Kua pāngia koe e te mamae o te tuara, te pakari o te ata, te mamae rānei o ngā hononga mai i tō taiohinga? Tērā pea koe e whakaaro he makariri kino noa iho, he mea i puta mai i te ngenge, he mea rānei i puta mai i te moe koretake. He maha ngā wā ka pērā. Engari i ētahi wā ka nui ake te kino. I tēnei rā kei te kōrero tātou mō tētahi āhuatanga kāore i te mōhiotia e te tini o te tangata, engari he mea nui kia mōhiotia. Ko te
Ankylosing Spondylitis , ko
te AS rānei te whakarapopototanga.
He aha te Ankylosing Spondylitis (AS)?
He momo mate rumatiki anō hoki tēnei. Engari ko te nuinga o te pānga ki tō tuaiwi. Hei whakamārama, he mate "mate rumatiki mumura". Ko te tikanga o tēnei ka whakaekea hētia e te pūnaha ārai mate o tō tinana ngā hononga o tō tuaiwi. Ka puta te mumura, arā, te pupuhi me te mamae, i roto i ngā hononga o tō tuaiwi. Ka tīmata tēnei mate i te wā taitamariki, i waenga i te 20 me te 40 tau te pakeke. I roto i te wā, ka honoa ngā tuaiwi o tō tuaiwi e tēnei mumura tonu, ka rite ki te wheua kotahi. Ka kiia tēnei ko te "ankylosis" i roto i ngā kupu hauora. Whakaarohia me te mea kua herea ngā tuaiwi o tō tuaiwi. Ka taea e tēnei te whakakeke me te piko o te tū. Koinei te raruraru matua o te AS.
He rite tonu te pānga o te AS ki te katoa?
Kāo. Kāore tēnei mate e pā ki te katoa i te ōrite. Ko ētahi tāngata ka pāngia e te mamae ngawari e haere mai ana, e haere atu ana. Ko ētahi atu ka pāngia e te mamae nui me te pakari e mau tonu ana mō te oranga katoa. Kua kitea e ngā rangahau he rerekē te kaha o te mate i ia tangata, i ia tangata. Hei tauira, kua whakaatuhia e ngā rangahau he nui ake te tūponotanga o ētahi rōpū tāngata ki te pāngia e te mate i ētahi atu. Tērā pea nā ngā awe ira, ngā āhuatanga taiao, me ngā rerekētanga o te urunga ki te tiaki hauora.
I ētahi wā, nā te kore mōhio ki tēnei mate, ka whakaroa pea te tangata whai tohumate ki te toro atu ki te tākuta. Mēnā ka pērā, tera pea ka kaha ake te mate i te wā e tautuhia ai.
Hei tāpiri, ko ētahi tāngata whai AS kei te nui ake te mōrearea ki te whakawhanake i ētahi atu mate hauora, pērā i te toto toto tiketike, te mate huka, te pouri, me te mate ngakau.
He wāhi tō ngā ira ki te whanaketanga o te AS?
Kāore tetahi e mōhio ana he aha te take. Engari he maha ngā whānau e pāngia ana e te mate, nō reira e whakaponohia ana he ira tuku iho. Mena he AS tō whaea, tō pāpā, tō teina rānei, he nui ake te tūponotanga ka pāngia koe e te mate. Ina koa
He nui ngā kōrero mō te ira HLA-B27 e pā ana ki tēnei mate. Ko te hunga kei a rātou tēnei ira he nui ake te mōrearea ki te whakawhanake i te AS. Engari ko te mea nui i konei, kāore e taea e koe te kī ka whakawhanake koe i te AS nā te mea kei a koe te ira HLA-B27 . Ahakoa i Sri Lanka, he maha ngā tāngata kei a rātou tēnei ira engari kāore he mate. Waihoki, ko te hunga kāore i a rātou tēnei ira ka taea hoki te whakawhanake i te AS. Ko te tikanga o tēnā, e whakapono ana ngā tākuta inaianei ehara i te mea ko ngā ira anake, engari ko ētahi atu āhuatanga taiao kāore anō kia mōhiotia e tātou te take o tēnei mate. He aha ngā tohu matua o te AS?
