Loaʻa iā ʻoe kekahi mau mea e like me ka luhi i hoʻopilikia iā ʻoe no nā lā, nā ʻeha kino i kekahi manawa, a i ʻole nā ʻeha hui? I kekahi manawa hoʻowahāwahā mākou i kēia mau mea, me ka manaʻo, "Pēlā nō ia." Eia naʻe, i kekahi manawa ma hope o kēia mau hōʻailona liʻiliʻi aia paha kahi maʻi olakino e pono ai ka nānā ʻana. ʻO ka maʻi Collagen Vascular kekahi o ia mau maʻi. I kēia lā, e kamaʻilio mākou e pili ana i kēia ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.
He aha ka maʻi Collagen Vascular? I ka ʻōlelo maʻalahi...
E noʻonoʻo e like ko kākou kino me kahi hale nui i hana ʻia me nā ʻāpana i hoʻohui ʻia. Pono kēia hale i kekahi ʻano "ʻōnaehana hoʻopili" e mālama i nā paia, ka hale, nā puka a me nā puka makani a ikaika, ʻeā? Pēlā mākou e kapa ai i
nā ʻiʻo pili , kahi ʻano ʻiʻo kūikawā e hoʻopili ai i nā mea e like me nā iwi, nā ʻiʻo, nā ligaments, a pēlā aku i loko o ko mākou kino, e hāʻawi ana iā lākou i ka ikaika a me ke ʻano. E like me ka sima a me ke kaula i loko o kahi hale. I kēia manawa, he protein koʻikoʻi loa i loko o kēia mau ʻiʻo pili ʻo ia
ka collagen . Kōkua kēia collagen i ka hāʻawi ʻana i ko mākou ʻili, nā iwi, a me nā hono i ka ikaika a me ka maʻalahi e pono ai lākou. ʻO ka maʻi Collagen Vascular
kahi mumū lōʻihi e kū mai ana i loko o kēia mau ʻiʻo pili. ʻO "Inflammation" ʻo ia hoʻi kahi kūlana e like me ka mumū, ka pehu, a me ka ʻulaʻula. Hiki i kēia ke hōʻino i kā mākou mau ʻiʻo pili.
Aia kekahi inoa ʻē aʻe no kēia ʻano maʻi?
ʻAe, i kekahi manawa kapa nā kauka i kēia he "maʻi pili i nā ʻiʻo." ʻO ka hapa nui o ka manawa, hāʻule kēia maʻi vascular collagen i loko o ka māhele o
nā maʻi autoimmune . ʻO ke ʻano o "Autoimmune" ʻo ia hoʻi ka ʻōnaehana pale, ka mea e pale ai i ko mākou kino mai ka maʻi, e hoʻomaka hewa ana e hoʻouka i ko mākou mau ʻiʻo olakino ponoʻī. E noʻonoʻo e like me ka pūʻali koa o ko mākou ʻāina e hoʻouka hewa ana i ko mākou poʻe ponoʻī. ʻO kēia ke kumu o ka mumū a mākou i ʻōlelo ai.
He aha nā ʻano o ka maʻi Collagen vascular?
Nui nā ʻano like ʻole i loko o kēia hui o nā maʻi. E nānā kākou i kekahi o nā ʻano nui.
ʻO nā ʻano i hoʻokumu ʻia e nā maʻi autoimmune:
ʻO kēia nā ʻano maʻamau o nā maʻi vascular collagen.
- ʻO Ankylosing Spondylitis : ʻO kēia ka mumū o nā hono i loko o ka iwi kuamoʻo, hiki ke paʻakikī a hoʻopili pū ʻia, e paʻakikī ai ke kūlou a hoʻohuli i ka iwi kuamoʻo.
- Lupus a i ʻole Systemic Lupus Erythematosus: He ʻoi aku ka paʻakikī o kēia no ka mea hiki iā ia ke hoʻopili i ka aneane o nā ʻōkana o ke kino, me ka ʻili, nā hono, nā puʻupaʻa, ka puʻuwai , a me ka lolo.
