Ngaba wakha waziva ngathi izandla zakho neminwe yakho ziyaphelelwa ngamandla kancinci kancinci? Mhlawumbi nemisebenzi elula efana nokubamba ikomityi okanye ukucinezela iqhosha iye yaba nzima? Ngaba nawe ufumana ukushukuma nokushukuma kwemisipha? Ezi ayizozinto nje eziqhelekileyo, zinokuba ziimpawu zemeko ekhethekileyo yemithambo-luvo ebizwa ngokuba yi-'multifocal motor neuropathy ' esiza kuthetha ngayo namhlanje. Ungakhathazeki, siza kuthetha ngayo yonke into ngokulula.
Yintoni i-multifocal motor neuropathy (MMN)?
Ngamafutshane, iMultifocal Motor Neuropathy (MMN) yimeko engaqhelekanga kakhulu. Yenzeka xa imithambo-luvo elawula ukusebenza kwemisipha emzimbeni wethu (imithambo-luvo yemoto) yonakele. Oku kubangela ukuba imisipha ibe buthathaka kancinci kancinci ngokuhamba kwexesha. Olu buthathaka luchaphazela kakhulu izandla, iminwe, kunye nemilenze.
Cinga ngale ndlela: izihlunu emzimbeni wethu zifana nezixhobo zombane. Imithambo-luvo ziintambo ezibonelela ngombane kuzo. Kwi-MMN, inkqubo yethu yokuzikhusela komzimba ihlasela ezi 'ntambo'. Emva koko, izihlunu azifumani zimpawu zombane ezizifunayo, ngoko ke ziba buthathaka kancinci kancinci.
Nangona esi sisifo esingapheliyo, esihlala ixesha elide esingenakunyangwa, eyona nto ilungileyo kukuba kukho unyango olusebenzayo kakhulu kuso . Unyango lunokulawula ukuqhubela phambili kwesi sifo kwaye lubuyisele amandla emisipha.
Esi sifo sixhaphake kakhulu kubantu abaphakathi kweminyaka engama-40 ukuya kwengama-50. Nangona kunjalo, sinokukhula nakubani na ophakathi kweminyaka engama-20 ukuya kwengama-80. Esi sifo sixhaphake kancinci kumadoda kunakwabasetyhini.
Yintoni unobangela wokwenene we-MMN?
Isizathu soku asikafunyanwa. Kodwa siyazi ukuba asiyonto ezuzwa njengelifa. Oko kuthetha ukuba asiyosifo esizuzwa njengelifa .
Oku kubizwa ngokuba sisifo sokuzikhusela komzimba . Oku kuthetha ukuba inkqubo yomzimba yokuzikhusela , emele ukuba ikhusela imizimba yethu, ngempazamo iqala ukuhlasela iiseli zethu zemithambo-luvo ezisempilweni ngokungathi ziintshaba. Abaphandi basazama ukufumanisa ukuba kutheni oku kusenzeka.
Zithini iimpawu zesi sifo?
Ungaqala ukuva iimpawu ezandleni zakho nakwiminwe yakho.
- Ubuthathaka bemisipha: Amandla ayancipha, ingakumbi kwiminwe nasezihlahleni. Izinto ezinjengokuchwetheza, ukubhala ngepeni, kunye nokuqhobosha ihempe zinokuba nzima.
- Ukuqengqeleka nokutsala izihlunu (Tw)Ukurhawuzelelwa kunye nokuqaqanjelwa): Usenokuziva ushukuma kwaye uqaqanjelwa yimisipha ngendlela engalawulekiyo.
- Ubunzima kwelinye icala: Ezi mpawu zihlala zivakala kakhulu kwelinye icala lomzimba (umz., ingalo yasekunene).
- Ekuhambeni kwexesha, obu buthathaka bunokuchaphazela nemilenze.
Eyona nto ibalulekileyo kukuba akukho ntlungu okanye ukungaziva kwesi sifo. Uziva yonke into ilungile. Oku kungenxa yokuba esi sifo sichaphazela kuphela imithambo-luvo elawula intshukumo. Imithambo-luvo ayonakaliswanga.
Indlela yokubona ngokuchanekileyo esi sifo?
Iimpawu zesi sifo zifana kakhulu nezo ze -ALS (Amyotrophic Lateral Sclerosis) , isifo esiyingozi nesinganyangekiyo semithambo-luvo. Ngenxa yoko, noogqirha ngamanye amaxesha bayabhidanisa ezi zifo zimbini. Nangona kunjalo, ekubeni i-MMN yimeko enokunyangwa nelawulekayo , kubaluleke kakhulu ukuyixilonga ngokuchanekileyo le sifo .
