifo esibizwa ngokuthi i-hemophilia. Ukuzwa leli gama kungakwenza uzizwe wesaba ngokushesha, kodwa ungakhathazeki. Ake sixoxe ngakho konke kalula nangokucacile namuhla. Ngizochaza lezi zinto ngendlela ongayiqonda.

Kuyini i-hemophilia?

Kalula nje, i-hemophilia yisimo esingavamile, esizuzwe njengefa esibangela ukuba igazi lethu lijiye ngendlela engafanele. Uyazi, lapho sithola ukulimala okuncane, njengokusikwa ngommese, okunye ukuphuma kwegazi kuyayeka ngoba amaprotheni athile egazini lethu (abizwa ngokuthi izinto ezijiya igazi ) ayahlangana futhi avale inxeba, amise ukuphuma kwegazi. Kufana nedamu elincane "elivala" inxeba.

Ngakho-ke, izingane ezine-hemophilia zinezinga eliphansi lesinye noma ngaphezulu salezi zinto ezibangela ukujiya kwegazi, noma azisebenzi kahle. Yingakho zithatha isikhathi eside kunokujwayelekile ukuvimba ukopha ngisho noma kulimala okuncane, noma ngezinye izikhathi ziqala ukopha kalula. Ngakho-ke, njengomzali wengane ene-hemophilia, kubaluleke kakhulu ukwazi ukuthi ungakuphatha kanjani kahle ukopha uma kwenzeka .

Lokhu kungase kuzwakale kukukhathaza kakhulu. Ungase ucabange, "O, mntanami, ingabe lokhu kuzokwenzeka kimi?" Kodwa khumbula, ngemithi yokwelapha ethuthukisiwe yanamuhla, ngisho nengane ene-hemophilia ingaphila impilo evamile nenempilo ngangokunokwenzeka. Into ebaluleke kakhulu ukuthi wena nomndeni wakho niqonde kahle lesi sifo nokuthi ningasiphatha kanjani.

Indlela yokwelapha ukopha?

Uma ingane ene-hemophilia yopha igazi, ukwelashwa kuncike ohlotsheni lokopha kwegazi, ubukhulu bokulimala, nokuthi ukopha kuvela kuphi. Esikhathini esiningi, ukopha okuncane okuvela ekulimaleni okuncane kungaphathwa ekhaya. Kodwa-ke, ukulimala okukhulu kudinga ukuvakashela udokotela, i-Hemophilia Treatment Center, noma igumbi lezimo eziphuthumayo esibhedlela.

Manje ake sibheke ukuthi yini okufanele siyenze ezinhlotsheni ezahlukene zokopha. Udokotela wakho uzokuchazela konke lokhu ngokuningiliziwe. Kodwa kubaluleke kakhulu ukwazi lezi zinto eziyisisekelo.

Yini okufanele uyenze uma kunezibazi?

Kuvamile ukuthola imihuzuko emincane ngenkathi udlala, ugijima, noma ugxuma. Enganeni ene-hemophilia, le mihuzuko ingaba mikhulu futhi ibe mnyama.

• Cabanga ngengane yakho ikhubeke esihlalweni ngesikhathi idlala futhi yalimaza umlenze wayo. Uma lokho kwenzeka, beka iphakethe leqhwa eligoqwe ngethawula phezu kwenxeba cishe imizuzu eyi-10. Yenza lokhu njalo emahoreni amabili. Ungalokothi ubeke iqhwa ngqo esikhumbeni, kulungile? Kungalimaza isikhumba.
• Kodwa-ke, khuluma nethimba lakho lokunakekela ngalezi zikhathi:
• Uma inxeba libuhlungu kakhulu.
• Uma kubonakala sengathi inxeba liya likhula.
• Uma ukulimala kwenza kube nzima ukuhambisa isitho, noma uma kubangela ubuhlungu.

Kuthiwani uma amanxeba omlomo ephuma igazi? (Umlomo uphuma igazi)

Izingane ziyakhathazeka kancane uma zinenxeba elincane emlonyeni wazo, isibonelo, ukusikeka ezinsinini zazo ngenkathi zixubha amazinyo azo, noma ukusikeka olimini lwazo ngenkathi zidla, bese kuphuma igazi. Nakhu okufanele ukwenze kuleso simo:

• Faka ingcindezi endaweni ephuma igazi. Lokhu kusho ukuyibamba phansi ngendwangu noma i-gauze ehlanzekile isikhathi esifushane.
• Ungafaka ne-ice pop noma i-ice cube endaweni. Umkhuhlane uzovimba imithambo yegazi futhi unciphise ukopha.
• Uma ukopha sekuphelile, gwema ukunika ingane yakho ukudla okuqinile nokuqinile (isib. amabhisikidi, ama-chips) kanye nokudla okushisayo neziphuzo, njengoba lokhu kungase kuqale ukopha futhi.
• Uma ukopha kungayeki ngemva kwemizuzu engaba ngu-20, qiniseka ukuthi ushayela ithimba lakho lezokwelapha.