- ʻO ka Rheumatoid Arthritis: Hoʻoulu kēia i ka pehu, ka ʻoʻoleʻa, a me ka ʻeha nui, ʻo ia hoʻi ma nā hono liʻiliʻi o nā lālā. ʻOi aku ka ʻino i ke kakahiaka.
- Scleroderma: ʻO kēia ke kumu e mānoanoa a paʻakikī ai ka ʻili. I kekahi poʻe, hiki iā ia ke hoʻopilikia i nā ʻōpū o loko.
- ʻO ka maʻi Sjögren: ʻO nā maka maloʻo a me ka waha maloʻo nā hōʻailona nui o kēia ʻano, no ka mea, hoʻopilikia ia i nā kelepa salivary a me nā kelepa waimaka.
- ʻO Temporal Arteritis (i ʻike ʻia hoʻi ʻo Giant Cell Arteritis): Hoʻoulu kēia i ka mumū o nā kīʻaha koko (nā aʻa temporal) ma nā ʻaoʻao ʻelua o ke poʻo. Hiki i kēia ke hana i nā hōʻailona e like me ke poʻo ʻeha a me ka ʻeha o ka ʻāwae i ka wā e nau ai.
Nā ʻano i hoʻokumu ʻia e nā kumu genetic:
He mea laha ʻole kēia mau mea a ua hoʻokumu ʻia e nā mutations i loko o kā mākou mau genes.
- ʻO ka maʻi Ehlers-Danlos: He ʻili palupalu loa ko kēia poʻe, he mau hono palupalu, a he maʻalahi ka ʻeha .
- ʻO ka maʻi Marfan: He kino lōʻihi a wiwi ko kēia poʻe. He lōʻihi hoʻi nā manamana lima. Hiki ke hoʻopilikia ʻia nā mea e like me ka puʻuwai, nā maka, a me nā kīʻaha koko.
- Osteogenesis Imperfecta: Ua kapa ʻia kēia ʻo "ka maʻi iwi brittle." ʻO ka poʻe me kēia ʻano, he mau iwi haki maʻalahi ko lākou.
He aha ka maʻi ʻaʻai kololagen i hui pū ʻia?
He mea kūikawā iki nō hoʻi kēia. ʻO ka mea e hana ʻia ma kēia, ʻo ia ka ʻike pū ʻia ʻana o nā hōʻailona o kekahi mau maʻi autoimmune i ʻōlelo ʻia ma luna, a i ʻole ma ke ʻano ʻē aʻe, i loko o ke kanaka hoʻokahi. Ua like ia me ka loaʻa ʻana o nā hōʻailona o ka lupus, scleroderma, a me kekahi maʻi ʻē aʻe i ka manawa like. Hiki i kēia mau hōʻailona ke hele mai a hele aku no kekahi manawa. I kēia hihia, hiki iā ʻoe ke ʻike i nā hōʻailona e like me:
- Dysphagia : ʻO ke ʻano kēia o ka paʻakikī i ka ale ʻana i ka meaʻai.
- Luhi nui .
- Ka pehu ʻana o nā manamana lima.
- ʻĀhaʻi puʻuwai.
- ʻEha ʻiʻo a ʻeha hui paha.
- ʻO ka hanana ʻo Raynaud: Ma kēia, lilo nā manamana lima a me nā manamana wāwae i keʻokeʻo, uliuli, a laila ʻulaʻula ke kau ʻia i ke anu. ʻO kēia ma muli o ka emi ʻana o ke kahe koko.
- Paʻakikī ka hanu ʻana (Dyspnea).
ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o ka maʻi Collagen Vascular?
ʻO kaʻoiaʻiʻo, hiki i kekahi ke loaʻa i kēia mau maʻi. Eia nō naʻe, ua ʻike ʻia kekahi mau ʻano, e like me ka lupus, ka rheumatoid arthritis, a me ka scleroderma, he mea maʻamau iki i nā wahine. Ua ʻōlelo ʻia hoʻi he ʻoi aku ka nui o ka poʻe i ko lākou mau makahiki 30 a me 40 e loaʻa i kēia mau maʻi.
