Ngaba umzimba womntwana wakho uhlala ushukuma ngendlela engaqhelekanga? Masifunde nge-Athetoid Cerebral Palsy!

Ngaba wakha wababona abantwana abancinci beshukuma kwaye bejikajika kwiintshukumo ezingalawulekiyo? Mhlawumbi nomntwana wakho unayo le ngxaki. Kuqhelekile ukuba uzive ulusizi kwaye usoyika xa ubona le meko. Namhlanje siza kuthetha ngemeko ebizwa ngokuba yi-Athetoid Cerebral Palsy, ebonisa ezi mpawu.

Yintoni le Athetoid Cerebral Palsy?

Ngamafutshane, i-Athetoid Cerebral Palsy sisifo sokuhamba apho izihlunu zomntwana zihamba ngokungazithandi (esikwabizwa ngokuba yi-dyskinesia ngoogqirha). Olu lolona hlobo lwesibini oluqhelekileyo lwe -cerebral palsy . I-cerebral palsy yimeko echaphazela ingqondo kunye nenkqubo yemithambo-luvo. Oku kubangela iingxaki ngokuhamba kunye nokulungelelanisa, njengokuhamba nokuma. I-Athetoid inokuchaphazela iintshukumo zomntwana kakhulu kunezinye iintlobo ze-cerebral palsy. Ke ngoko, kwezinye iimeko, le meko inokunciphisa ixesha lokuphila komntwana. Ugqirha wakho usenokuba uvile le meko ibizwa ngokuba yi -dyskinetic cerebral palsy .

Ixhaphake kangakanani le meko?

Ehlabathini lonke, phakathi komntwana omnye no-4 kwi-1,000 nganye kufunyaniswa ukuba une-cerebral palsy. Kulaba, malunga ne-12% ukuya kwi-14% bane-athetoid cerebral palsy. Oku kuthetha ukuba olu hlobo luchaphazela phakathi komntwana omnye no-3 kwi-10,000 one-cerebral palsy.

Zithini iimpawu zoku?

Umntwana one-Athetoid Cerebral Palsy unokufumana iintshukumo ezingalawulekiyo, ezifana nezi:

• Ukujija nokuguqula umzimba.
• Ibonisa indalo egosogoso, ejijekileyo, njengempethu.
• Ukuxhuzula ngequbuliso okanye iintshukumo zokuxhuzula .
• Ukuphinda intshukumo efanayo.

Iintshukumo ezingalawulwayo ngolu hlobo zinokubangela ezinye iingxaki:

• Intlungu yomzimba.
• Ukuma kakubi .
• Ukuvuza amathe .
• Ukungabikho kolungelelwaniso phakathi kweentshukumo.

Ziziphi iimpawu ezibonakala ebantwaneni abancinci?

Umntwana omncinci one-Athetoid Cerebral Palsy angabonakalisa ezi mpawu zilandelayo:

• Xa ulele ngomqolo , iingalo nemilenze yakho zihlala zigoba kwaye zivuleka .
• Ukulibaziseka ekwenzeni izinto ezifanelekileyo ngokweminyaka yabo (umzekelo, ukulibaziseka kweziganeko zophuhliso ezifana nokukhasa nokuhamba).
• Ukujika nokujika komzimba rhoqo, ingakumbi xa ujika intloko uyibhekise kwelinye icala. Khawuthelekelele, nokuba umntwana wakho udlala, ungaphawula ukuba intloko yakhe ijika ngequbuliso iye kwelinye icala, okanye ingalo okanye umlenze uyashukuma nje.

Zithini ezi ntshukumo zibizwa ngokuba ziintshukumo ezifana neze-athetoid?

Oogqirha bahlula ezi ntshukumo zingalawulekiyo zibe ziindlela ezahlukeneyo:

• I-Dystonia : Oku kubonakala ngokushukuma okungenanjongo. Ngamanye amaxesha, umzimba unokuziva ngathi ubambeke kwindawo enye.
• I-Chorea : Oku kufana nokudanisa, iintshukumo ezikhawulezayo neziphindaphindayo. Kufana nokuba umzimba uyashukuma nje usiya phambili nangasemva, awukwazi ukuhlala kwindawo enye.
• I-Athetosis : Oku kubonakala ngokuhamba kancinci, okufana neempethu.

