Ngamanye amaxesha sifumana ukurhawuzelelwa sisandla okanye unyawo, kwaye kuphele ngokwako emva kwexesha elithile, akunjalo? Kodwa khawucinge nje, ukuba izandla neenyawo zakho ziyaphelelwa ngamandla kancinci kancinci, ziqala ukuziva zingasasebenzi, kwaye imeko iyanda kancinci kancinci kwixesha elingaphezu kweenyanga ezimbini? Le yenye yeempawu eziphambili zesifo semithambo-luvo esingaqhelekanga esibizwa ngokuba yi -CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Nangona igama liyinkimbinkimbi kancinci, masiliqonde ngokulula. Nangona esi sisifo esingaqhelekanga, kubaluleke kakhulu ukuba wonke umntu aqaphele oku.
Kalula nje, yintoni i-CIDP?
I - CIDP yimeko yexesha elide eyenzeka xa inkqubo yethu yomzimba yokuzikhusela (inkqubo esikhusela kwizifo ) ihlasela ngempazamo imithambo-luvo yethu. Ngokukodwa, yonakalisa isigqubuthelo esikhuselayo esijikeleze imithambo-luvo (ebizwa ngokuba yi-myelin ). Cinga ngesi sigqubuthelo njengeplastiki ejikeleze ucingo lombane . Xa esi sigqubuthelo sonakele, imithambo-luvo ayithumeli imiyalezo engqondweni nakwezinye iindawo zomzimba ngokufanelekileyo. Yiloo nto ebangela iimpawu ezinjengobuthathaka kunye nokungaziva mnandi kwamalungu omzimba.
Nangona esi sifo sinokuvela nakweyiphi na iminyaka, sixhaphake kakhulu kubantu abadala namadoda.
Yintoni umahluko phakathi kwe-CIDP kunye ne-Guillain-Barre syndrome (GBS)?
Mhlawumbi ukhe weva nge-Guillain-Barre syndrome ( GBS ). Zombini ezi zifo zichaphazela imithambo-luvo kwaye zineempawu ezifanayo. Kodwa kukho umahluko ocacileyo phakathi kwezi zimbini.
- I-Guillain-Barre Syndrome (GBS): Oku kudla ngokuqala ngequbuliso emva kweentsuku ezimbalwa emva kosulelo, njengokuqaqamba kwesisu. Kodwa ngonyango, kunokwenzeka ukuba iphile ngokukhawuleza.
- I-CIDP: Le yimeko ehlala ixesha elide ekhula iinyanga ngaphandle kokunxibelelana nosulelo. I-GBS ayinakukwazi ukudlulela kwi-CIDP ngaphandle konyango.
Zithini iimpawu ze-CIDP?
Iimpawu ze-CIDP azifani kuye wonke umntu. Zinokwahluka ngokuxhomekeke kuhlobo lwe-CIDP onayo. Ngokubanzi, unokufumana ukudinwa okukhulu, ukungaziva mnandi, kunye nentlungu. Oku kunokubangela ukuba i-reflex yakho yehle kwaye iingalo nemilenze yakho zibe buthathaka.
Uphawu oluphambili nolubonakalayo lokuqala kukwanda kancinci kancinci kwemisipha kwixesha leenyanga ezimbini nangaphezulu.Ubuthathaka bemisipha . Obu buthathaka buchaphazela omabini amacala omzimba. Ngokukodwa:
- Izinqe namathanga
- Amagxa neengalo ezingaphezulu
- Izandla
- Iinyawo
Ukongeza kolu phawu luphambili, ezinye iimpawu zinokubonakala:
- Ukuwohloka kwemisipha: Imisipha iyancipha ize ibe ncinci.
- I-Paresthesia: Imvakalelo yokuba ndindisholo okanye ukurhawuzelela kwiminwe.
- Ubunzima bokuhamba: Ukulahlekelwa yibhalansi kunye nokungakwazi ukuhamba kakuhle.
- Intlungu ye-Neuropathic: Intlungu ebuhlungu ebangelwa ziingxaki zenkqubo yemithambo-luvo.
- Iimpendulo ezibuthathaka (Iingxaki zemisipha enzulu): Xa ugqirha ebetha idolo ngesando esincinci, impendulo iyanyamalala, ngokungathi umlenze uyasolulwa.
Kunqabile kakhulu ukuba kubekho ubunzima bokuginya (i-dysphagia) kunye nombono ophindwe kabini wexeshana (i-diplopia).