No ke aha e loaʻa ai kēia maʻi vascular collagen? He aha ke kumu?
He pilikia paʻakikī kēia. ʻAʻole ʻike nā kauka i ke kumu pololei o
nā maʻi autoimmune . Manaʻo kekahi poʻe noiʻi hiki i kekahi mau bacteria, virus, a i ʻole nā lāʻau lapaʻau ke hana i kēia mau kūlana ma ka hoʻololi ʻana i kā mākou ʻōnaehana pale. ʻO kekahi mau maʻi autoimmune, e like me ka lupus, holo i loko o nā ʻohana, ʻo ia hoʻi he predisposition genetic paha. ʻO nā maʻi vascular collagen, i hoʻokumu ʻia
e nā kumu genetic, i hoʻokumu ʻia e nā mutations i loko o nā genes. Hiki ke hoʻoili ʻia kēia mau loli genetic mai kekahi a i ʻole nā mākua ʻelua i kahi keiki. A i ʻole hiki iā lākou ke ulu me ke kumu ʻole.
He aha nā hōʻailona maʻamau o ka maʻi Collagen Vascular?
Hiki ke ʻokoʻa nā hōʻailona ma muli o ke ʻano o ka maʻi Collagen Vascular āu e loaʻa ai. Eia nō naʻe, eia kekahi o nā hōʻailona maʻamau i maʻa mau i ka hapa nui o kēia mau maʻi:
- Luhi: Manaʻo wale nō i ka luhi.
- Kuni: Wela ke kino me ke kumu ʻole.
- ʻEha a me ka ʻeha o nā hono: ʻEha a pehu nā hono.
- ʻEha nā ʻiʻo.
- Ka nāwaliwali o nā ʻiʻo.
- ʻŌhūhū ʻili: Hiki ke ʻike ʻia nā ʻulaʻula, nā ʻōhūhū, a me nā pehu ma ka ʻili.
Hiki i kekahi mau maʻi vascular collagen ke hoʻolilo i kou ʻili i mea maʻalahi loa
i ka mālamalama ultraviolet (UV) . No ka laʻana, inā hele kekahi me ka lupus i ka lā, hiki i ko lākou ʻili ke puhi a pehu nui, e like me ka
hopena allergies . No laila he mea nui e makaʻala i ka lā.
Pehea e ʻike ai ke kauka i kēia?
Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, pono ʻoe e ʻike i ke kauka. E hana ke kauka i kēia mau mea e ʻike ai i ka maʻi vascular collagen: 1.
E kamaʻilio me ʻoe e pili ana i kāu mau hōʻailona: He aha kāu mau hōʻailona, pehea ka lōʻihi o ko lākou noho ʻana, a pehea lākou e holomua nei? 2.
E hana i kahi hoʻokolokolo kino: E nānā i kou ʻili, nā hono, a me nā ʻiʻo no nā loli. 3.
Nā hoʻokolohua kūikawā: Eia kekahi, hiki ke hana ʻia nā hoʻokolohua aʻe:
- Nā hoʻokolohua kiʻi: Hiki ke lawe ʻia nā scan CT a i ʻole nā X-ray e nānā i kou mau iwi a me nā ʻōpū o loko.
- Urinalysis: Lawe ʻia kahi laʻana o kāu mimi a nānā ʻia no ka maʻi a i ʻole ke alo o nā protein kikoʻī.
- Nā hoʻāʻo koko: Hana ʻia nā hoʻāʻo koko e nānā i kāu mau pae hormone a e kāpae i nā kūlana ʻē aʻe i loaʻa nā hōʻailona like. Aia kekahi mau hoʻāʻo koko kūikawā e hiki ke kōkua i ka ʻike ʻana i nā maʻi autoimmune.
- Echocardiogram: Hana ʻia kēia hoʻāʻo e nānā i ka hana o kou puʻuwai a pehea e holo ai ke koko ma o ia.
- Biopsy: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o kou ʻiʻo pili (e.g., ʻili) a nānā iā ia ma lalo o kahi microscope. Hiki iā mākou ke ʻike pono i nā loli i loko o kēlā ʻiʻo.
