Kāore koe i te ngenge pērā i mua, ina hikoi paku koe, ina piki koe i te arawhata? Kei te pōturi noa iho tō manawa? Tērā pea kei te whakaaro koe, 'Koinei te mea ka tupu ina kaumātuatia koe.' Engari ehara i te mea he noa ngā maremare katoa, ehara i te mea he maremare katoa. I tēnei rā kei te kōrero tātou mō tētahi mate ka puta ai ēnei tohu, he ahua kino, engari he mea tino nui kia mōhiotia. Koia te Pulmonary Fibrosis .
He aha rawa te Pūkahukahu Pūkahukahu (PF)?
He whakarāpopototanga noa iho, koinei te wā e mārō haere ai ngā kiko ngawari o roto i ō pūkahukahu, ka hanga he koha. Pērā i te koha e puta ana i runga i tō tātou kiri ina motuhia tātou, ka puta he mea rite i roto i ō tātou pūkahukahu. Nā tēnei koha ka ngaro te ngāwari o ngā pūkahukahu, ā, kāore e taea te pupuhi, te whakaheke rānei i te kiko.
Ina manawa tātou, ka mimiti te hāora ki roto i ngā pēke hau ririki (alveoli) i roto i ngā pukahukahu. Ina mārō te kiko e karapoti ana i ēnei pēke hau, kāore te hāora e mimiti tika ki roto i te toto. Nā tēnei ka uaua ai tā tātou manawa tika, ā, ka poto te manawa. He mate tēnei e ahu whakamua ana, ā, ka kino haere i te roanga o te wā.
He aha te mate pukupuku pūkahukahu idiopathic (PF)?
I ētahi wā, kāore e kitea e ngā tākuta tētahi take motuhake mō te whakapakeketanga me te whakakorikori o ngā pukahukahu. Koinei te mea e kiia nei e mātou ko te Idiopathic Pulmonary Fibrosis . Ko te tikanga o te kupu "idiopathic" ko 'kāore i te mōhiotia te take.' Inaa, ko te nuinga o ngā tūroro Pulmonary Fibrosis he momo idiopathic tēnei.
He aha ngā tohu o tēnei mate? Me pēhea te mōhio ki tēnei?
Kāore pea ēnei tohu e kitea i te tīmatanga, engari ka piki haere tonu i te roanga o te wā. Tērā pea ka whakaaro koe he huringa noa iho ēnei e puta mai ana i te kaumātuatanga. Engari he mea nui kia aro atu ki ēnei tohu.
| Tohu | Whakaahuatanga |
|---|---|
| Te poto o te manawa | Tērā pea ka pōrearea koe i te manawa, inā koa i te hikoi, i te mahi rānei i ngā mahi māmā pēnei i te piki arawhata. I te haere whakamua o te mate, tērā pea ka uaua ki a koe te manawa ahakoa kei te tū tonu koe. |
| Maremare maroke tonu | Ka puta te maremare roa, whakarihariha, maroke, me te kore he huware. |
| Ngenge | Ahakoa kāore koe e mahi i tētahi mahi, ka ngenge tonu koe, ka ngenge rawa hoki. |
| Te whakahekenga taumaha ohorere | Ka whakaitihia tō taumaha me te kore e ngana, ahakoa kāore he take e kitea ana. |
| Ngā maihao e takoto ana i te karapu | Ka porotaka ngā pito o ngā maihao me ngā matimati, ā, ka pupuhi te kiri huri noa i ngā maikuku. |
| Kiri kikorangi/hina (Cyanosis) | I te hekenga o te taumata hāora i roto i te toto, ka huri ngā ngutu, te taha o ngā kanohi, ngā maikuku rānei ki te kikorangi, ki te hina, ki te mā rānei. |
He aha i puta ai tēnei momo mate? He aha ngā take?
