Intlungu yingxaki ehlala ihleli kumntu ophila neSickle Cell Disease ( SCD ). Ngamafutshane, iiseli ezibomvu zegazi egazini lakho ziyatshintsha ukusuka ekubeni zingqukuva ukuya ekubeni zimile okwesikela. Ezi seli zimile okwesikela zinamathela kwimithambo yegazi emincinci emzimbeni wakho, zithintela ukuhamba kwegazi . Kulapho ke ngequbuliso ufumana iintlungu eziqatha. Sibiza oku ngokuthi "yingxaki yentlungu." Le ntlungu idla ngokuvela kumqolo ongezantsi, ezingalweni, emilenzeni, esifubeni, nasesiswini. Kwabanye abantu, iintlungu zinokuba zingapheliyo, okanye zibe zingapheliyo, ngenxa yezinye iingxaki zempilo ezibangelwa sisifo . Xa uphila nentlungu enje, unamathuba amaninzi okuba noxinzelelo, uxinzelelo kunye nexhala .
Kodwa nokuba uneentlungu ezinjani na, zininzi iindlela zokukunceda ufumane isiqabu. Eyona nto ibalulekileyo kukuthetha nogqirha wakho malunga nokuphuhlisa isicwangciso esilungileyo sokulawula iintlungu zakho.
Ungayiphatha njani ingxaki yentlungu?
Kwiimeko ezininzi, ungazilawula iintlungu ekhaya xa sele ziqalile. Ngokuqhelekileyo ungafumana isiqabu ngeepilisi zokunciphisa iintlungu ezithengiswa ngaphandle kwemvume kagqirha ezifana neParacetamol okanye i-Ibuprofen . ( Kodwa khumbula, i-aspirin ayikhuthazwa kubantu abangaphantsi kweminyaka eli-19 ubudala .) Ukongeza, kukho nezinye izinto ezimbalwa ezinokukunceda.
Ukuthatha amanyathelo kwangoko nje ukuba intlungu iqale kunceda kakhulu ekuthinteleni ukuba ingaqhubeki nokuba mandundu.
Masiyijonge ngale ndlela ukuze siqonde ngokucacileyo into enokwenziwa ekhaya.
| Yintoni enokwenziwa? | Uncedo olulunikayo |
|---|---|
| Sela amanzi amaninzi kunye nolwelo. | Ukusela amanzi nokuhlala unamanzi emzimbeni kwangoko nje ukuba intlungu iqale kunokunceda ukuphucula ukujikeleza kwegazi kunye nokuthintela intlungu ukuba ingaqhubeki. |
| Sebenzisa i-heating pad/hlamba ngamanzi ashushu | Ubushushu bunceda ekuphumzeni imithambo yegazi nokubuyisela ukuhamba kwegazi kwiindawo ezichaphazelekayo, nto leyo enciphisa iintlungu. |
| Zama ukuphulula okanye ukwenza i-acupuncture. | Ezi zinokunceda ekuphumzeni izihlunu, ukuphucula ukujikeleza kwegazi, kunye nokunciphisa iintlungu. Kukwalungile kakhulu ukuziqhelanisa neendlela zokuphumla. |
| Ziphazamise. | Endaweni yokucinga ngentlungu, yenza into oyithandayo. Bukela iTV, mamela umculo, okanye uthethe nomhlobo. Oku kunokukunceda ukhuphe ingqondo yakho kwintlungu. |
Kodwa ngamanye amaxesha, ukuba ezi zinto azincedi, okanye ukuba intlungu inzima kakhulu, wena okanye umntwana wakho unokufuna ukulaliswa esibhedlele. Apho, ugqirha unokukunika ulwelo lwe-IV kunye neyeza elinamandla lokudambisa iintlungu. Ukuba intlungu ayinyamezeleki, musa ukuhlala nje ekhaya. Yiya kwigumbi likaxakeka lesibhedlele esikufutshane (ETU) ngokukhawuleza.
Oogqirha abaninzi banika abantu abanesifo se-sickle cell isicwangciso sokulawula iintlungu ukuze sibancede bajongane neentlungu. Sichaza amanyathelo onokuwathatha ukulawula iintlungu zakho wedwa. Sikwakuxelela nendlela abanye oogqirha, abahlengikazi, okanye abasebenzi be-ambulensi abanokukunceda ngayo xa kukho imeko engxamisekileyo. Ngoko ke, thetha nogqirha wakho ngaphambi kokuba uqale ukuziva iintlungu uze wenze isicwangciso.
Ngawaphi amayeza afumanekayo okunciphisa nokuthintela iintlungu?
Kukho amayeza athile anokunceda ukunciphisa ukuphindaphindeka kweziqendu ezibuhlungu.
- I-Hydroxyurea:Ukusela eli yeza imihla ngemihla kunokunciphisa ukuphindaphindeka kweziganeko zentlungu kubantu abadala nakubantwana.
