Uma udokotela wakho ekutshela ukuthi ingane yakho inesifo esibizwa ngokuthi i-'PIK3CA-Related Overgrowth Spectrum', noma '(PROS)' ngamafuphi, ungase uzizwe ushaqekile futhi wesaba kakhulu. Ngisho nokuzwa leli gama kukwenza uzizwe ungakhululekile, akunjalo? Kodwa ungakhathazeki. Awuwedwa. Kukhona ithimba lonke lodokotela abanekhono nabangochwepheshe abangakusiza wena nengane yakho esimweni esiyinkimbinkimbi kangaka. Namuhla, ake sixoxe ngokuthi obani abakuleli qembu nokuthi bangasiza kanjani ingane yakho.
Kuyini ngempela OKUHLE? Kungani lokhu kudinga odokotela abaningi abangochwepheshe?
Kalula nje, i-PROS yisimo sezakhi zofuzo esibangela ukuba amangqamuzana emzimbeni wethu akhule ngokungalawuleki nangokushesha kunokujwayelekile. Sibangelwa ukuguquka kwezakhi zofuzo okuthiwa i-PIK3CA. Lokhu kungabangela ukuthi izingxenye ezahlukene zomzimba, njengesikhumba, amathambo, izicubu ezinamafutha, imithambo yegazi noma izitho ezifana nobuchopho, zikhule zibe zinkulu kunokujwayelekile. Lesi simo siyahlukahluka kakhulu kumuntu nomuntu. Ezinye izingane ziba nalezi zimpawu lapho zizalwa. Kwabanye, zivela kuphela uma sezikhulile kancane. Kwabanye abantwana, lesi simo singase sibe sibi kakhulu njengoba bekhula, kodwa kwabanye, asishintshi kakhulu.
IZINHLE akusona isifo esisodwa, kodwa iqoqo lezimpawu. Yingakho kunzima ngodokotela oyedwa ukuselapha. Odokotela abanolwazi olukhethekile ngengxenye ngayinye yomzimba ethintekile kudingeka basebenzisane njengeqembu.
Bazoxoxa bodwa futhi bakhe uhlelo lokwelapha olungcono kakhulu lwengane yakho. Ngale ndlela, bangabheka inkinga ngezindlela ezahlukene, baqinisekise ukuthi ingane yakho ithola umphumela ongcono kakhulu.
Ochwepheshe abangaba seqenjini lezokwelapha lengane yakho
Kuye ngezitho zomzimba ezithintwe yisimo sengane yakho 'se-PROS', kungadingeka ukuthi ubonane nochwepheshe abahlukene. Ake sibheke ukuthi bangobani nokuthi bangasiza kanjani kuthebula elingezansi.
| Udokotela ochwepheshe | Ngingasiza kanjani? |
|---|
| Udokotela wezinzwa | Zibaluleke kakhulu uma kukhona umthelela ebuchosheni bengane, emgogodleni, noma ohlelweni lwezinzwa. Zelapha izinto ezifana nesifo sokuwa, izinkinga zezinzwa, kanye nobunzima bokunyakaza. |
| Udokotela wenhliziyo | Uma i-PROS ithinta imithambo yegazi yengane, kudingeka usizo lukadokotela wenhliziyo. Bangakwazi ukubhekana nalezi zimo ngemithi, ukuhlinzwa, noma ezinye izindlela zokwelapha. |
| Udokotela Wezinzwa | Izinkinga zezinso zivame kakhulu kuma-PROS. Azosebenza ukulawula umfutho wegazi ophakeme, aqaphe ukusebenza kwezinso, futhi adlulisele i-dialysis noma ukufakelwa izinso uma kudingeka. |
| Udokotela Wamathambo | Belapha izimo ezifana ne-scoliosis, ubude obungavamile bomlenze, kanye neminwe emide ngokungavamile uma ingane ikhula ngokweqile ohlelweni lwayo lwamathambo. |
| Udokotela wamehlo | Ukukhubazeka kokubona kungenzeka ngenxa yokukhula ngokweqile kwezicubu ebuchosheni noma eduze kwamehlo. Udokotela wamehlo uzohlonza lezi zinto futhi anikeze ukwelashwa okudingekayo. |