E whakapono ana ngā tākuta ko ēnei koha i puta mai i te kino, i te mumura rānei o ngā pukahukahu kāore e ora tika ana. He maha ngā take pea.
| Take | Ngā tauira me ngā whakamārama |
|---|---|
| Te mate hononga o te kiko | Ka pāngia hoki ngā pukahukahu e ngā mate pēnei i te Rheumatoid Arthritis (RA ), te Lupus , me te Scleroderma . |
| Te pānga ki ngā mea o te taiao | Te pānga roa ki ngā puehu pērā i te asbestos me te silica. Tērā pea ka puta mai i te mate pāwera ( Hypersensitivity Pneumonitis ) ki ētahi momo harore, huakita, paru manu, huruhuru rānei. |
| Ko ētahi rongoā me ngā maimoatanga | Ka taea hoki e ētahi rongoā pēnei i te Amiodarone , e whakamahia ana mō te mate manawa, te Nitrofurantoin , e whakamahia ana mō ngā mate pāwera, te Methotrexate , e whakamahia ana mō te mate pukupuku, me te rongoā irahiko te kino i ngā pukahukahu. |
| Te momi hikareti | He tino take mōrearea te kai paipa ki te whakawhanake i tēnei mate. |
Ko wai kei te nui ake te mōrearea ki te whakawhanake i tēnei mate?
Hei tāpiri atu ki ngā take o runga ake nei, tera atu anō ngā āhuatanga ka whakanui ake i te tūponotanga o te whakawhanaketanga o tēnei mate:
- Neke atu i te 65 tau te pakeke.
- Te noho tāne.
- He mema tata o te whānau (ngā mātua, ngā tuākana, teina rānei) kei te pāngia e tēnei mate.
- Te pāngia e ētahi mate i puta mai i ngā huringa ira ( DNA ).
He aha ngā raruraru ka pā mai i te Pulmonary Fibrosis?
Ina kore e mahi tika ngā pukahukahu, ka pā ki te tinana katoa. Ko te ngākau te mea nui kia kaha ake te mahi. Ka taea e tēnei te arahi ki ngā raruraru maha.
Ko te mea nui ko te tautuhi wawe i te mate, me te tīmata i te maimoatanga. Mā tēnei ka whakaiti i te mōrearea o ēnei raruraru.
- Te korenga o te hāora e hiahiatia ana: Kāore ngā kiko o te tinana e whiwhi i te nui o te hāora e hiahiatia ana.
- Te toto toto tiketike o te pūkahukahu : Ka piki ake te pēhanga i roto i ngā uaua toto e kawe ana i te toto ki ngā pūkahukahu. Ka taumaha te taumahatanga o tēnei ki te ngākau.
- Ngā mate pūkahukahu me te hinga o te pūkahukahu.
- Pūnaha manawaTe ngoikore o te manawa: Kāore e taea e ngā pukahukahu te whakarato i te hāora e hiahiatia ana e te tinana.
- Te ngoikore o te ngākau: Ka puta te ngoikore o te ngākau ina akiakihia te ngākau kia mahi kaha rawa mō te wā roa.
Me pēhea te tautuhi tika i te mate? (Tauātanga)
Ehara tēnei i te mate ka taea te tautuhi mā te whakamātautau kotahi. Ka whakarongo pai tō tākuta ki ō tohumate, ka whakarongo ki tō uma mā te whakamahi i te stethoscope, kātahi ka tūtohu kia maha ngā whakamātautau.
Ko ngā whakamātautau matua i mahia ko:
- X-ray o te uma: He whakamātautau x-ray o te uma.
- Matawai CT teitei-taumira (HRCT): He matawai motuhake tēnei e whakaatu ana i ngā taipitopito pai ake o ngā pukahukahu i te matawai CT noa.
- Ngā whakamātautau mahi a te pūkahukahu: Kei roto i tēnei ko te pupuhi i roto i tētahi mīhini, e ine ana i te nui o te hau ka taea e ō pūkahukahu te mimiti me te tere o tō manawa ki waho.
- Ngā whakamātautau toto: Ka mahia ngā whakamātautau toto hei tirotiro i ngā mea pēnei i te taumata hāora i roto i te toto.
- Pūkahukahu: He tikanga e whakaurua ai he ngongo angiangi me te kāmera mā te ihu, mā te waha rānei hei tirotiro i te roto o ngā pukahukahu.
- Kohikohi pūtau: I ētahi wā, ka tangohia he wahi kiko iti rawa mai i te pukahukahu, ka tirotirohia hei whakaū i te mate.
He aha ngā rongoā mō tēnei? Ka taea te whakaora katoa?
He pātai e pātaihia ana e te tini tāngata, mehemea rānei ka taea te whakaora katoa. Ki te pono, kāore e taea te whakakore i te whara i puta mai i tēnei mate ki ngā pukahukahu.