Khawuthelekelele, ezi ntshukumo zifana nopopi onemitya edityanisiweyo, kwaye amalungu omntwana ashukuma ngokungacwangciswanga, kungekhona ngendlela ayifunayo. Oku kunzima kakhulu kumntwana nakubazali.

Kutheni oku kusenzeka? Zithini izizathu?

Eyona nto ibangela i-Athetoid Cerebral Palsy kukonakala kwe-basal ganglia kunye ne-thalamus, ezikwi-brain brain yomntwana . Le basal ganglia inceda ukuthumela imiyalezo esuka kwinxalenye yengqondo elawula iintshukumo zethu ukuya kwi-spinal cord. Ngoko ke xa oku konakele, kuba nzima ukulawula iintshukumo. Olu hlobo lomonakalo lunokwenzeka ngelixa umntwana esesibelekweni, ekuzalweni, okanye emva nje kokuzalwa. Oku kulandelayo kunokubangela oku:

• Ukopha ebuchosheni (i-Hemorrhage).
• Istroke .
• Ukungafumani igazi okanye ioksijini eyaneleyo engqondweni (ekwabizwa ngokuba yi-`(Perinatal Asphyxia)`).
• Ukwanda okugqithisileyo komthamo we -bilirubin egazini (oku kunokubangela iimeko ezibizwa ngokuba yi-Hyperbilirubinemia okanye i-Kernicterus).

Ngubani osengozini enkulu yokuba nale meko? (Izinto Ezinobungozi)

Kwezinye iimeko, izinto ezichaphazela umama zinokwandisa umngcipheko wokuba umntwana abe ne-cerebral palsy:

• Iingxaki ngexesha lokukhulelwa (umzekelo, ukuqhekeka kwesibeleko ).
• Ukuba sesibelekweni njengamawele, amawele amathathu ngaxeshanye.
• Unyango lokungazali.
• Ukuvezwa kwiikhemikhali ezithile (ezifana ne-methylmercury kwizilwanyana zaselwandle ).

Ukongeza, ezi zinto zilandelayo ezichaphazela umntwana zikwanyusa umngcipheko wokuba ne-Athetoid Cerebral Palsy:

• Ubunzima obuphantsi bokuzalwa.
• I-jaundice ebuhlungu kakhulu .
• Ezinye izifo (ezifana ne-cytomegalovirus - CMV).

Zeziphi ezinye iingxaki ezinokubangela oku?

I-Athetoid Cerebral Palsy inokuhambisana nezinye iingxaki zempilo. Ezinye zazo zezi:

• Iingxaki zophuhliso lwengqondo (ezikwabizwa ngokuba "yi-Intellectual Disability" ngoogqirha).
• Isifo sokuwa.
• Ubunzima bokuthetha nokusebenzisa ulwimi.
• Ukuphazamiseka kokuva okanye ukubona.
• Iingxaki ze-Orthopedic ziimeko ezichaphazela amathambo okanye inkqubo ye-musculoskeletal.
• Iingxaki zokulala.
• Iingxaki zempilo yengqondo, umzekelo, ukudakumba.
• Ukungabi nobunzima obufanele ubudala nobude.
• Ukufunxa ukutya okanye ulwelo kwimibhobho yomoya kunokubangela ukungasebenzi kakuhle kokuphefumla.

Kubalulekile ukukhumbula ukuba ezinye zezi ngxaki zinokuba yingozi ebomini.

Oogqirha bayixilonga njani le nto?

I-Cerebral Palsy idla ngokuchongwa ngugqirha xa umntwana esemncinci. Ngenxa yesi sizathu, umntwana uyahlolwa kwaye kwenziwa iimvavanyo ezahlukeneyo. Ugqirha uya kukubuza (umgcini womntwana) ngeempawu kunye neempawu ezibonakaliswa ngumntwana. Uya kujonga nokuba umntwana uyakhula kwaye wenza izinto ngokweminyaka yakhe (`Iimpawu zoPhuhliso`). Ngexesha lovavanyo lomzimba, izakhono zomntwana zokunyakaza kunye nokulungelelaniswa komzimba nazo ziyajongwa.

Luhlobo luni lovavanyo olwenzayo?

