Ngezinye izikhathi sizwa ukuqaqamba esandleni noma onyaweni olulodwa, bese kunyamalala ngokwako ngemva kwesikhashana, akunjalo? Kodwa cabanga, uma izandla nezinyawo zakho ziphelelwa amandla kancane kancane, ziqala ukuzizwa zingaphilile, futhi isimo sikhula kancane kancane esikhathini esingaphezu kwezinyanga ezimbili? Lesi ngesinye sezimpawu eziyinhloko zesimo sezinzwa esingavamile esibizwa ngokuthi i-CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Nakuba igama liyinkimbinkimbi kancane, masiliqonde kalula. Nakuba lesi yisifo esingavamile, kubaluleke kakhulu ukuthi wonke umuntu aqaphele lokhu.
Kalula nje, iyini i-CIDP?
I-CIDP yisimo sesikhathi eside esenzeka lapho amasosha omzimba ethu (uhlelo olusivikela ezifweni ) ehlasela ngephutha imizwa yethu. Ngokukhethekile, ilimaza isembozo sokuvikela esizungeze imizwa (esibizwa ngokuthi i-myelin ). Cabanga ngalesi sembozo njengesimbozo sepulasitiki esizungeze ucingo lukagesi . Uma lesi sembozo sonakele, imizwa ayithumeli imiyalezo ebuchosheni nakwezinye izingxenye zomzimba ngendlela efanele. Yilokho okubangela izimpawu ezifana nobuthakathaka kanye nokungazweli ezithweni.
Nakuba lesi sifo singavela kunoma yimuphi ubudala, sivame kakhulu kubantu abadala nabesilisa.
Uyini umehluko phakathi kwe-CIDP kanye ne-Guillain-Barre syndrome (GBS)?
Cishe uke wezwa nge-Guillain-Barre syndrome ( GBS ). Zombili lezi zifo zithinta imizwa futhi zinezimpawu ezifanayo. Kodwa kunomehluko ocacile phakathi kwalezi ezimbili.
- I-Guillain-Barre Syndrome (GBS): Lokhu kuvame ukuqala ngokuzumayo ezinsukwini ezimbalwa ngemva kokutheleleka, njengobuhlungu besisu. Kodwa ngokwelashwa, kungenzeka kakhulu ukuthi ilulame ngokushesha.
- I-CIDP: Lesi yisimo sesikhathi eside esikhula izinyanga eziningi ngaphandle kokuxhumana nanoma yikuphi ukutheleleka. I-GBS ayivamile ukuqhubekela phambili ibe yi-CIDP ngaphandle kokwelashwa.
Ziyini izimpawu ze-CIDP?
Izimpawu ze-CIDP azifani kuwo wonke umuntu. Zingahluka kuye ngohlobo lwe-CIDP onalo. Ngokuvamile, ungase uzwe ukukhathala okukhulu, ukungabi namizwa, nobuhlungu. Lokhu kungabangela ukuthi ukusabela kwakho kuhambe kancane futhi izingalo nemilenze yakho kube buthakathaka.
Uphawu oluyinhloko nolubonakala kuqala ukwanda kancane kancane kwemisipha esikhathini esingangezinyanga ezimbili noma ngaphezulu.Ubuthakathaka bemisipha . Lobu buthakathaka buthinta izinhlangothi zombili zomzimba. Ngokuqondile:
- Izinqe namathanga
- Amahlombe nezingalo ezingaphezulu
- Izandla
- Izinyawo
Ngaphezu kwalesi sibonakaliso esiyinhloko, ezinye izimpawu zingabonakala:
- Ukuwohloka kwemisipha: Imisipha iyancipha futhi ibe mincane.
- I-Paresthesia: Umuzwa wokuba ndikindiki noma ukuqaqamba kweminwe.
- Ubunzima bokuhamba: Ukulahlekelwa ibhalansi kanye nokungakwazi ukuhamba kahle.
- Ubuhlungu be-neuropathic: Ubuhlungu obukhulu obubangelwa izinkinga ohlelweni lwezinzwa.
