He uaua ki a koe te whakatika ake i te tūru i ētahi wā? He ngoikore ō waewae ina piki koe i ngā arawhata? He rite rānei ki te kore he kaha i roto i tō ringa ina hiki koe i tētahi mea? Ahakoa e whakaaro ana tātou he mea noa ēnei e puta mai ana i te ngenge, i ētahi wā he mate kei muri i tēnei kāore anō kia rangona whānuitia. I tēnei rā kei te kōrero tātou mō tētahi mate onge, engari he mea tika kia mōhio tātou. Ko te Polymyositis tēnā.
He aha te Polymyositis?
He tino onge te mate polymyositis. He mate pūnaha ārai mate tēnei. Whakaarohia pēnei: he rite tō tātou pūnaha ārai mate ki tētahi ope taua e tiaki ana i tētahi whenua. Ko te mahi a taua ope taua he tiaki i ō tātou tinana mā te whawhai ki ngā iroriki me ngā huaketo e puta mai ana i waho. Engari i roto i te Polymyositis, ka hē te haere o tēnei ope taua, ka tīmata ki te whakaeke i ō tātou ake uaua hauora, kaua ki ngā hoariri o waho.
Ki te kī ngāwari, kei te whakaeke mai ō tātou ake parepare i a tātou . Ko te Myositis tēnei, ko tōna tikanga he mumura , he pupuhi rānei o ngā uaua. I roto i te Polymyositis , ko te tikanga o te kupu "Poly" he "maha". Ko te tikanga tēnei i roto i tēnei āhuatanga, ka pāngia pea ngā uaua i roto i ētahi wāhanga o te tinana i te wā kotahi.
He maha ngā wā ka pā tēnei ki ngā uaua e tata ana ki waenganui o tō tātou tinana. Hei tauira:
- Ngā ringaringa (ina koa ko ngā pakihiwi me ngā ringaringa)
- Ngā hope me ngā huha
- Uma me te tuara
- Ngā uaua kaki
Kāore anō kia kitea te tino pūtake o tēnei mate. Kāore anō hoki he rongoā mōna. Kaua e manukanuka. Mā te maimoatanga me te whakahaere tika, he tokomaha kua taea te whakahaere i ēnei tohumate me te noho noa i te ao.
He aha ngā tohu o tēnei mate?
Ka rerekē pea ngā tohu o te polymyositis i ia tangata, i ia tangata. Heoi anō, kei reira ētahi tohu noa me ngā uauatanga e pā mai ana i roto i te oranga o ia rā. Me titiro tātou ki ēnei i roto i tētahi ripanga.
| Tohu | He whakamārama ngāwari noa iho |
|---|---|
| ngoikore o te uaua | Koinei te tohu matua. Ka ngoikore ngā uaua, inā koa i ngā pakihiwi, i ngā hope, me ngā huha. Ka uaua te whakatika ake i te tūru, te piki arawhata, me te hiki i ngā taumaha. |
| Te mamae me te pakari o te uaua | Ka mamae ngā uaua, ka pāngia tonutia te mamae ahakoa ka pāngia. Tērā pea ka mārō koe, ina koa ka ara ake koe i te ata. |
| Te uaua ki te horomi (Dysphagia) | Ka ngoikore ngā uaua o te korokoro ka uaua te horomi i te kai me te inu, ā, ka rite koe ki te mea kei te kōroke koe. |
| Te uaua ki te manawa (Dyspnea) | Ki te ngoikore ngā uaua o te uma, ka uaua te manawa, ā, ka rite ki te hau e pupuhi ana. |
| Te uaua ki te kōrero | Ki te pāngia ngā uaua o te korokoro me te kaki, ka rerekē pea tō reo, ā, ka uaua pea ki te kōrero mārama. |
| Ētahi atu āhuatanga | Tērā pea ka pāngia hoki koe e te ngenge roa, te mamae o ngā hononga, te ngoikore, te hekenga o te taumaha, me te kirika. |
Ko te mea nui , ki te mea he uaua ki a koe te manawa , te horomi rānei i te kai, i te inu rānei , he āhuatanga ohorere tēnā. Mēnā he pēnei te āhua, me haere tonu koe ki te rūma ohorere (ETU) o te hōhipera.
He aha ngā take me ngā āhuatanga mōrearea e pā ana ki te whakawhanaketanga o te polymyositis?
E ai ki tā tātou i kōrero ai i mua, kāore anō kia kitea he tino take mō tēnei. Heoi anō, tera pea ētahi mea ka whakanui ake i te tūponotanga o tēnei āhuatanga.
Ngā take pea
- Ētahi atu mate pūnaha ārai mate: Mena kei a koe tētahi atu mate pūnaha ārai mate pēnei i te `(Lupus)`, `(Rheumatoid arthritis )`, `(Scleroderma)`, he nui ake tō tūponotanga ki te whakawhanake i te Polymyositis.
- Ngā mate huaketo: I ētahi wā, ko ngā mate huaketo pēnei i te `(COVID-19)`, te `(Influenza)` (rewharewha), te makariri noa, me te `(HIV)` ka puta ai tēnei mate.
Ko wai kei te mōrearea nui ake?
- Mō ngā wāhine: E rua ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e tēnei mate i ngā tāne.
- Mō te hunga i waenga i te 30-60 tau te pakeke: Ahakoa ka taea te whakawhanake i ngā tau katoa, ko te nuinga o te wā ka kitea te mate i tēnei rōpū tau.
- Mō te hunga whai mate pūnaha ārai mate.
