Ngaba wakha weva ngomhlaza wedlala elincinci engqondweni yakho? (Pineoblastoma) Masithethe ngale nto!

Ngaba wakha waba nentloko ebuhlungu, ubunzima bokushukumisa amehlo akho, okanye ukuziva ungazinzile xa uhamba? Mhlawumbi ukhe wambona umntwana wakho enale mpawu. Nangona ngamanye amaxesha singazinaki, kwiimeko ezingaqhelekanga, ezi zinto zinokuba ziimpawu zesifo esinzulu. Namhlanje siza kuthetha ngohlobo olungaqhelekanga kakhulu lomhlaza wobuchopho olubaluleke kakhulu ukuba luqatshelwe. Oku kubizwa ngokuba yi-`(Pineoblastoma)`.

Yintoni le `(iPineoblastoma)`? Kalula nje...

Ngamafutshane, `(Pineoblastoma)` sisimila somhlaza (esisithi `(malignant)`) esikhula kwi`(pineal gland)` ebuchotsheni bethu. Olu hlobo lomhlaza lukhula ngokukhawuleza kwaye lunokusasazeka kwizicwili ezijikelezileyo kunye nolwelo olujikeleze ubuchopho. Esi sisifo esibi kakhulu.

Linda kancinci, yintoni le pineal gland?

Kulungile, masiqale sifunde kancinci ngale `(Pineal Gland)`. Le yindlala encinci kakhulu, efana nekhowuni, efana ne-cashew nut. Ikwindawo ephakathi kwengqondo yethu. Le ndlala ikhupha i-hormone ebizwa ngokuba yi`(Melatonin)` . Umele ukuba ukhe weva nge`(Melatonin)`. Oku kunceda ukulawula indlela umzimba wethu osebenza ngayo imihla ngemihla, oko kukuthi, `(circadian rhythm)`. Ngamafutshane, oku kufana newotshi yendalo yomzimba wethu esinceda sihlale siphaphile emini size silale ebusuku.

Loluphi uhlobo lomhlaza oluyi-`(Pineoblastoma)`?

Le `(Pineoblastoma)` yithumba lobuchopho elikhula ngokukhawuleza . Oogqirha banokuyibiza ngokuba yi`(ithumba lobuchopho elingaphakathi kwentloko lebanga lesi-4)`. Kwakhona, le `yithumba elibi`, oko kuthetha ukuba yithumba lomhlaza. Oku kuthetha ukuba iyingozi emzimbeni wethu kwaye inokusasaza.

Ixhaphake kangakanani le sifo ibizwa ngokuba yi-'Pineoblastoma'?

I-Pineoblastoma sisifo esingaqhelekanga . E-United States, ngaphantsi kwe-0.2% yeethumba zobuchopho ezifunyaniswa njengeethumba ze-pineal gland. Olu hlobo lomhlaza lubonakala kakhulu kubantwana abancinci okanye kubantu abangaphantsi kweminyaka engama-20 ubudala. Nangona kunjalo, kubalulekile ukukhumbula ukuba inokukhula nakubani na wanoma yimuphi ubudala.

Zithini iimpawu zesi sifo `(Pineoblastoma)`?

Kulungile, ngoku masibone ukuba loluphi uhlobo lweempawu esizibonayo xa kuvela le `(Pineoblastoma)`.

• Usenokuba nentloko ebuhlungu kakhulu . Le ayisiyontloko iqhelekileyo nje kuphela, kodwa ibuhlungu kancinci.
• Ukuziva udiniwe ngalo lonke ixesha (`( Ukudinwa )`) . Usenokuziva udiniwe kangangokuba awukwazi kwenza nto.
• Ubunzima bokushukumisa amehlo akho . Kusenokuba nzima nokujonga kwindawo enye.
• Iingxaki ngokulinganisela kunye nokulungelelanisaKufana nokungakwazi ukugcina ibhalansi yakho xa uhamba, okanye ukuba nobunzima bokubamba izinto.
• Utshintsho kwindlela yokuziphatha . Izinto ezinjengokuba nomsindo, ukucaphuka, okanye ukuzola kunangaphambili.
• Isicaphucaphu nokuhlanza .

