Ngaba ngamanye amaxesha ukufumanisa kunzima ukuphakama esitulweni? Ngaba imilenze yakho ibuthathaka xa unyuka izinyuko? Okanye uziva ngathi awunamandla esandleni sakho xa uphakamisa into ethile? Nangona sicinga ukuba ezi zinto zizinto eziqhelekileyo ezenzeka ngenxa yokudinwa, ngamanye amaxesha kunokubakho isifo esingasemva kwesi esingazivanga kangako ngaso. Namhlanje sithetha ngesifo esingaqhelekanga, kodwa kufanelekile ukuba siqaphele. YiPolymyositis leyo.
Ngamafutshane, yintoni iPolymyositis?
I-Polymyositis yimeko engaqhelekanga kakhulu. Sisifo esibangelwa kukuzikhusela komzimba . Cinga ngale ndlela: inkqubo yethu yokuzikhusela yomzimba ifana nomkhosi okhusela ilizwe. Umsebenzi waloo mkhosi kukukhusela imizimba yethu ngokulwa neentsholongwane kunye neentsholongwane ezivela ngaphandle. Kodwa kwi-Polymyositis, lo mkhosi uyaphambuka kwaye uqala ukuhlasela izihlunu zethu eziphilileyo endaweni yeentshaba zangaphandle.
Ngamafutshane, ukuzikhusela kwethu kuyasihlasela . Oku kubizwa ngokuba yiMyositis, okuthetha ukudumba okanye ukudumba kwezihlunu. KwiPolymyositis , igama elithi "Poly" lithetha "ezininzi." Oku kuthetha ukuba kule meko, izihlunu kwiindawo ezahlukeneyo zomzimba zinokuchaphazeleka ngaxeshanye.
Oku kudla ngokuchaphazela izihlunu ezikufutshane nombindi womzimba wethu. Umzekelo:
- Izandla (ingakumbi amagxa neengalo)
- Izinqe namathanga
- Isifuba nomqolo
- Imisipha yentamo
Unobangela ochanekileyo wesi sifo awukafunyanwa. Kwaye akukho nyango lwaso okwangoku. Kodwa ungakhathazeki. Ngonyango olufanelekileyo nolawulo, abantu abaninzi baye bakwazi ukulawula ezi mpawu baze baphile ubomi obuqhelekileyo.
Zithini iimpawu zesi sifo?
Iimpawu ze-polymyositis zinokwahluka kumntu nomntu. Nangona kunjalo, kukho iimpawu eziqhelekileyo kunye nobunzima ezibubangelayo kubomi bemihla ngemihla. Masizijonge kwitheyibhile.
| Uphawu | Icacisiwe ngokulula |
|---|---|
| Ubuthathaka bemisipha | Olu luphawu oluphambili. Izihlunu, ingakumbi emagxeni, ezinqeni, nasemathangeni, ziba buthathaka. Kuba nzima ukuphakama esitulweni, ukunyuka izinyuko, nokuphakamisa iintsimbi. |
| Intlungu yemisipha kunye nokuqina kwayo | Imisipha iyaqaqamba, intlungu ivakala nokuba ichukunyiswa. Usenokuziva uqinile, ingakumbi xa uvuka kusasa. |
| Ubunzima bokuginya (i-Dysphagia) | Ukubuthathaka kwemisipha yomqala kwenza kube nzima ukuginya ukutya nokusela, kwaye kukwenze uzive ngathi uyakrwitshwa. |
| Ubunzima bokuphefumla (i-Dyspnea) | Ukuba izihlunu zesifuba ziba buthathaka, kuba nzima ukuphefumla kwaye kuvakala ngathi kukufutha umoya. |
| Ubunzima bokuthetha | Ukuba izihlunu zomqala nentamo ziyachaphazeleka, ilizwi lakho linokutshintsha kwaye kunokuba nzima ukuthetha ngokucacileyo. |
| Ezinye iimpawu | Kunokubakho nokudinwa okungapheliyo, iintlungu zamalungu, ubuthathaka, ukwehla kobunzima bomzimba, kunye nomkhuhlane. |
Eyona nto ibalulekileyo kukuba ukuba unengxaki yokuphefumla okanye yokuginya ukutya okanye isiselo , yingxaki enkulu leyo. Kwimeko enjalo, kufuneka uye kwigumbi likaxakeka (ETU) lesibhedlele ngoko nangoko.