Ukuze ucinge ukuba i-CIDP inesifo, ezi mpawu kufuneka zihlale ubuncinane iiveki ezi-8 .
Ngaba kukho iintlobo ezahlukeneyo ze-CIDP?
Ewe, i-CIDP inokwahlulwa ibe ziintlobo ezininzi eziphambili ngokusekelwe kwiimpawu. Le theyibhile yolwazi iya kukunika umbono ocacileyo.
| Uhlobo lwe-CIDP | Iimpawu eziphambili |
|---|---|
| I-CIDP eqhelekileyo | Uninzi lwabantu lunolu hlobo, nto leyo ebangela iingxaki zokuva ezifana nobuthathaka bemisipha kunye nokungaziva kakuhle okuchaphazela amacala omabini omzimba. |
| I-Multifocal motor neuropathy | Ubuthathaka bemisipha buvela kwelinye icala lomzimba okanye kwiindawo ezithile (ezingenamda). |
| Isifo sikaLewis-Sumner | Zombini iingxaki zobuthathaka bemisipha kunye nokuziva zenzeka kwelinye icala lomzimba. |
| I-CIDP ecocekileyo eneemvakalelo | Akukho buthathaka bemisipha, kodwa kukho ukungakhululeki, iintlungu, kunye nobunzima bokuhamba. |
| Injini ecocekileyo i-CIDP | Akukho ngxaki zeemvakalelo, kodwa kukho ubuthathaka bemisipha kunye nokulahlekelwa yimpendulo kumacala omabini omzimba. |
Kwakhona, oogqirha bahlula esi sifo sibe ziintlobo ezintathu ngokusekelwe kwindlela esiziphatha ngayo:
- Inkqubela phambili: Iimpawu ziya zisiba mandundu kancinci kancinci ngokuhamba kwexesha.
- Iphinda-phinda: Iimpawu ziyavela, ziyanyamalala, zize ziphinde zivele.
- Isifo esinye: Esi sifo senzeka kube kanye ebomini. Siphela emva kweminyaka eli-1-3.
Yintoni ebangela i-CIDP? Ingaba iyasulela?
Isizathu esichanekileyo se-CIDP asikaziwa, kodwa siyazi ukuba sibangelwa kukudumba kwemithambo-luvo kunye neengcambu zemithambo-luvo. Njengoko bekutshiwo ngaphambili, oku konakalisa i-myelin sheath ejikeleze imithambo-luvo.
Eyona nto ibalulekileyo kukuba i-CIDP ayisosifo esosulelayo. Awunakuyifumana komnye umntu, kwaye awunakuyifumana komnye umntu.
Yenziwa njani le nto yokuxilonga?
Akukho vavanyo lukhethekileyo lwe-CIDP. Ngoko ke, ugqirha wakho uza kuqala akubuze ngeempawu zakho (ukuba ziqale nini, indlela oziva ngayo), emva koko enze uvavanyo lomzimba aze akucebise ukuba wenze iimvavanyo ezimbalwa ukuze afumanise ukuba yintoni kanye kanye ingxaki ngemithambo-luvo yakho aze asuse ezinye iimeko.
Olu vavanyo lungabandakanya:
- Uvavanyo lwegazi nomchamo.
- Uphononongo lokuqhuba imithambo-luvo kunye ne-Electromyogram (EMG): Ezi zikhangela umonakalo kwimithambo-luvo nakwi-myelin sheath.
- Ukubhobozwa kweLumbar: Kuthathwa ulwelo oluncinci kwi-spinal cord ukujonga amanqanaba aphezulu eeproteni, axhaphakileyo kwi-CIDP.
- I-biopsy yemithambo-luvo: Iqhekeza elincinci lesicubu lithathwa kwimithambo-luvo lize lihlolwe phantsi kwe-microscope.
- I-MRI scan: Ingajonga ukudumba kweengcambu zemithambo-luvo.
Kubaluleke kakhulu: Kubalulekile ukuxilonga esi sifo kwasekuqaleni uze uqale unyango.Kubalulekile. Kungathintela ukonakala kwemithambo-luvo. Ukuba ayinyangwa, iimpawu zinokuba nzima kakhulu, ngamanye amaxesha zide zifuneke ukuba kusetyenziswe isitulo esinamavili.
Ziziphi iindlela zonyango?
Abantu abaninzi bafuna unyango. Okukhona unyango luqala ngokukhawuleza, kokukhona amathuba okuchacha ngokupheleleyo eba ngcono.