Ezi mpawu zihlala zibangelwa yimeko ebizwa ngokuba yi-`(hydrocephalus)`. Oko kukuthi, uxinzelelo kwi-`(cerebrospinal fluid)` (silubiza ngokuba yi-cerebrospinal fluid) ejikeleze ingqondo luyanda. Lo mhlaza unokusasazeka nge-`(cerebrospinal fluid)` uye kwezinye iindawo zengqondo nakwinkqubo yemithambo-luvo ephakathi (CNS). Nangona kunjalo, umhlaza we-`(pineoblastoma)` awuqhelekanga ukusasazeka ngaphaya kwe-`(CNS)`.

Khawuthelekelele ukuba unomntwana omncinci ohlala ekhalaza ngentloko ebuhlungu, ongadlali kangako njengangaphambili, kwaye ubonakala enomsindo kancinci. Abazali banokucinga ukuba oku kuqhelekile. Kodwa ukuba ezi mpawu ziyaqhubeka, kubaluleke kakhulu ukubona ugqirha.

Zithini izizathu zale `(Pineoblastoma)`?

Isizathu esiphambili soku kukuba uhlobo lweseli olubizwa ngokuba yi-"pinealocyte cells" kwi-pineal gland engqondweni yethu lukhula ngokungalawulekiyo nangokugqithisileyo . Uphando lubonisa ukuba ezi seli zinokuqala ukusebenza ngendlela engaqhelekanga ngenxa yotshintsho kwiijini zethu (''genetic mutation''). Kukho iintlobo ezimbini zezi nguqu zemfuza: 1. Ezo zizuzwe kubazali (''germline mutation'') : Oku kwenzeka ngexesha lokukhulelwa, oko kukuthi, xa isidoda sikamama nesikatata sidibana. 2. Ezo zenzeka ngokungacwangciswanga emva kokukhulelwa (''sporadic mutation'') : Kule meko, akukho mntu kusapho onokuba wayenale nguqu yemfuza ngaphambili.

Ngubani osengozini enkulu yokuhlaselwa yi-`(Pineoblastoma)`?

Abanye abantu basengozini enkulu kancinci yokuhlaselwa yile "Pineoblastoma".

• Ukuba une-retinoblastoma, uhlobo lomhlaza oluvela kwi-retina yeliso, usengozini enkulu yokuba ne-pineoblastoma.
• Kwakhona, abantu abaneenguqu ezithile kwi-genes `(RB1)` kunye `(DICER1)` nabo banamathuba amaninzi okufumana lo mhlaza . Njengoko bekutshiwo ngaphambili, olu tshintsho lwe-genetic lunokufunyanwa kubazali, okanye lunokwenzeka ngokungacwangciswanga.

Ukuba uceba ukuqala usapho, kulungile ukuthetha nogqirha malunga novavanyo lwemfuza ukuze ufumane ukuba unayo na enye yezi zinto ziyingozi.

Ifunyanwa njani iPineoblastoma?

Ugqirha uxilonga esi sifo (iPineoblastoma) ngokukuxilonga aze enze iimvavanyo ezahlukeneyo.

• Uvavanyo lomzimba : Okokuqala, ugqirha uza kukubuza ngeempawu zakho, nokuba kukho nabani na kusapho lwakho okhe waba neemeko ezifanayo, aze ahlole nendlela amehlo akho ahamba ngayo.
• Uvavanyo olukhethekileyo :
• Iskeni yobuchopho (iMagnetic Resonance Imaging - MRI ).
• Iskeni ye-`(Computed Tomography - CT)`.
• Mhlawumbi iskeni ye-`(Positron Emission Tomography - PET)`.
• I-biopsy yinkqubo apho kuthathwa khona iqhekeza elincinci lesicubu kwithumba lize lihlolwe. Yiyo le nto igqibayo ukuba ngumhlaza na kwaye uluhlobo luni.
• Uvavanyo lwegazi kunye/okanye ulwelo lwe-cerebrospinal (ulwelo olujikeleze ingqondo) lwenziwa ukujonga naziphi na iimpawu zethumba.

Ngaba i-`(Pineoblastoma)` inganyangeka ngokupheleleyo?