Ziziphi izizathu kunye nezinto ezibangela ukuphuhliswa kwe-polymyositis?
Njengoko besikhe sathetha ngaphambili, akukho sizathu siqinisekileyo esifunyenweyo sale meko. Nangona kunjalo, kukho izinto ezithile ezinokwandisa amathuba okuba le meko iqhubeke.
Izizathu ezinokwenzeka
- Ezinye izifo ezichaphazela amasosha omzimba: Ukuba sele unesinye isifo esichaphazela amasosha omzimba esifana ne-`(Lupus)`, `(Rheumatoid arthritis )`, `(Scleroderma)`, usemngciphekweni omkhulu wokufumana i-Polymyositis.
- Usulelo lwentsholongwane: Ngamanye amaxesha usulelo lwentsholongwane olufana `(COVID-19)`, `(Influenza)` (flu), umkhuhlane oqhelekileyo, `(HIV)` lunokuba yimbangela yesi simo.
Ngubani osengozini enkulu?
- Kwabasetyhini: Abafazi banamathuba aphindwe kabini okufumana esi sifo kunamadoda.
- Kubantu abaphakathi kweminyaka engama-30-60 ubudala: Nangona inokukhula nakweyiphi na iminyaka, esi sifo sidla ngokufunyaniswa kakhulu kweli qela leminyaka.
- Kwabo banezinye izifo zokuzikhusela komzimba.
Uyifumana njani le nto, Gqirha?
Xa ubona ugqirha oneempawu ozikhankanyileyo apha ngasentla, uya kuqala akubuze ngeempawu zakho ngokweenkcukacha. Emva koko uya kuhlola izihlunu zakho. Ukongeza, uya kuyalela iimvavanyo ezininzi ukuze afumanise isifo ngokuchanekileyo.
| Uvavanyo | Ubona ntoni kule nto? |
|---|---|
| Uvavanyo lwegazi | Olu vavanyo lujonga ii-enzyme ezithile ezikhutshwa egazini xa izihlunu zonakele kunye neentlobo zee-antibodies eziveliswa emizimbeni yethu. |
| Iskeni ye-MRI | Oku kukuvumela ukuba ubone ngokucacileyo izinto ezifana nokudumba kunye nokudumba kwimisipha. |
| Uvavanyo lwe-EMG (i-Electromyography) | Oku kujonga ukusebenza kombane kwezihlunu. Oku kunokubona naziphi na iingxaki ekusebenzeni kwezihlunu. |
| I-Biopsy yeMisipha | Oku kuquka ukuthatha iqhekeza elincinci kakhulu lesihlunu esichaphazelekileyo uze usihlolisise nge-microscope. Oku kunceda ekufumaneni ukuba loluphi na umonakalo owenzekileyo kwisihlunu. |
Iphathwa njani?
Njengoko besitshilo ngaphambili, akukho nyango lwesi sifo. Nangona kunjalo, unyango lujolise ekulawuleni ukudumba kwimisipha, ukunciphisa iimpawu, kunye nokukunceda usebenze ngokuqhelekileyo kangangoko kunokwenzeka. Abantu abaninzi bayayeka ukusebenza ngonyango.
Kukho iindlela ezininzi eziphambili zonyango:
- IiCorticosteroids: Ezi ziluhlobo olunamandla lwamayeza anciphisa ukudumba. Olu lunyango lokuqala oluqala ngalo.