• Uvavanyo lwemifanekiso yobuchopho: Uvavanyo olufana no-`(Magnetic Resonance Imaging - MRI)` lunokufumanisa iindawo zomonakalo wobuchopho.
• Uvavanyo lwegazi: Olu vavanyo lusetyenziselwa ukuthintela ezinye iimeko ezinokubangela iimpawu ezifanayo.

Indlela yokunyanga? (Unyango)

Eyona nto iphambili kunyango lwe-Athetoid Cerebral Palsy kukunciphisa iimpawu zomntwana, ukwenza ubomi bemihla ngemihla bube lula, kunye nokuphucula umgangatho wobomi bomntwana . Kukho iindlela ezahlukeneyo zonyango zoku:

• Unyango Lomzimba, Unyango Lomsebenzi, kunye Nonyango Lokuthetha . Ezi zinto zinceda ekuphuculeni intshukumo yomntwana, amandla okwenza imisebenzi yemihla ngemihla, kunye nokuthetha.
• Izixhobo zokuncedisa ezifana neentonga, izixhobo zokuxhasa imilenze (`iibrace`) okanye izitulo ezinamavili (`izitulo ezinamavili`).
• Ukwenza utshintsho kwindlela yokutya ukuqinisekisa ukuba umntwana ufumana isondlo esifanelekileyo asidingayo.
• Ukusetyenziswa kwamayeza .
• Iinaliti zeBotulinum Toxin.
• Indlela yonyango ebizwa ngokuba yiDeep Brain Stimulation (DBS).
• Indlela ebizwa ngokuba yi-Intrathecal Baclofen Therapy (IBT).
• Kwezinye iimeko, utyando lusenokufuneka.

Ugqirha uza kukuchazela ukuba zeziphi iindlela zonyango ezilungele umntwana wakho, ukuze ukwazi ukwenza izigqibo ezinolwazi malunga nempilo yomntwana wakho. Ekubeni kungekho nyango lwale meko, kuya kufuneka ilawulwe ubomi bonke.

Luhlobo luni lwamayeza asetyenziswayo?

Amanye amayeza asetyenziswa kakhulu kwi-Athetoid Cerebral Palsy ngala:

• I-Baclofen `(Baclofen)`
• I-Trihexyphenidyl `(Trihexyphenidyl)`
• I-Levodopa
• I-Diazepam `(Diazepam)`
• I-Tetrabenazine `(Tetrabenazine)`
• I-Carbamazepine

Ngaba kukho naziphi na iziphumo ebezingalindelekanga zonyango?

Njengazo zonke iindlela zonyango, ezi ndlela zonyango zinokubangela ezinye iziphumo ebezingalindelekanga. Ugqirha womntwana wakho uza kukuchazela ezi ziphumo bezingalindelekanga ngaphambi kokuba unyango luqale. Iziphumo ebezingalindelekanga eziqhelekileyo ziquka:

• Iimpawu ziya zisiba mandundu.
• Ukozela.
• Intloko ebuhlungu.
• Ubuthathaka bemisipha.
• Isicaphucaphu.

Buza kuba njani ubomi xa umntwana enale meko?

Akukho nyango lwe-athetoid cerebral palsy. Oku kuthetha ukuba yimeko yobomi bonke. Nangona kunjalo, ayibi mbi njengoko umntwana ekhula (engaqhubekiyo). Idla ngokuchaphazeleka kakhulu ziintshukumo ezingalawulekiyo kunezinye iintlobo ze-cerebral palsy. Oku kunokwenza kube nzima kumntwana ukwenza imisebenzi yemihla ngemihla, efana nokukama iinwele zakhe nokunxiba. Kunokuba nzima nokuhambahamba ngaphandle kwesixhobo sokuncedisa esifana nesitulo esinamavili. Nangona kunjalo, unyango lunokunceda ukulawula iimpawu zomntwana kwaye lubancede baphile kamnandi. Abantwana abanale meko banokunciphisa ubunzima. Oku kungenxa yokuba ezi ntshukumo zingalawulekiyo zisebenzisa amandla amaninzi kunalawo bawafumana ekutyeni abakutyayo. Ke ngoko, ugqirha uya kujonga rhoqo ubunzima bomntwana kunye nemikhwa yokutya ukuqinisekisa ukuba ufumana isondlo esifanelekileyo.