Lo ngumbuzo abantu abaninzi abanawo. Ukuba ndithetha inyani, okwangoku akukho nyango lwe-`(Pineoblastoma)`. Kodwa, ungakhathazeki, kukho iindlela ezahlukeneyo zonyango. Ukuba ithumba alisasazekanga, ugqirha angalisusa ngotyando. Nangona kunjalo, i-`(Pineoblastoma)` luhlobo lomhlaza olunzima ukulinyanga. Ke ngoko, umngcipheko weengxaki ezivela kulo mhlaza uphezulu. Iimpawu zinokuba mandundu ngokuhamba kwexesha kwaye ixesha lokuphila linokuncipha. Kwakhona, kukho ithuba lokuba umhlaza uphinde ubuye emva konyango.

Ziziphi iindlela zonyango ze-`(Pineoblastoma)`?

Oku kulandelayo kungenziwa njengonyango lwe-`(Pineoblastoma)`:

• Utyando : Utyando lwenziwa ukuze kususwe inxalenye okanye lonke ithumba. Ugqirha wakho uza kukuchazela into enokwenziwa lutyando kunye neengozi ezibandakanyekileyo.
• Utyando lweHydrocephalus : Kunokufakwa i-shunt (ityhubhu encinci) ukunciphisa ukwakheka kolwelo lwe-cerebrospinal olujikeleze ubuchopho. Oku kususa ulwelo olugqithisileyo kwaye kunciphisa uxinzelelo.
• Unyango ngemitha : Olu lonyango oluqhelekileyo emva kotyando. Unyango ngemitha lunokunciphisa iithumba okanye lubulale iiseli zomhlaza.
• I-Chemotherapy : Unyango olunikezelwayo ukongeza kunyango lwemitha kunye notyando. I-Chemotherapy inokunciphisa ithumba ngaphambi kotyando kwaye ibulale naziphi na iiseli zomhlaza eziseleyo emva kotyando.
• I-chemotherapy enedosi ephezulu kunye nokufakelwa kweeseli ze-stem ze-autologous : Kule nto, iiseli zakho ze-stem ziqokelelwa ngaphambi kwe-chemotherapy enedosi ephezulu. Emva koko, emva kwe-chemotherapy, ezo seli ze-stem ziphinda zifakwe emzimbeni wakho.

Njengoko amayeza amatsha kunye nonyango lufumaneka, unokufumana ithuba lokuthatha inxaxheba "kwizilingo zeklinikhi." Oku kungabandakanya ukuvavanya amayeza amatsha anje "ngonyango olujoliswe kulo" okanye "unyango lwe-immunotherapy."

Ngubani obandakanyekayo kwezi ndlela zonyango?

Ukuba une-pineoblastoma, iqela lakho lezonyango lingabandakanya:

• Ingcali yezifo zengqondo (ingcali yezifo zengqondo)
• Ingcali yomhlaza (ingcali yomhlaza)
• Ingcali yomhlaza wemitha
• Ugqirha wezifo zengqondo

Ngaba kukho naziphi na iziphumo ebezingalindelekanga zonyango?

Ewe, ezinye iindlela zonyango, ingakumbi unyango lwemitha, zinokubangela iziphumo ebezingalindelekanga. Ezi zinokuchaphazela ukusebenza kwe-endocrine yakho. Oku kuthetha:

• Ukukhula (`(Ukukhula)`)
• Amanqanaba Amandla (`(Amanqanaba Amandla)`)
• Ukuchuma (`(Ukuchuma)`)

Ngaphambi kokuba uqale unyango, thetha nogqirha wakho malunga nemiphumo emibi enokubakho . Baza kukujonga rhoqo baze banyange nayiphi na imiphumela emibi enokubakho.

Ngaba ungasinda `(iPineoblastoma)`?

Ewe, abanye abantu bayasinda kwiPineoblastoma. Izinga lokusinda kweminyaka emihlanu kwiPineoblastoma liphakathi kwama-60% ukuya kuma-69.5% . Oku kuthetha ukuba phakathi kwama-60% nama-70% abantu abanesifo basaphila emva kweminyaka emihlanu. Nangona iPineoblastoma inokubunciphisa ubomi bakho, kukho unyango olunokukunceda uhlale usempilweni kwaye uphile ixesha elide.

Ithini ingqikelelo ye-`(Pineoblastoma)`?