Ngokusikeka okuncane kanye nokuklwebheka

Sivame ukunakekela ukulimala okuncane okufana nalokhu ekhaya, kodwa lezi zinto kudingeka zenziwe ngendlela efanele.

• Okokuqala, geza kahle indawo esikiwe noma eklwejiwe ngamanzi.
• Bese ucindezela inxeba ngengxenye ye-gauze ehlanzekile, indwangu ehlanzekile, noma i-plaster.
• Uma ukopha kungayeki ngemva kwemizuzu engaba ngu-20, shayela udokotela wakho ngokushesha. Uzokutshela ukuthi wenzeni. Kungase kudingeke ukuthi:
• Ukwelashwa Kokushintsha Ama-Factor kunikezwa ekhaya. Lokhu kuhilela ukunika ingane i-clotting factor enganele emzimbeni wayo njengomjovo. Udokotela nomhlengikazi bazokufundisa ukuthi ungakunikeza kanjani lokhu.
• Ngaphandle kwalokho, udokotela uzokutshela ukuthi umyise esikhungweni sokwelapha i-hemophilia noma egumbini lezimo eziphuthumayo esibhedlela.

Kuthiwani uma kukhona ukusikeka okukhulu okubangela ukopha okuningi?

Lesi yisimo esibucayi. Ungesabi, kodwa landela lezi zinyathelo ngokushesha okukhulu.

1. Okokuqala, lawula ukopha ngokushesha okukhulu:

• Ingcezu ye-gauze ehlanzekile, indwangu ehlanzekile, noma ibhandishiFaka ingcindezi enhle enxebeni.
• Uma i-gauze noma indwangu ebekwe esilondeni imanziswa yigazi, ungayisusi, kodwa beka enye phezulu bese uqhubeka nokucindezela.
• Uma kungenzeka, gcina ingalo noma umlenze olimele ungaphezulu kwesilinganiso senhliziyo. Lokhu kungasiza ekunciphiseni ukopha kancane.

2. Okulandelayo, shayela udokotela wakho ngokushesha bese ulandela imiyalelo yakhe:

• Cishe bazoncoma ukwelashwa kokushintsha izinto ngokushesha okukhulu .
• Bamtshela ukuthi amyise kudokotela ngokushesha, esikhungweni sokwelapha i-hemophilia, noma egumbini lezimo eziphuthumayo lesibhedlela.

Ngesikhathi esinjengalesi, kungcono ukungachithi ngisho nomzuzwana. Shayela udokotela ngokushesha bese wenza njengoba esho.

Kuthiwani uma kukhona ukusolakala kokuphuma kwegazi elijoyintini noma emsipheni? (Kungenzeka ukopha igazi elijoyintini noma emsipheni)

Lokhu nakho kubaluleke kakhulu. Ngezinye izikhathi, ngisho noma kungekho ukulimala okubonakalayo, izingane ezine-hemophilia zingopha igazi emalungeni azo (isib., emadolweni, ezindololwaneni, emaqakaleni) noma emisipheni emikhulu (isib., emathanga, ezingalweni). Lokhu kungaba buhlungu kakhulu futhi kungabangela umonakalo wesikhathi eside emalungeni.

• Uma ingane yakho ingafuni ukuhambisa ilunga, uma kukhona ukuvuvukala, ukubomvu, noma ukufudumala endaweni, noma uma ingane yakho imane ikhala ngobuhlungu endaweni, shayela udokotela wakho ngokushesha.
• Landela imiyalelo kadokotela ngqo. Uzovame ukukutshela ukuthi wenze lezi zinto:
• Nikeza ukwelashwa kokufaka esikhundleni sezinto ngokushesha okukhulu.
• Faka iqhwa (ligoqwe ngethawula) endaweni yobuhlungu.
• Nikeza umuthi ophephile wokuqeda ubuhlungu . Isibonelo, unganikeza i-acetaminophen (isib. i-Tylenol).

Kubaluleke kakhulu: Ungalokothi unikeze amaphilisi okuqeda ubuhlungu njenge -Aspirin , i-Ibuprofen (isib. i-Advil, i-Motrin), kanye ne -Naproxen Sodium (isib. i-Aleve) . Le mithi ingenza ukopha kube kubi kakhulu!

• Songa kancane ijoyinti ngebhandeji elinwebekayo noma i-ACE wrap ukuze lisekeleke.
• Myise ngokushesha kudokotela, esikhungweni sokwelapha i-hemophilia, noma egumbini lezimo eziphuthumayo esibhedlela.