E hoʻomanaʻo, ʻaʻole i hana ʻia kēia mau hoʻokolohua āpau no nā kānaka āpau. ʻO kāu mau hōʻailona a me nā kānalua o kāu kauka e hoʻoholo i nā hoʻokolohua e hana ʻia.
He aha nā lāʻau lapaʻau no kēia? Hiki ke ho'ōla loa ʻia?
ʻO ka mea pōʻino,
ʻaʻohe lāʻau lapaʻau o kēia manawa no ka maʻi Collagen Vascular. Akā
, mai hopohopo! Nui nā lāʻau lapaʻau kūpono e hiki ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona a ola i kahi ola maʻamau. ʻO nā lāʻau lapaʻau nui:
- Corticosteroids: ʻO kēia nā ʻano lāʻau lapaʻau nui i hāʻawi ʻia e hōʻemi i ka mumū a hoʻomālielie i ka ʻōnaehana pale.
- Nā Immunosuppressants: Hana kēia mau lāʻau lapaʻau ma ka hōʻemi palekana ʻana i ka hana o ka ʻōnaehana pale, ka mea e hana hewa ana, no laila ʻaʻole hiki ke hoʻouka i nā ʻiʻo olakino.
- Hoʻōla kino: Kōkua kēia i ka hoʻoikaika ʻana i kou mau ʻiʻo, hoʻonui i kou neʻe ʻana, a hōʻemi i ka ʻeha. Pili ia i nā hoʻomaʻamaʻa kūikawā a me nā lāʻau lapaʻau.
E pono anei iaʻu ke ʻoki kino?
ʻAʻole pono ka hapa nui o nā hihia o ka maʻi vascular collagen i ke ʻoki kino. Eia nō naʻe, inā ua hōʻino nui ʻia nā hono e kekahi mau maʻi, e like me ka rheumatoid arthritis, hiki i ke kauka ke ʻōlelo i
ke ʻoki kino pani hono .
Aia kekahi ala e pale aku ai i kēia maʻi?
ʻO kaʻoiaʻiʻo,
ʻaʻohe ala e pale loa ai i ka ulu ʻana o nā maʻi vascular collagen. ʻO ka hapa nui o kēia mau mea i hana ʻia e nā kumu autoimmune a i ʻole genetic. Eia nō naʻe, ʻo kekahi o nā ʻano nui o kēia mau maʻi, ʻo ia ka mumū mau. No laila, ʻo ka hana ʻana i nā mea e hiki ai ke hōʻemi i ka mumū i loko o ke kino e kōkua paha i ka kaohi ʻana i nā hōʻailona a i ʻole e hōʻemi i ke koʻikoʻi o ka maʻi. Nā mea e like me:
- ʻAi ʻana i nā meaʻai anti-inflammatory: ʻO nā laʻana e pili ana i ka iʻa me ka omega-3, nā mea kanu ʻōmaʻomaʻo, nā huaʻai, a me nā mea ʻala (e like me ka turmeric a me ke kinikini).
- Ka mālama ʻana i kahi helu nui o ke kino olakino (BMI): He mea nui e mālama i kahi kaumaha olakino e kūpono i kou makahiki, ke kāne, a me ke ʻano o ke kino.
He aha kā mākou e manaʻo ai i ka wā e noho ai me kēia maʻi? Pehea lā e hiki ai iā mākou ke ola maikaʻi me kēia maʻi?
He maʻi
ola ke kolakena. Eia naʻe, ʻaʻole ia he manaʻo ʻaʻole hiki iā ʻoe ke ola i kahi ola maikaʻi. Nui nā mea hiki iā ʻoe ke hana ma ka home e kōkua i ka hōʻemi ʻana i nā hōʻailona a pale i nā pilikia:
- Pale i ka hōʻino ʻana o ka lā: E hoʻohana i kahi sunscreen ākea me ka SPF (Sun Protection Factor) o ka liʻiliʻi he 30 i kēlā me kēia lā. E hōʻemi i ka ʻike ʻana i ka lā. E noho i ka malu, e ʻaʻahu i nā lole e uhi ana i kou kino, a e hoʻāʻo e noho i loko o ka hale i nā hola kiʻekiʻe o ka lā, e like me 10 a.m. a i 4 p.m.