Kaua e manukanuka. Ka taea e te maimoatanga te whakaroa i te haere whakamua o te mate, te whakahaere i ngā tohu, me te whakapai ake i te kounga o tō oranga .
| Tikanga maimoatanga | Ka aha te mea ka tupu? |
|---|---|
| Ngā rongoā ārai-pūpū | Ka whakaroahia e ngā rongoā pēnei i a Nintedanib me Pirfenidone te tere o te puta o ngā whara i roto i ngā pukahukahu. |
| Ngā corticosteroids | Ka whakamahia ēnei i ētahi wā hei whakaiti i te mumura i roto i ngā pukahukahu. |
| Te Whakaora Hāora | Mena he iti te taumata hāora i roto i te toto, ka tukuna he hāora tāpiri mā roto i tētahi ngongo iti e whakanohoia ana ki roto i te ihu. |
| Whakaora Pūkahukahu | He kaupapa motuhake tēnei e whakapai ake ana i tō kaha me tō kounga o te oranga mā roto i ngā mahi manawa, te whakakori tinana, me te mōhio ki ngā mate. |
| Te Whakatō Pūkahukahu | Tērā pea ka āhei ētahi tūroro he tino kino te mate ki te whiwhi whakawhitinga pukahukahu mēnā ka tutuki i a rātou ngā paearu. |
Āhea koe me toro atu ki te tākuta? Āhea koe me haere ki te Tari Whawhati Tata (ETU)?
Mā te mārama ki tēnei mea ka āwhina i a koe ki te whakaora i tōu ora.
Tirohia te tākuta i ia wā, i ia wā.
Ki te pāngia koe e tētahi o ngā tohu kua whakahuatia ake nei, pērā i te poto o te manawa, te maremare tonu, te uaua rānei ki te mahi i ngā mahi māmā noa iho, kaua e warewaretia . Tirohia tō tākuta i te wā e taea ai, ka kōrero mō tēnei. Ko te wawe o te tautuhi i te mate, ko te māmā ake o te rongoā.
Ina hiahia koe ki te haere ki te ETU tonu
Mena kei a koe tētahi o ēnei tohu, kaua e moumou taima , haere tonu ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera , waea atu rānei ki te 1990.
| Āwhati! Haere ki te hōhipera tonu. | |
|---|---|
| 🚨 Te uaua nui, te uaua ohorere rānei ki te manawa | |
| 🚨 Mamae o te uma | |
| 🚨 Pōhēhē, whakarerekētanga hinengaro rānei | |
| 🚨 Te tae kikorangi o te kiri, ngutu, ngā maikuku rānei | |
He aha te āhua o te heke mai me tēnei mate?
He mea noa te mataku me te kore e tino mōhio mō te heke mai ina kitea he mate tēnei. He mea noa anō hoki te whakaaro, 'Kia pēhea te roa o taku oranga?'
Engari kia maumahara, ehara i te mea he rite tonu ngā tūroro katoa. Mō ētahi, he puhoi rawa te whanaketanga o te mate, i roto i ngā tau. Mō ētahi atu, tera pea ka tere ake te whanaketanga, i roto i ētahi marama. Kāore e taea e tetahi te kī pono.
Ko te mea nui ko te kōrero tuwhera ki tō tākuta, te whiwhi i te maimoatanga tika, me te aro atu ki tēnei me te kaha me te tautoko a tō whānau. Nā ngā maimoatanga hou kua tino whakapai ake i te roanga o te oranga me te kounga o te oranga o ngā tūroro.
Ka taea e koe te whakauru atu ki ngā rōpū tautoko hei whakapakari i a koe mai i ngā wheako o ētahi atu e ora ana me te mate.
Karere Tangohia ki te Kāinga
- Ko te Pulmonary Fibrosis he mate e pakari ai, e whara ai ngā kiko o ngā pukahukahu, ā, ka uaua ai te manawa.
- Ko te uaua ki te manawa, te maremare maroke tonu, me te ngenge nui ngā tohu matua. Kaua e warewarehia ēnei.
- Ahakoa kāore e taea te whakaora katoa i tēnei mate, mā te rongoā whai hua ka taea te whakahaere i te haere whakamua o te mate, ā, ka taea e koe te noho i te oranga pai.
- Ki te mea he kai paipa koe, he mea nui kia mutu tonu . He mea nui anō hoki kia tiakina koe i te puehu me ngā matū e kino ana ki ngā pukahukahu.
- Mena kei a koe, kei tētahi atu rānei e mōhio ana koe, rapua tonutia he tohutohu hauora . He mea nui te tātaritanga wawe mō te maimoatanga.
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