Kuthiwani uma kukhona ukulimala ekhanda, esifubeni, entanyeni, noma esiswini? (Ukulimala ekhanda, esifubeni, entanyeni, noma esiswini)

Lezi zinhlobo zokulimala akufanele zithathwe kalula. Ziyingozi kakhulu ngoba zingabangela ukopha kwangaphakathi. Uma ingane iwela, ishaya okuthile, noma ishaya ikhanda layo, isifuba, intamo, noma isisu kanzima,Ngisho noma kungekho ukulimala okukhulu okubonakalayo, shayela udokotela ngokushesha.

• Landela imiyalelo kadokotela ngqo. Mhlawumbe:
• Bancoma ukwelashwa kokushintsha izinto ngokushesha ekhaya .
• Bazokutshela ukuthi umyise ekamelweni lezimo eziphuthumayo esibhedlela ngokushesha, noma ushayele i-ambulensi .

Ezimweni ezinjengalezi, ukuthatha isinyathelo esisheshayo kungasindisa impilo yengane.

Kunini lapho kufanele ngiyise ingane yami ekamelweni lezimo eziphuthumayo?

Kunezimo ezithile lapho kungafanele ukwelapha ingane ekhaya noma ukulinda ukubiza udokotela. Ezimweni ezinjalo , ingane kufanele iyiswe ekamelweni lezimo eziphuthumayo esibhedlela esiseduze ngokushesha, ngaphandle kokulibala.

Nazi ezinye izimo ezinjalo:

• Uma uphatha njengoba udokotela eshilo, kodwa ukopha akupheli.
• Uma ingane inezinhlungu ezinzima esiswini .
• Uma umchamo wengane uphenduka obomvu noma umbala wetiye (lokhu kungaba uphawu lokopha ngaphakathi).
• Uma ingane yakho inegazi esitulweni sayo, noma uma isitulo sayo simnyama okwesibhakabhaka (njengethayela).
• Uma ingane inekhanda elibuhlungu kakhulu, ihlanza, isiyezi, noma ididekile (lokhu kungaba uphawu lokopha ngaphakathi kobuchopho).
• Uma ingane isengozini enkulu (isib., ukuwa isuka endaweni ephakeme, ingozi yemoto).

Uma ingane yakho inanoma yiziphi zalezi zimpawu, yiyise ekamelweni lezimo eziphuthumayo esibhedlela esiseduze ngokushesha, ngaphandle kokulibala. Ukuthatha isinyathelo ngokushesha ngezikhathi ezinjalo kubaluleke kakhulu empilweni yengane.

Umlayezo Wokuya Nawe Ekhaya

Kulungile, ngakho-ke ekugcineni ake sikukhumbuze ezinye zezinto esixoxe ngazo esicabanga ukuthi zizoba zibalulekile kuwe.

• I-Hemophilia yisimo lapho igazi lengane lingavimbi kahle. Kodwa-ke, lokhu kungalawulwa ngokuphathwa kahle.
• Kubaluleke kakhulu ukuthi wazi ukuthi wenzeni uma uzwa ukopha. Futhi, qiniseka ukuthi amanye amalungu omndeni wakho (oshade naye, izingane ezindala, ogogo nomkhulu) ayazi ngalokhu.
• Gcina ubuhlobo obuhle nodokotela owelapha ingane yakho. Ungesabi ukubuza noma yimiphi imibuzo noma ukukhathazeka onakho. Sebenzisana nodokotela ukuze wakhe uhlelo lokwelapha ingane yakho.
• Gcina izinto ezidingekayo ekhaya njalo , njengezinto ezixubile, i-gauze ehlanzekile, kanye namabhandeji.
• Ungalokothi unqikaze ukubiza udokotela noma ukuya esibhedlela, ikakhulukazi uma unokungabaza noma ukwesaba okuthile.
• Okokugcina, awuwedwa.Ithimba lezokunakekelwa kwempilo, okuhlanganisa odokotela, abahlengikazi, kanye nochwepheshe ezikhungweni zokwelapha i-hemophilia, bahlala bekulungele ukusiza nokukuqondisa wena nengane yakho.

Ukuphila ne-hemophilia kungaba yinselele, kodwa qiniseka ukuthi ngolwazi olufanele, ukunakekelwa, kanye nokwelashwa ngesikhathi esifanele, ingane yakho ingaphila impilo ejabulisayo, esebenzayo, neyanelisayo njenganoma yimuphi omunye umntwana.

I- Hemophilia, ukopha, impilo yezingane, usizo lokuqala, ukujiya kwegazi, ukwelashwa okuphuthumayo