Emva kokuxilongwa kwe-`(Pineoblastoma)`, ugqirha wakho uza kukuxelela ngesifo esiza kwenzeka. Njengoko bekutshiwo ngaphambili, akukho nyango lwe-`(Pineoblastoma)`, kodwa kukho unyango. Ubungakanani bobomi bomntu buxhomekeke kwizinto ezininzi, njengempilo yakho iyonke, indlela osabela ngayo kunyango, kunye nokuba ithumba likhula ngokukhawuleza kangakanani . Emva kokuxilongwa kwe-`(Pineoblastoma)`, kuya kufuneka ubone ugqirha rhoqo. Oku kungenxa yokuba baya kukujonga naziphi na iziphumo ebezingalindelekanga kwaye benze oko kuyimfuneko.

Ngaba iPineoblastoma ingathintelwa?

Ngelishwa, okwangoku akukho ndlela eyaziwayo yokuthintela iPineoblastoma.

Ndifanele ndimbone nini ugqirha?

Iimpawu ze-`(Pineoblastoma)` kuwe okanye kumntwana wakho, eziquka:

• Intloko ebuhlungu
• Utshintsho kwindlela yokuziphatha
• Ubunzima bokuhambisa amehlo

Ukuba unayo nayiphi na kwezi zilandelayo, bona ugqirha ngokukhawuleza . Ukuba ufunyaniswe une-`(Pineoblastoma)` kwaye unyangwa, xelela ugqirha wakho ukuba ufumana naziphi na iziphumo ebezingalindelekanga. Ukuba umntwana wakho uselula, unyango lunokuchaphazela ukukhula kwakhe. Ukuba uvakalelwa kukuba umntwana wakho uthatha ixesha elide ukukhula ngesantya esifanelekileyo kubudala bakhe, thetha nogqirha wakho ngaloo nto.

Ndingayibuza yiphi imibuzo ugqirha wam?

Xa ubona ugqirha, kungcono ukubuza imibuzo efana nale:

• Luhlobo luni lonyango olucetyiswayo?
• Ingaba umhlaza usasazekile?
• Ngaba kufuneka ndityandwe?
• Zithini iziphumo ebezingalindelekanga zonyango?
• Ingakanani ixesha endilindele ukuba ndiliphile okanye ingakanani ikamva lam?

Kuqhelekile ukuziva wothukile, ulusizi, kwaye usoyika xa usiva amagama athi "unomhlaza." Ngequbuliso, unemibuzo emininzi malunga nokuba wenze ntoni emva koko, ukuba ulindele ntoni, nokuba ulindele ntoni. Ungakhathazeki . Ugqirha wakho kunye neqela lezonyango baya kukunceda ujongane nolu xilongo kwaye ukhethe unyango olulungele wena. Ngeli xesha, qiniseka ukuba uzingqonge nosapho nabahlobo abakuxhasayo. Uphando malunga nonyango olutsha lwe-pineoblastoma luyaqhubeka, ngoko ke hlala unethemba.

Umyalezo Wokuya Ekhaya

• I-Pineoblastoma ngumhlaza ongaqhelekanga kodwa okhula ngokukhawuleza okhula kwi-pineal gland yengqondo.
• Iimpawu ezifana neentloko ebuhlungu, iingxaki zamehlo, ukulahlekelwa kukulinganisela, kunye notshintsho kwindlela yokuziphatha zinokubakho. Ezi zisenokuba zibangelwa yi-hydrocephalus (ukuqokelelwa kolwelo engqondweni) .
• Unobangela udla ngokuba yimfuza. Abantu abane-`(Retinoblastoma)` kunye nabo bane-`(RB1)` kunye ne-`(DICER1)` yotshintsho lwemfuza basengozini enkulu.
• Uvavanyo olufana ne-MRI, i-CT scan, kunye ne-biopsy zenziwa ukuze kufunyanwe isifo.
• Nangona kungekho nyango lupheleleyo, kukho unyango olufana notyando, unyango lwemitha, kunye ne-chemotherapy.
• Ukuba uneempawu , funa ingcebiso kagqirha ngoko nangoko . Musa ukoyika ukubuza imibuzo.
• Nangona le yimeko enzima, jongana nonyango unethemba namandla . Awuwedwa.

Ndiyathemba ukuba olu lwazi luza kukunceda. Ukuba unamathandabuzo malunga naziphi na iimpawu, nceda ubone ugqirha.

---