| Uchwepheshe Wezindlebe, Impumulo Nomphimbo (Udokotela We-ENT) | Uma kukhona ukukhula okukhulu kwezicubu ebusweni noma entanyeni, noma uma kunzima ukugwinya, usizo lukadokotela we-ENT lubalulekile. |
| Udokotela Wesikhumba | Kwezinye izimo ze-PROS, njenge-CLOVES syndrome, izindawo zesikhumba ziyakhula ngokweqile. Lezi zingaba phuzi, zibomvu, zibukhali, noma zibushelelezi. Lezi zinkinga zesikhumba ziphathwa udokotela wesikhumba. |
| Udokotela Ohlinzayo Ochwepheshe | Ngezinye izikhathi ukuhlinzwa kuyisisombululo esingcono kakhulu. Kungaba udokotela wezinzwa owelapha ukuxhuzula, noma udokotela wesifuba osusa izicubu ezinamafutha esifubeni. |
| Abanye Ochwepheshe Bezokwelapha | Uma ubuchopho buthintekile, ingane ingase ibe nobunzima bokufunda, ukuziphatha, ukukhuluma, noma ukunyakaza. Abelaphi bengqondo , abelaphi benkulumo , kanye nabelaphi bezomzimba bangasiza ingane ukuba inqobe lezi zinselele. |
| Ochwepheshe bezakhi zofuzo kanye nomdlavuza | I-PROS ngezinye izikhathi ingabangela ukwanda okuncane kwengozi yomdlavuza ngoba amangqamuzana ahlukana ngokushesha. Ochwepheshe bezakhi zofuzo basiza ithimba lezokwelapha ukuqonda le ngozi. Bahlala beqaphela impilo yengane. |
Ingabe bonke laba bantu badinga ukuhlangana njalo?
Kuncike esimweni sengane yakho. Kubalulekile ukuhlala uxhumene naleli thimba lochwepheshe kuze kube yilapho ingane yakho ifinyelela ekuthombeni.
Ukuhlolwa njalo kungasiza ekutholeni izinkinga ezingase zivele ngenxa yokukhula ngokweqile kwezicubu. Buza udokotela wakho ngokucacile ukuthi yimuphi udokotela okufanele umvakashele, kangaki, nokuthi yimiphi imigomo yalokho kuvakasha.
Ubathola kanjani laba odokotela abangochwepheshe?
Indlela engcono kakhulu yokwenza lokhu
ukukhuluma nodokotela ojwayelekile wengane yakho . Angakudlulisela kochwepheshe abafanele. Ngaphezu kwalokho, kukhona ochwepheshe abanjalo ezibhedlela ezinkulu eSri Lanka, ikakhulukazi ezibhedlela zezingane.
Khumbula, uma usheshe uxhumane naleli thimba lochwepheshe, kuzoba ngcono ngekusasa lomntwana.
Lolu hambo lungaba yinselele, kodwa ngokusekelwa yithimba lezokwelapha elifanele, unganikeza ingane yakho ukwelashwa nokunakekelwa okungcono kakhulu, uyisize iphile impilo evamile ngangokunokwenzeka.
Umlayezo Wokuya Nawe Ekhaya
- `I-PROS` yisimo esiyinkimbinkimbi sezakhi zofuzo esibangela ukuba izingxenye zomzimba zikhule ngokweqile. Ngakho-ke ungesabi, thola ulwazi olufanele.
- Lokhu kwelashwa yithimba lodokotela abangochwepheshe . Akudingeki ubhekane nalokhu wedwa.
- Imizwa , inhliziyo,Ingane ingadinga usizo lochwepheshe emikhakheni eyahlukene njengezinso , amathambo , kanye nezifo zesikhumba .
- Khuluma nodokotela womndeni wakho bese ucela izinkomba zodokotela abafanele ngokushesha okukhulu. Uma ukwelashwa kuqala ngokushesha, imiphumela iba ngcono.
- Hlala uxhumana nethimba lezokwelapha njalo futhi uqaphe isimo sengane yakho. Ungesabi ukubuza imibuzo uma unayo.
Isifo se-PROS, i-PIK3CA, intuthuko yengane, odokotela abangochwepheshe, odokotela bezingane, ukukhula komzimba ngokweqile, izifo zofuzo
💬 Comments (0)
Awekho amazwana athunyelwe okwamanje. Faka amazwana akho lapha okokuqala ngqa.
Engeza amazwana akho