- E ʻai i ka meaʻai momona: E ʻai i nā mea kanu a me nā huaʻai hou aku. E hōʻemi i nā meaʻai i hana ʻia a me nā meaʻai kiʻekiʻe i ke kō e like me ka hiki.
- E hoʻoikaika kino mau: E hana i nā hoʻoikaika kino kūpono iā ʻoe (e laʻa me ka hele wāwae, ka ʻauʻau ʻana, ka hāpai kaumaha māmā) e like me ka ʻōlelo a kāu kauka. E hoʻoikaika kēia i kou mau ʻiʻo, e mālama i kou mau hono i ka palupalu, a he mea maikaʻi ia no kou noʻonoʻo.
- E hōʻemi i ke kaumaha: He mea maʻamau ke kaumaha i ka wā e noho ana me kahi maʻi mau e like me kēia. No laila e ʻimi i nā ala e hoʻomaha ai. Hiki i nā mea e like me ke kamaʻilio ʻana , ka puke pai, a me ka noʻonoʻo ʻana ke kōkua.
Pehea ka hopena o ka maʻi Collagen vascular i ko mākou mau kīʻaha koko?
ʻO kekahi mau ʻano maʻi vascular collagen, e like me ka rheumatoid arthritis, hiki ke hoʻoulu i
ka mumū o kou mau kīʻaha koko (vasculitis) . Hiki i kēia mumū ke hoʻohāiki i kou mau kīʻaha koko, hiki ke hoʻopilikia i ke kahe koko. Inā ʻaʻole mālama ʻia, hiki i kēia kahe koko i emi iho ke hoʻoulu i nā pilikia me kou puʻuwai a me nā ʻōpū ʻē aʻe. Inā loaʻa iā ʻoe kahi ʻano maʻi vascular collagen e hoʻohāiki ai i kou mau kīʻaha koko, e kuhikuhi paha kāu kauka i nā lāʻau lapaʻau e hōʻemi i ka mumū a hoʻomaikaʻi i ke kahe koko.
Leka Lawe-Home
ʻAe, eia kekahi o nā mea nui a mākou i kamaʻilio ai e kōkua iā ʻoe e hoʻomanaʻo iā lākou:
- ʻO ka maʻi Collagen vascular kahi mumū lōʻihi e kū mai ana i loko o kā mākou mau ʻiʻo pili .
- ʻO ka hapa nui o ka manawa, he mau maʻi autoimmune kēia, ʻo ia hoʻi, hana ko kākou ʻōnaehana pale ponoʻī i ko kākou kino ponoʻī. Hoʻokumu ʻia kekahi mau ʻano kakaikahi e nā kumu genetic.
- Hiki ke ʻike ʻia nā hōʻailona e like me ka luhi, ka ʻeha o nā ʻiʻo, ka ʻeha o nā hono, a me ka ʻulaʻula o ka ʻili i loko o kēia mau maʻi.
- ʻO kēia mau maʻiʻOiai ʻaʻohe lāʻau lapaʻau piha, aia nā lāʻau lapaʻau kūpono e kaohi ai i nā hōʻailona a alakaʻi i kahi ola maikaʻi.
- Inā loaʻa iā ʻoe kēia mau hōʻailona, mai kānalua e ʻike i ke kauka no ka ʻōlelo aʻo . He mea nui loa ka ʻike mua ʻana no ka mālama pono ʻana.
- ʻO kahi nohona olakino (ʻai maikaʻi, hoʻoikaika kino, pale lā, olakino noʻonoʻo) e hāʻawi iā ʻoe i ka ikaika nui i ka wā e ola pū ana me kēia mau maʻi.
No laila, ke lana nei koʻu manaʻo he mea kōkua kēia ʻike iā ʻoe. Inā he mau nīnau hou aku kāu, mai poina e nīnau i ke kauka.
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