Haunga te mamae o te tuara, ka taea e te AS te whakaputa i ētahi atu tohu. Me titiro tātou ki ngā tohu matua. | Tohu | Te ara e taea ai e koe te rongo |
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| Te mamae me te pakari i te tuara me te papa | Ka mārō te ahua o tōku tuara, ina koa ka ara ake ahau i te ata, i muri rānei i te tū ake i muri i te noho roa i taua tūranga. Ka heke te mamae ina hikoi pakupaku ahau, ina mahi rānei i tētahi mea whai hua. Ka piki ake te mamae i te pō, ā, ka taea hoki e au te whakaara ake i ahau i te moe. |
| Te mamae i roto i ētahi atu hononga | Ka pupuhi, ka mamae hoki ngā wāhi pēnei i te hope, ngā pakihiwi, ngā turi, ngā pona waewae me ngā rekereke. |
| Te uaua ki te manawa | Ki te horapa tēnei mumura ki ngā rara o te uma, kāore pea e whānui te uma, ā, ka pāngia pea te uma e te mamae i te wā e manawa hōhonu ana. |
| Ngā raruraru kanohi (Uveitis) | Tata ki te hautoru o ngā tūroro AS ka pāngia e te mate kanohi, e kiia nei ko te uveitis. Ko ngā tohu ko te whero ohorere, te mamae o ngā kanohi, te uaua ki te kite, me te tirohanga pōuri. He āhuatanga ohorere tēnei, ā, me aro tonu ki te hauora . |
| Ētahi atu āhuatanga noa | Tērā pea ka pā te ngenge kore e taea te whakamārama, te kirika, te hekenga taumaha, te whēwhe kiri, ā, i ētahi tāngata, ka pāngia e ngā mate puku pēnei i te mate a Crohn. |
Me aha koe mēnā kei a koe ēnei tohu?
Mena, inā koa he taitamariki koe, kua pāngia koe e te mamae tuara e kino haere ana i te ata, ā, e pai haere ana i te awatea mō ngā marama neke atu i te 3, me toro atu koe ki tō tākuta whānau . He mea nui kia pono tō kōrero mō tō mamae. Ki te kore koe e whakaahua tika i tōna mamae, me te whakaaro, "He mamae iti noa iho," ka uaua pea ki te tākuta te tautuhi i te mate taketake. Nō reira, kia tuwhera mō ō mamae katoa.
- Ngā whakamātautau hihi-X : Rapua ngā panonitanga o te tuaiwi me ngā hope.
- Matawai MRI : I ngā wāhanga tōmua o te mate, ka taea te kite i ngā āhuatanga mumura kāore e kitea e ngā hihi-X.
- Ngā whakamātautau toto : Ko ngā whakamātautau pēnei i te ESR me te CRP e ine ana i te mumura i roto i te tinana.
- Whakamātautau ira: Mena e tika ana, tirohia mēnā he ira HLA-B27 .
He aha ngā maimoatanga?
Ahakoa kāore e taea te whakaora katoa i te AS, he maha ngā maimoatanga pai inaianei hei āwhina i te whakahaere i ngā tohu, te ārai i te kaki o te tuara, me te noho i te oranga noa. Te āhua noho hohe
Ko tētahi o ngā maimoatanga pai rawa atu mō tēnei ko te noho kaha tonu . Mā te whakakori tinana auau, inā koa ngā whakakori tinana e whakapakari ana i ngā uaua o te tuara me te pokapū me te totoro, ka āwhina i te whakaiti i te mamae me te pupuri i te ngāwari o te tuara. Ka taea e te kaiwhakaora tinana te āwhina i a koe ki te kimi i tētahi kaupapa whakakori tinana e tika ana. Ngā rongoā
Tērā pea ka tohua e tō tākuta ngā rongoā pēnei i ēnei, i runga i te āhua o tō mate:- Ngā rongoā anti-inflammatory kore-steroidal ( NSAID ): Koinei ngā rongoā rārangi tuatahi e hoatu ana hei whakaiti i te mamae me te mumura.
- Ngā aukati i te pūmua mate pukupuku (TNF): He momo rongoā koiora ēnei. Ka aro atu rātou ki tētahi matū e puta ai te mumura, ā, ka whakahaere i te mate mena kāore e taea e ngā NSAID te whakahaere.
- Ngā rongoā ārai rūmātiki whakarerekē mate (DMARDs):Ka whakamahia hoki ētahi rongoā pēnei i te Sulfasalazine .
- Corticosteroids : Ka hoatu mō te wā poto ina nui te mumura.
I ētahi wā tino kino, ka hiahiatia pea te pokanga hei whakakapi i te hononga kua pakaru, hei whakatika rānei i ngā huringa o te tuaiwi. Karere Tangohia ki te Kāinga
- Ko te Ankylosing Spondylitis (AS) he momo mate rumatiki e pā nui ana ki te tuaiwi, ā, ka tīmata i te wā taitamariki.
- Ko te pakari o te tuara i te ata me te mamae (ka iti haere i te wā e whakakorikori tinana ana) he tohu matua.
- Kāore e taea e tēnei mate te pā ki te tuaiwi anake, engari ki ētahi atu wāhanga o te tinana anō hoki, pērā i ngā kanohi, ngā pakihiwi, me ngā hope.
- Ki te mamae tonu tō tuara, kaua e warewarehia, engari me toro atu ki te tākuta. Mā te tātaritanga wawe ka angitu te maimoatanga.
- Mā te noho kaha, te whakakori tinana i ngā wā katoa, me te tango i ngā rongoā e ai ki te whakahaunga, ka taea e koe te noho ora, hauora hoki.
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