Ngaba ngamanye amaxesha uziva ngathi kunzima ukuma esitulweni? Ngaba imilenze yakho ibuthathaka xa unyuka izinyuko, okanye ukufumanisa kunzima ukuphakamisa iingalo zakho ukuze ufikelele kwinto ethile? Nangona sihlala sizithatha ezi mpawu njengokudinwa nje, ngamanye amaxesha zinokuba zizibonakaliso zemeko yempilo onokuthi ungayazi. Namhlanje, eNirogi Lanka, sifuna ukuthetha nawe ngesimo esingaqhelekanga kodwa esibalulekileyo: iPolymyositis.
Ngamafutshane, yintoni iPolymyositis?
I-Polymyositis sisifo esingaqhelekanga sokuzikhusela komzimba . Cinga ngenkqubo yakho yomzimba yokuzikhusela njengomkhosi okhusela umzimba wakho. Umsebenzi wayo kukulwa neentsholongwane ezihlaselayo ukuze uhlale ukhuselekile. Nangona kunjalo, kwi-Polymyositis, le nkqubo ayisebenzi kakuhle kwaye ngempazamo iqala ukuhlasela izihlunu zakho ezisempilweni endaweni yezoyikiso zangaphandle.
Ngamafutshane, umkhuseli wakho uyakuhlasela . Oku kubangela iMyositis, oko kuthetha ukudumba okanye ukudumba kwezicubu zemisipha. KwiPolymyositis, isimaphambili esithi “Poly” sithetha “ezininzi,” nto leyo ebonisa ukuba le meko inokuchaphazela izihlunu kwiindawo ezininzi zomzimba wakho ngaxeshanye.
Idla ngokuchaphazela izihlunu ezikufutshane nombindi womzimba wakho, ezifana nezi:
- Iingalo (ingakumbi amagxa kunye neengalo ezingaphezulu)
- Izinqe namathanga
- Isifuba nomqolo
- Imisipha yentamo
Isizathu esichanekileyo sesi sifo asikaziwa, kwaye okwangoku akukho nyango lupheleleyo. Nangona kunjalo, musa ukudimazeka. Ngonyango olufanelekileyo kunye nolawulo, abantu abaninzi bayakwazi ukulawula iimpawu zabo kwaye baphile ubomi obuqhelekileyo nobusebenzayo.
Zithini iimpawu?
Iimpawu zePolymyositis ziyahluka kumntu nomntu. Nangona kunjalo, kukho iimpawu eziqhelekileyo ezinokuphazamisana nobomi bakho bemihla ngemihla. Masizijonge kwitheyibhile engezantsi.
| Uphawu | Ingcaciso elula |
|---|---|
| Ubuthathaka beMisipha | Olu luphawu oluphambili. Izihlunu emagxeni, ezinqeni, nasemathangeni ziba buthathaka, nto leyo eyenza kube nzima ukuphakama esitulweni, ukunyuka izinyuko, okanye ukuphakamisa izinto. |
| Intlungu Yemisipha Nokuqina | Usenokuziva ubuhlungu okanye ukuthamba kwemisipha yakho, ingakumbi uzive uqinile xa uvuka kusasa. |
| Ubunzima bokuginya (iDysphagia) | Ubuthathaka kwimisipha yomphimbo bunokwenza kube nzima ukuginya ukutya okanye isiselo okanye bubangele ukukrwitshwa. |
| Ubunzima bokuphefumla (i-Dyspnea) | Ukubuthathaka kwemisipha yesifuba kunokubangela ukuphefumla okufutshane okanye ukuziva uphelelwe ngumoya. |
| Ubunzima Bokuthetha | Ukuba izihlunu zomqala nezentamo ziyachaphazeleka, ilizwi lakho linokutshintsha, okanye ungakufumanisa kunzima ukuthetha ngokucacileyo. |
| Ezinye Iimpawu | Ukudinwa okungapheliyo, iintlungu zamalungu, ubuthathaka ngokubanzi, ukwehla kobunzima bomzimba, okanye umkhuhlane omncinci nako kunokubakho. |
Okona kubaluleke kakhulu, ukuba ufumana ubunzima obukhulu bokuphefumla okanye ukungakwazi ukuginya ukutya okanye isiselo , le yingxamiseko. Nceda uye kwigumbi likaxakeka lesibhedlele esikufutshane (ER) ngoko nangoko.
Izizathu kunye Nezinto Ezinobungozi
Njengoko sele kutshiwo, isizathu esichanekileyo asikaziwa, kodwa izinto ezithile zinokwandisa amathuba okuba nale meko.
Izinto ezinokubangela iingxaki
- Ezinye izifo zokuzikhusela komzimba: Ukuba okwangoku uneemeko ezifana neLupus, iRheumatoid arthritis , okanye iScleroderma, umngcipheko wakho wokuba nePolymyositis uphezulu.
- Usulelo olubangelwa ziintsholongwane: Usulelo olufana ne-COVID-19, i-Influenza, umkhuhlane oqhelekileyo, okanye i-HIV ngamanye amaxesha lunokuba sisizathu sale meko.
Ngubani osengozini enkulu?
- Abafazi: Abafazi banamathuba aphindwe kabini okufumana le meko kunamadoda.
- Iminyaka engama-30-60: Nangona inokwenzeka nakweyiphi na iminyaka, ixhaphake kakhulu kweli qela leminyaka.
- Abantu abaneengxaki zokuzikhusela komzimba esele zikhona.
Ifunyaniswa njani le nto?