Ungathini ngolindelo lobomi? (Ulindelo lobomi)

Ixesha lokuphila komntwana liyahluka ngokuxhomekeke kubukhali bemeko . Ayingabo bonke abantwana abachaphazeleka ngendlela efanayo. Ukuba iimpawu kunye neengxaki zinzima kakhulu, ixesha lokuphila linokuncipha. Xa kuthelekiswa nezinye iintlobo ze-cerebral palsy, ixesha lokuphila kwabantu abane-athetoid cerebral palsy lidla ngokuba lifutshane kancinci.

Ngaba ikho indlela yokuthintela oku? (Ukuthintela)

Akukho ndlela yokuthintela zonke iimeko ze-Athetoid Cerebral Palsy. Nangona kunjalo, ungathatha amanyathelo okhuseleko ngexesha lokukhulelwa.Ngokuya rhoqo kwiimvavanyo, unokunciphisa umngcipheko wokuba umntwana wakho abe ne-cerebral palsy. Ugqirha wakho uza kukunika iingcebiso ozidingayo ukuze uhlale usempilweni kwaye ukhuselekile kuwe nakumntwana wakho.

Ngawaphi amaxesha afanelekileyo okubonana nogqirha?

Ukuba umntwana wakho ubonisa iimpawu ze-athetoid cerebral palsy, njengokulibaziseka ekwenzeni izinto ngokweminyaka yakhe okanye iintshukumo zomzimba ezingaqhelekanga, bona ugqirha ngoko nangoko . Ukuba umntwana osele ene-cerebral palsy uba neempawu ezintsha, ukuba iimpawu ezikhoyo ziya zisiba mandundu, okanye ukuba iziphumo ebezingalindelekanga zivela kunyango, xelela ugqirha wakho ngoko nangoko.

Yeyiphi imibuzo ebalulekileyo ekufuneka uyibuze ugqirha?

Kuqhelekile ukuba nemibuzo xa ufunda ngemeko yomntwana wakho. Musa ukuthandabuza ukubuza ugqirha imibuzo efana nale:

• Zeziphi iindlela zonyango ozicebisayo kumntwana wam?
• Ngaba kukho naziphi na iziphumo ebezingalindelekanga kwezo ndlela zonyango?
• Ngaba kufuneka ndenze utshintsho kwindlela yokutya ukuze ndiqinisekise ukuba umntwana wam ufumana isondlo esifanelekileyo asidingayo?
• Zinzima kangakanani iimpawu zomntwana wam?
• Ziziphi iingxaki ekufuneka ndiziqaphele ngokukodwa?
• Zeziphi izixhobo zokuncedisa umntwana wam?

Kunokuba nzima ukwazi ukuba umntwana wakho unesifo esingapheliyo ubomi bakhe bonke esingenanyango. I-Athetoid Cerebral Palsy ingenza umntwana azive ngathi yintlanzi ephuma emanzini . Ngenxa yokuba ingqondo yakhe ayikwazi ukuthumela imiyalezo kwiindawo zomzimba wakhe ezilawula intshukumo ngokufanelekileyo, inokubhityabhitya kwaye ibhityaniswe ngokungalawulekiyo. Olu hlobo lwe-Cerebral Palsy lunokwenza kube nzima kumntwana wakho ukwenza imisebenzi yemihla ngemihla nokuhambahamba kwihlabathi ngaphandle kwesitulo esinamavili. Kodwa khumbula, awuwedwa. Ngenkxaso yeqela lezonyango lomntwana wakho, unokunceda umntwana wakho ukuba alawule iimpawu zakhe aze ahlale esempilweni.

Ngamafutshane, khumbula (Umyalezo Wokuya Ekhaya)

I-Athetoid Cerebral Palsy yimeko enokuba nefuthe elikhulu kubomi bomntwana. Nangona kunjalo, ngokuqonda okufanelekileyo, unyango olufike ngexesha, kunye nenkathalo yothando, umntwana wakho unokuncedwa ukuba aphile ubomi obuqhelekileyo kangangoko kunokwenzeka. Ukuba umntwana wakho unezinye zezi mpawu, ungathandabuzi ukufuna ingcebiso kagqirha. Khumbula, wonke umntwana uxabisekile, kwaye wonke umntwana unelungelo lokonwaba. I-Athetoid Cerebral Palsy, I-Cerebral Palsy, I-Cerebral Palsy, Iingxaki zoBuchopho, Izifo zabantwana, Iingxaki zokunyakaza, Izifo ze-Neurological