Iintlobo zamachiza
- IiCorticosteroids: La ngamayeza ohlobo lwe-steroid anciphisa ukudumba kwaye alawule ukusebenza kwenkqubo yomzimba yokuzikhusela.
- Unyango lwe-Immunotherapy: La mayeza ayayithintela inkqubo yomzimba yokuzikhusela ekuhlaseleni i-myelin.
- I-Biologics: Amayeza afana neVyvgart, udidi olutsha lwamayeza oluvunyiweyo kutshanje, nawo asetyenziselwa le njongo.
Unyango oluthile
- I-Intravenous immunoglobulin (IVIG): Unikwa inaliti yohlobo oluqinileyo lwee-antibodies ezithathwe egazini labantu abaphilileyo. Oku kunceda ukulawula ukungasebenzi kakuhle kwenkqubo yakho yokuzikhusela komzimba.
- Ukutshintshiselana ngeplasma (PE): Oku kuquka ukuthatha igazi lakho, ukulithumela ngomatshini okhethekileyo, ukususa iplasma yegazi equlethe ii-antibodies eziyingozi, uze ubuyisele igazi elicocekileyo emzimbeni wakho.
- Ukufakelwa kweeseli zesiqu: Kolu nyango lungaqhelekanga, iiseli zesiqu eziphilileyo ziyafakwa ukuze "zibuyisele" inkqubo yomzimba yokuzikhusela.
Ezinye iindlela zonyango ezixhasayo
- Unyango lomzimba: Oku kunceda kakhulu ekubuyiseleni amandla alahlekileyo, ukuhamba, kunye nokuphucula ulungelelwano.
- Unyango lomsebenzi: Lukufundisa indlela yokwenza imisebenzi yemihla ngemihla ngokulula nangona imeko yakho imbi.
- Ukuzilolonga nokutya: Ukuzilolonga okuphakathi kunokukunceda uhlale unamandla. Kodwa ukuzilolonga kufuneka kwenziwe kuphela phantsi kweliso likagqirha wakho okanye ingcali yezonyango. Ukutya okunesondlo kunokunceda ukuthintela ukutyeba okungeyomfuneko.
Ukuphila ne-CIDP kunye nembono
Xa uxilongwa nge-CIDP, ungaziva uxinezelekile. Yinto eqhelekileyo leyo. Kubalulekile ukuhlala unxibelelana nogqirha wakho kwaye uthethe ngeempawu zakho kunye nonyango lwakho.
Isilumkiso seNgxamiseko: Ukuba ufumana ubunzima bokuphefumla, yiya kwiSebe leNgxamiseko (i-ETU) lesibhedlele esikufutshane ngoko nangoko.
Kukwabaluleke kakhulu ukufuna uncedo lweengcali ukuze ulawule iintlungu kwaye ufumane isiqabu sengqondo. Usapho lwakho, abahlobo, kunye neqela lakho lezonyango baya kuba ngumthombo omkhulu wamandla kuwe kolu hambo.
Ngokuphathelele imbonakalo, ixhomekeke kwiminyaka yakho, uhlobo lwesifo, indlela unyango oluqalwa ngayo kwangethuba, kunye nendlela umzimba wakho osabela ngayo kunyango.Iindaba ezimnandi zezokuba ngonyango, malunga nama-90% abantu bayaphila. Abanye abantu banokubuya kweempawu. Nangona kunjalo, i-CIDP ayisoloko inciphisa ixesha lokuphila.
Umyalezo Wokuya Ekhaya
- I-CIDP yimeko engaqhelekanga, ehlala ixesha elide apho amajoni omzimba ahlasela imithambo-luvo yawo.
- Uphawu oluphambili kubuthathaka bemisipha kunye nokuba ndindisholo okwanda kancinci kancinci kwiinyanga ezimbalwa.
- Esi asisosifo esosulelayo, kwaye unobangela ochanekileyo awukafunyanwa.
- Ukuba unale mpawu, kubalulekile ukubona ugqirha ngokukhawuleza. Ukuxilongwa kwangoko kunye nonyango kunokuthintela ukonakala kwemithambo-luvo.
- Ngonyango olufanelekileyo, abantu abaninzi banokuphila ubomi obulungileyo, kwaye oku akusoloko kuyisifo esisongela ubomi.
I-CIDP, i-neuropathy, ukungaziva, ubuthathaka bemisipha, i-myelin, i-Guillain-Barre syndrome, unyango lwe-immunotherapy, izifo ze-autoimmune, i-CIDP sinhala
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