Xa undwendwela ugqirha oneempawu ezikhankanyiweyo apha ngasentla, uza kuqala athathe imbali eneenkcukacha zeempawu zakho aze enze uvavanyo lomzimba lwemisipha yakho. Ukuqinisekisa ukuxilongwa, banokucebisa uvavanyo oluthile lwezonyango.
| Uvavanyo | Oko isixelela kona |
|---|---|
| Uvavanyo lwegazi | Ezi zikhangela ii-enzymes ezithile ezivuza egazini lakho xa kukho umonakalo kwizihlunu, kunye nee-autoantibodies, ezibonisa ukuba inkqubo yakho yomzimba yokuzikhusela ihlasela izihlunu zakho. |
| Iskeni yeMRI | Oku kubonelela ngemifanekiso ecacileyo neneenkcukacha ezisinceda sibone ukudumba kwemisipha kunye nokudumba. |
| I-EMG (i-Electromyography) | Sisebenzisa oku ukulinganisa umsebenzi wombane kwimisipha yakho, ukusinceda sibone naziphi na iingxaki kwindlela esebenza ngayo imisipha yakho. |
| I-Biopsy yeMisipha | Isampuli encinci yezicubu zemisipha ezichaphazelekileyo ithathwa ize ihlolwe phantsi kwemakroskopu. Le yindlela eqinisekileyo yokuqinisekisa ubungakanani bomonakalo. |
Iphathwa njani?
Njengoko besitshilo, nangona kungekho nyango lunye lwale meko, injongo yethu eNirogi Lanka kukulawula ukudumba, ukunciphisa iimpawu zakho, kunye nokukunceda ugcine umgangatho wobomi bakho bemihla ngemihla. Izigulane ezininzi ziphumelela ekufumaneni ukuphumla ngesicwangciso sonyango esifanelekileyo.
Iindlela eziphambili zonyango ziquka:
- IiCorticosteroids: Amayeza anamandla okulwa nokuvuvukala adla ngokuba ngowokuqala ukuzikhusela ekunciphiseni ukudumba.
- Ii-immunosuppressants: La mayeza anceda ekunciphiseni ukusebenza kakhulu kwenkqubo yakho yokuzikhusela, ethintela ukuba ingaqhubeki nokonakalisa izihlunu zakho.
- I-Intravenous immunoglobulin (IVIG): Olu nyango lukhethekileyo luhambisa ii-antibodies ezisempilweni ezivela kubanikeli zingene egazini lakho ngokufakwa. Cinga ngale ndlela yokubuyisela ingqalelo yenkqubo yakho yomzimba yokuzikhusela ekuhlaseleni izihlunu zakho.
- Unyango Lomzimba: Le yinxalenye ebalulekileyo yokuchacha kwakho. Ingcali yonyango iza kukukhokela kwimithambo yokuqinisa izihlunu zakho nokuphucula ukuguquguquka, ukuthintela ukuwohloka okanye ubuthathaka obungakumbi.
Ufanele uye nini kugqirha?
Ukufuna isikhokelo sezonyango kwangethuba kubalulekile ekulawuleni le meko ngempumelelo.
- Ukuba ufumana ubuthathaka obutsha bemisipha okanye intlungu engapheliyo engapheziyo kwiintsuku ezimbalwa, nceda udibane nogqirha wakho ngoko nangoko .
- Ukuba sele ufumana unyango kodwa uqaphela ukuba iimpawu zakho ziya zisiba mandundu okanye uvakalelwa kukuba amayeza akho aya engasebenzi kakuhle, yazisa iqela lakho lezempilo ngokukhawuleza .
| Funa Unyango Olungxamisekileyo Ngokukhawuleza! | |
|---|---|
| Ukuba uphelelwa ngumphefumlo okanye uzive ngathi awukwazi ukuphefumla. | |
| Ukuba unengxaki yokuginya oko kwenza ukutya okanye ukusela kungakhuselekanga okanye kubangele ukukrwitshwa rhoqo. | |
| Ukuba ufumana ukulahleka ngequbuliso kokusebenza kwezihlunu nakweyiphi na indawo yomzimba wakho. | |
Ingaba oku kukufuzwa njengelifa?
Uphando lubonisa ukuba kusenokuba kukho icandelo lemfuza kwesi sifo, oko kuthetha ukuba kunokubakho utyekelo oluncinci ukuba ilungu losapho linaso. Nangona kunjalo, eli asilolifa liqinisekisiweyo. Akufuneki ukhathazeke kukuba abantwana bakho baza kuba nale meko.
Ukulawula iPolymyositis kukuzibophelela ubomi bakho bonke, kodwa akufuneki kukuthintele ukuba uphile ubomi obupheleleyo. Ngoncedo olufanelekileyo lwezonyango, unyango lomzimba, kunye nohlengahlengiso lwendlela yokuphila, abantu abaninzi baphila ubomi obonwabisayo nobukhutheleyo. Eyona nto ibalulekileyo kukuhlala ulumkile malunga notshintsho lomzimba wakho kwaye unamathele kwiindibano zakho zonyango.
Umyalezo Wokuya Ekhaya
- I-Polymyositis yimeko engaqhelekanga apho amajoni akho omzimba ahlasela izihlunu zakho ngempazamo.
- Iimpawu eziphambili ziquka ubuthathaka bemisipha, iintlungu, kunye nobunzima bokuginya okanye ukuphefumla.
- Nangona kungekho nyango luhlala luhleli, amayeza kunye nonyango lomzimba lusebenza kakhulu ekulawuleni iimpawu zakho.
- Ukuba ufumana ubunzima bokuphefumla okanye bokuginya, funa uncedo lwezonyango olungxamisekileyo ngoko nangoko.
- Soloko unxibelelana nogqirha wakho malunga neempawu zakho kunye nohambo lwakho lonyango.
I-Polymyositis, ubuthathaka bemisipha, iintlungu zemisipha, isifo sokuzikhusela komzimba, i-myositis, ubuthathaka bemisipha, isifo sokuzimela komzimba