- Ii-immunosuppressants: La mayeza asebenza ngokunciphisa kancinci ukusebenza kwenkqubo yethu yokuzikhusela komzimba, nto leyo enciphisa umonakalo kwizicwili zethu.
- I-Intravenous immunoglobulin (IVIG): Olu nyango lwahluke kancinci. Lubandakanya ukunika umzimba wakho ii-antibodies ezithathwe kubantu abaphilileyo ngesicombululo se-saline. Ngamafutshane, kufana nokunika inkqubo yakho yomzimba into enye ekufuneka igxile kuyo. Inciphisa inani lamaxesha ehlasela ngayo izihlunu zakho.
- Unyango Lomzimba: Oku kubaluleke kakhulu. Ingcali yonyango lomzimba iya kukufundisa imithambo eya kunceda ukuqinisa izihlunu zakho nokuzigcina ziguquguquka. Oku kunokunceda ukuthintela izihlunu zakho ekubeni buthathaka.
Ndifanele ndimbone nini ugqirha?
Kubaluleke kakhulu ukufuna ingcebiso yezonyango ngokukhawuleza kwimeko enjalo yezonyango.
- Ukuba ufumana ubuthathaka obutsha bemisipha okanye iintlungu, ingakumbi ukuba azipheli kwiintsuku ezimbalwa, bona ugqirha ngoko nangoko .
- Ukuba sele ufumana unyango kwaye uziva ngathi iimpawu zakho ziya zisiba mandundu, okanye ukuba uziva ngathi iyeza alisebenzi, xelela ugqirha wakho .
| Yiya kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele ngoko nangoko! | |
|---|---|
| Ukuba unengxaki yokuphefumla okanye uziva ngathi uyafuthaniseka. | |
| Ukuba unengxaki yokuginya ukutya okanye isiselo okanye ukuba uhlala ukrwitshwa. | |
| Ukuba ilungu lomzimba elinokushukunyiswa ngequbuliso lingakwazi ukushukuma . | |
Ngaba esi sisifo esizuzwe njengelifa?
Ezinye izifundo zibonise ukuba kusenokuba kukho unxibelelwano lwemfuza nesi sifo. Oku kuthetha ukuba ukuba umntu kusapho unaso, abanye banokuba nethuba elincinci lokufumana esi sifo. Kodwa akukabonakali ukuba sikhona. Ngoko ke, ngenxa yokuba unesi sifo, akufuneki ukhathazeke ukuba abantwana bakho baza kusifumana ngokuqinisekileyo.
I-Polymyositis yimeko yobomi bonke ekufuneka ilawulwe. Kodwa akufuneki ikuthintele ukuba uphile. Ngonyango olufanelekileyo, unyango lomzimba, kunye notshintsho kwindlela yokuphila, uninzi lwabantu lunokulawula iimpawu zabo kwaye baphile ubomi obonwabisayo. Eyona nto ibalulekileyo kukunika ingqalelo kutshintsho emzimbeni wakho kwaye ufune iingcebiso zonyango ngexesha elifanelekileyo.
Umyalezo Wokuya Ekhaya
- I-Polymyositis yimeko engaqhelekanga apho amajoni ethu omzimba ahlasela izihlunu zethu.
- Ubuthathaka bemisipha, iintlungu, ubunzima bokuginya kunye nokuphefumla zezona mpawu ziphambili.
- Nangona kungekho nyango lupheleleyo loku, iimpawu zinokulawulwa kakuhle ngamayeza kunye nonyango lomzimba.
- Ukuba ufumana ubunzima bokuphefumla okanye bokuginya, yithathe njengengxamiseko kwaye uye kwiSebe lezeMpilo eziNgxamisekileyo (ETU) lesibhedlele ngoko nangoko.
- Ukuba unenkxalabo malunga neempawu okanye unyango lwakho, thetha ngokukhululekileyo nogqirha wakho.
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