Me pēhea e kitea ai tēnei e koe, e Tākuta?
Ina kite koe i tētahi tākuta me ngā tohu i whakahuatia ake nei e koe, ka pātai atu ia ki a koe mō ō tohu i te tuatahi. Kātahi ka tirotirohia e ia ō uaua. Hei tāpiri, ka whakahaua e ia ētahi whakamātautau hei tātaritanga tika i te mate.
| Whakamātautau | He aha tāu e kite nei i roto i tēnei? |
|---|---|
| Ngā Whakamātautau Toto | Ka tirohia e tēnei whakamātautau ētahi whākōkī ka tukuna ki roto i te toto ina pakaru ngā uaua me ngā momo paturopi ka hangaia hei patu i ō tātou ake tinana. |
| Matawai MRI | Mā tēnei ka mārama te kite i ngā mea pēnei i te pupuhi me te mumura i roto i ngā uaua. |
| Whakamātautau EMG (Electromyography) | Ka tirohia te ngohe hiko o ngā uaua. Ka taea e tēnei te kite i ngā hapa o te mahi a ngā uaua. |
| Te Kohikohi Uaua | Ko te tikanga o tēnei ko te tango i tētahi wāhanga iti rawa o te uaua e pāngia ana, ka tirotirohia i raro i te karuārai. Mā tēnei ka āwhina ki te whakatau tika i te kino kua pā ki te uaua. |
Me pēhea te rongoā?
E ai ki tā mātou i kōrero ai i mua ake nei, kāore he rongoā mō tēnei mate. Heoi, ko te whāinga o te maimoatanga he whakahaere i te mumura o ngā uaua, he whakaiti i ngā tohu, me te āwhina i a koe kia mahi i te āhua noa. He tokomaha te hunga ka hoki ki te marino mā te maimoatanga.
He maha ngā tikanga maimoatanga matua:
- Corticosteroids: He momo rongoā kaha ēnei hei whakaiti i te mumura. Koinei te maimoatanga tuatahi hei tīmata.
- Ngā rongoā ārai mate: Ka mahi ēnei rongoā mā te whakaiti paku i te mahi a tō tātou pūnaha ārai mate, ka whakaiti i te kino ki ō tātou ake kiko.
- Immunoglobulin intravenous (IVIG): He momo maimoatanga rerekē tēnei. Ko te tikanga he hoatu i ngā paturopi mai i te hunga hauora mā te wai tote ki tō tinana. He rite ki te hoatu i tētahi atu mea ki tō pūnaha ārai mate hei arotahi māu. Ka whakaitihia te maha o ngā whakaekenga o ō uaua.
- Whakaora Tinana: He mea tino nui tēnei. Mā te kaiwhakaora tinana koe e ako ki ngā mahi whakakori tinana hei whakapakari i ō uaua, hei pupuri hoki i a rātou kia ngāwari. Ka āwhina tēnei ki te ārai i te ngoikore haere o ō uaua.
Āhea ahau me toro atu ki te tākuta?
He mea tino nui kia tere te rapu tohutohu hauora i roto i tēnei āhua hauora.
- Ki te pāngia koe e te ngoikore o ngā uaua hou, e te mamae rānei, ina koa kāore e memeha i roto i ngā rā torutoru, me toro atu ki te tākuta tonu .
- Mena kei te whiwhi maimoatanga koe, ā, kei te kino haere ō tohumate, kei te whakaaro rānei koe kāore te rongoā e mahi ana, kōrero ki tō tākuta .
| Haere tonu ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera! | |
|---|---|
| Mena he uaua ki a koe te manawa , he rite rānei ki te mea kei te whakamomori koe. | |
| Mena he uaua ki a koe te horomi i te kai, i te inu rānei , ki te mea rānei kei te kōroiroi tonu koe. | |
| Ki te kore e taea te neke i tētahi wāhanga o te tinana e taea ana te neke i te nuinga o te wā . | |
He mate tuku iho tēnei?
Kua whakaatuhia e ētahi rangahau he hononga ira kei waenganui i tēnei mate. Ko te tikanga, ki te pāngia tētahi o te whānau e tēnei mate, he iti noa te tūponotanga ka pāngia ētahi atu. Engari kāore anō kia whakamātauhia 100% tēnei mate. Nō reira, ahakoa kei a koe tēnei mate, kāore koe e manukanuka kei pāngia āu tamariki.
He mate mō te wā roa te polymyositis, me whakahaere. Engari kāore e tika kia aukati i a koe i te ora. Mā te maimoatanga hauora tika, te whakaora tinana, me ngā huringa momo noho, ka taea e te nuinga o te tangata te whakahaere i ō rātou tohu me te noho harikoa. Ko te mea nui ko te aro ki ngā huringa o tō tinana me te rapu tohutohu hauora i te wā tika.
Karere Tangohia ki te Kāinga
- He mate onge te polymyositis e whakaekea ai e tō tātou ake pūnaha ārai mate ō tātou uaua.
- Ko te ngoikore o te uaua, te mamae, te uaua ki te horomi me te manawa ngā tohu matua.
- Ahakoa kāore he rongoā katoa mō tēnei, ka taea te whakahaere pai i ngā tohu mā te rongoā me te whakaora tinana.
- Ki te uaua koe ki te manawa, ki te horomi rānei, whakaarohia he āhuatanga ohorere tēnei, ā, haere tonu ki te Tari Ohorere (ETU) o te hōhipera.
- Mena he āwangawanga āu mō ō tohumate, mō te maimoatanga rānei, kōrero noa ki tō tākuta.
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