Ukuba unale mpawu, ngokuqinisekileyo kuya kufuneka ubonane nogqirha wezifo zengqondo. Uza kukuhlola aze akubuze imibuzo malunga neempawu zakho. Emva koko, baya kuyalela uvavanyo oluthile ukuze baqinisekise ezinye iimeko kwaye baqinisekise i-MMN.
| Uvavanyo | Kalula nje... |
|---|---|
| Uphononongo lokuHanjiswa kweMithambo (i-NCS) | Oku kulinganisa isantya esihamba ngaso imiqondiso yombane kwimithambo yakho. Kufana nokulinganisa isantya esihamba ngaso umsinga ngentambo. Kwi-MMN, esi santya siyancitshiswa kwezinye imithambo. |
| I-Needle Electromyography (EMG) | Kule meko, kufakwa ii-electrode ezincinci ezineephini kwizihlunu kwaye umsebenzi wombane wezihlunu uyalinganiswa. Oku kungasetyenziselwa ukubona ukuba izihlunu zisabela ngokufanelekileyo na kwimiqondiso evela kwimithambo-luvo. |
| Uvavanyo lweGazi (Uvavanyo lweGazi lwee-antibodies ze-GM1) | Abanye abaguli be-MMN banezinga eliphezulu lee-antibodies ezibizwa ngokuba yi-GM1 egazini labo. Olu vavanyo lunokuqinisekisa oku. Nangona kunjalo, kunokwenzeka ukuba ne-MMN nokuba la manqanaba e-antibody aqhelekile. |
Iphathwa njani?
Ukuba iimpawu zakho zincinci kakhulu, usenokungadingi unyango. Nangona kunjalo, ukuba ubuthathaka bakho bukhulu kakhulu, ugqirha wakho usenokukunika unyango oluphambili.
Unyango oluphambili: IVIG
Unyango oluphambili nolusebenzayo koku yi -Intravenous Immunoglobulin (IVIG) . Eli liyeza elinikwa ngemithambo yegazi. Lisebenza ngokulawula umsebenzi wee-antibodies eziyingozi kunye nokuthintela umonakalo kwimithambo-luvo.
- Uza kuziva amandla emisipha yakho ebuya kwiiveki ezi-3-6 emva kokufumana unyango lwe-IVIG.
- Ngenxa yokuba iziphumo zolu nyango ziyancipha ngokuhamba kwexesha, kufuneka unyango oluphindaphindwayo, malunga kanye ngenyanga.
- I-IVIG ayinazo iziphumo ebezingalindelekanga ezininzi, kodwa lunyango olubiza kakhulu.
Ezinye iindlela zonyango
Ukuba unyango lwe-IVIG aluphumeleli okanye alunakunikwa, oogqirha banokucinga ngezinye iziyobisi ezifana neCyclophosphamide , kodwa zineziphumo ebezingalindelekanga ezingaphezulu.
Ukongeza kwezi, unyango lomzimba , umthambo, kunye nonyango lobushushu lunokunceda ukugcina amandla emisipha kunye nokusebenza kwayo. Thetha nogqirha wakho ngale nto uze ukhethe efanelekileyo.
Ndingenza ntoni ngelixa ndihlala ne-MMN?
I-MMN ayisosizathu sokumisa ubomi bakho. Ngolawulo olufanelekileyo, ungaphila ubomi obuhle.
- Impilo yengqondo: Uxinzelelo lunokwenzeka nakwesiphi na isifo esingapheliyo. Ngoko ke lawula uxinzelelo lwakho kwaye ucele uncedo kwingcali yezempilo yengqondo ukuba kuyimfuneko.
- Indlela yokuphila enempilo: Yitya ukutya okunesondlo kwaye ulale ngokwaneleyo.
- Ukuzilolonga: Cela ugqirha wakho okanye ingcali yezonyango ukuba akunike umthambo othambileyo ofanelekileyo kuwe.
- Cela uncedo: Ukuba unengxaki ngemisebenzi yemihla ngemihla, ungathandabuzi ukucela uncedo.
- Amaqela eNkxaso: Ukuthetha nokwabelana ngamava nabantu abajongene neemeko ezifanayo kunokuba ngumthombo omkhulu wamandla kuwe.
Esi sifo asiyi kufinyeza ubomi bakho. Ukuba isifo sifunyenwe kwangethuba kwaye sinyangwa ngokuchanekileyo,Ungasebenza, usebenze, kwaye uphile ubomi obuqhelekileyo kangangeminyaka.
Umyalezo Wokuya Ekhaya
- I-Multifocal Motor Neuropathy (MMN) yi-autoimmune neuropathy engaqhelekanga, kodwa enokunyangeka.
- Uphawu oluphambili kubuthathaka bemisipha kancinci kancinci kwiingalo nasemilenzeni. Akukho ntlungu okanye ukuba ndindisholo.
- Kubalulekile ukwahlula oku kwezinye izifo ezinzulu ezifana ne-ALS. Ukuze oku kwenzeke, kufuneka ubonane nogqirha wezifo zengqondo.
- I-IVIG lunyango olusebenzayo kakhulu olunokubuyisela amandla ezihlunu.
- Esi sifo asinciphisi ixesha lokuphila, kwaye ngokuphathwa ngendlela efanelekileyo, ungaphila ubomi obusebenzayo.
- Ukuba unale mpawu, musa ukuchitha ixesha kwaye udibane nogqirha wakho (ugqirha) ukuze akunike icebiso.
💬 Comments (0)
Akukho zimvo zithunyelweyo okwangoku. Faka uluvo lwakho apha okokuqala.
Faka uluvo lwakho