- I-L-glutamine (L-glutamine - Endari): Xa isetyenziswa, inokunciphisa ixesha ohlala ngalo esibhedlele ngenxa yentlungu okanye inciphise inani labantu abangeniswa esibhedlele.
- I-Crizanlizumab-tmca (Adakveo): Eli lelinye lamayeza amatsha avunyiweyo kwisifo se-sickle cell. Lunyango olujoliswe kulo. Oku kuthetha ukuba eli yeza lisebenza ngokujolisa ngqo kwiiseli ezibomvu zegazi ukuze zingadibani. Oku kunciphisa inani leengxaki ze-vaso-occlusive crisis (ii-VOC), ezinokukhokelela kwiintlungu ezincinci kunye nomonakalo kwizitho zangaphakathi.
Inqaku elibalulekileyo: Oogqirha babesebenzisa iyeza elibizwa ngokuba yi-`Voxeletor (Oxbryta)` ukuthintela ukwakheka kweeseli ezibomvu zegazi ezingaqhelekanga. Nangona kunjalo, ngoSeptemba 2024, inkampani eyenza eli yeza yalirhoxisa kwimarike ngenxa yenkxalabo yokhuseleko. Le nkampani yagqiba kwelokuba iingozi zeli yeza zingaphezulu kweenzuzo. Ukuba sele uthatha i-`Oxbryta`, nceda uthethe nogqirha wakho ngoko nangoko malunga nokuqalisa olunye unyango.
Ngokuqinisekileyo kufuneka uthethe nogqirha wakho ukuze ufumane ukuba la mayeza afanelekile kuwe okanye kumntwana wakho.
Yintoni enokwenziwa ngentlungu engapheliyo?
Iziphumo zexesha elide zesifo se-sickle cell zinokubangela iingxaki ezibuhlungu ixesha elide, ingakumbi kubantu abadala. Umzekelo, ukuncipha kokuhamba kwegazi emzimbeni wonke kunokonakalisa amathambo kunye namalungu, nto leyo ekhokelela kwiintlungu ezingapheliyo.
Ukuze ulawule olu hlobo lwentlungu engapheliyo, ugqirha wakho unokukunika iintlungu zokuphelisa iintlungu omawuzithathe yonke imihla. Banokucebisa nonyango lomzimba okanye izixhobo zamathambo ukunceda ukuxhasa umqolo wakho kunye namalungu omzimba. Kwezinye iimeko ezinzima, oogqirha banokucebisa utyando ukulungisa ingxaki ebangela intlungu okanye ukudambisa imithambo-luvo okwethutyana ukuze kuthomalaliswe intlungu.
Uhlala njani uqinile engqondweni ngale ntlungu?
Ukuphila nesifo se-sickle cell kunokuba nzima kakhulu, ingakumbi ebantwaneni. Abantu abasoloko bebuhlungu banokuba neengxaki zempilo yengqondo, ezinje ngexhala kunye nokudakumba. Basenokuziva bengabandakanywanga kwizinto abanye abantu abazithandayo ngenxa yemeko yabo. Ezi mvakalelo zinokwenza ezinye iingxaki ezibangelwa sisifo zibe mandundu.
Ukuba nawe uziva uxinezelekile, udakumbile, okanye ungenathemba, ingcebiso okanye unyango lwengqondo lunokuba luncedo kakhulu.Ngokuthetha ngeengxaki zakho nogqirha wakho, ungafumana iindlela zokuphila ngempumelelo nangokusempilweni kunye neentlungu kunye neminye imingeni ehambisana nesi sifo.
Kwakhona, buza ugqirha wakho okanye umongikazi malunga namaqela enkxaso apho abanye abantu kunye neentsapho eziphila nesifo se-sickle cell zinokudibana khona. La maqela anokukunika amathuba okwabelana ngamava nabanye malunga nokuba kunjani ukuphila nesifo, kunye nokufumana iingcebiso malunga nokujongana nentlungu kunye nezinye iingxaki.
Umyalezo Wokuya Ekhaya
- Intlungu yesifo se-sickle cell iyinyani. Musa ukuyithatha lula.
- Thetha nogqirha wakho ngento omawuyenze xa uziva iintlungu uze ucinge ngesicwangciso esilungileyo.
- Qaphela izinto onokuzenza ekhaya (ukusela amanzi, ukufaka ubushushu) kwangoko nje ukuba intlungu iqale.
- Ukuba intlungu inzima okanye ayilawuleki, yiya kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele ngoko nangoko.
- Xoxa nogqirha wakho malunga namayeza athatha ixesha elide anokuthintela iimeko zentlungu.
- Nyamekela impilo yakho yengqondo. Ukuba kuyimfuneko, ungathandabuzi ukufuna iingcebiso okanye ukujoyina iqela lenkxaso.
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