- Izimpendulo ezibuthakathaka (Izinkinga zemisipha ejulile): Uma udokotela eshaya idolo ngesando esincane, impendulo iyanyamalala, njengokungathi umlenze uyanwetshwa.
Akuvamile kakhulu, ubunzima bokugwinya (i-dysphagia) kanye nokubona kabili kwesikhashana (i-diplopia) nakho kungase kwenzeke.
Ukuze usole i-CIDP, lezi zimpawu kumele ziqhubeke okungenani amasonto ayi-8 .
Ingabe kunezinhlobo ezahlukene ze-CIDP?
Yebo, i-CIDP ingahlukaniswa ngezinhlobo eziningana eziyinhloko ngokusekelwe ezimpawini. Leli thebula lolwazi lizokunikeza umbono ocacile.
| Uhlobo lwe-CIDP | Izici eziyinhloko |
|---|---|
| I-CIDP evamile | Iningi labantu linalolu hlobo, okubangela izinkinga zezinzwa njengobuthakathaka bemisipha kanye nokungazweli okuthinta izinhlangothi zombili zomzimba. |
| I-Multifocal motor neuropathy | Ubuthakathaka bemisipha buvela ohlangothini olulodwa lomzimba noma ezindaweni ezithile (ezingenakulinganiswa). |
| Isifo sikaLewis-Sumner | Kokubili ubuthakathaka bemisipha nezinkinga zezinzwa kwenzeka ohlangothini olulodwa lomzimba. |
| I-CIDP ehlanzekile enomuzwa | Akukho ubuthakathaka bemisipha, kodwa kukhona ukungakhululeki, ubuhlungu, kanye nobunzima bokuhamba. |
| I-CIDP yemoto emsulwa | Azikho izinkinga zezinzwa, kodwa kukhona ubuthakathaka bemisipha kanye nokulahlekelwa impendulo kuzo zombili izinhlangothi zomzimba. |
Futhi, odokotela bahlukanisa lesi sifo ngezigaba ezintathu ngokusekelwe endleleni esiziphatha ngayo:
- Okuqhubekayo: Izimpawu ziya ngokuya ziba zimbi ngokuhamba kwesikhathi.
- Ukuphindaphinda: Izimpawu ziyavela, ziyanyamalala, bese ziphinde zivele.
- Isifo esisodwa: Lesi sifo senzeka kanye kuphela empilweni. Siyaphela ngemva kweminyaka engaba ngu-1-3.
Yini ebangela i-CIDP? Ingabe iyathelelana?
Imbangela eqondile ye-CIDP ayikakaziwa, kodwa siyazi ukuthi ibangelwa ukuvuvukala kwemizwa nezimpande zemizwa. Njengoba kushiwo ngaphambili, lokhu kulimaza i-myelin sheath ezungeze imizwa.
Into ebaluleke kakhulu ukuthi i-CIDP ayisona isifo esithelelanayo. Awukwazi ukusithola komunye umuntu, futhi awukwazi ukusithola komunye umuntu.
Kwenziwa kanjani ukuxilongwa?
Akukho ukuhlolwa okuqondile kwe-CIDP. Ngakho-ke, udokotela wakho uzoqala ngokubuza ngezimpawu zakho (ukuthi zaqala nini, ukuthi uzizwa kanjani), bese enza ukuhlolwa ngokomzimba futhi ancome ukuhlolwa okumbalwa ukuze athole ukuthi yini ngempela engalungile ngemizwa yakho futhi anqume ezinye izimo.
Lezi zivivinyo zingafaka:
- Ukuhlolwa kwegazi nomchamo.
- Ucwaningo lokuqhutshwa kwemizwa kanye ne-Electromyogram (EMG): Lokhu kufuna umonakalo ezinzwa kanye nasesikhwameni se-myelin.
- Ukubhoboza i-Lumbar: Kuthathwa inani elincane loketshezi emgogodleni ukuze kuhlolwe amazinga aphezulu amaprotheni, avame kakhulu ku-CIDP.
- I-biopsy yemizwa: Ingcezu encane yezicubu ithathwa emthanjeni bese ihlolwa ngaphansi kwe-microscope.
- I-MRI scan: Ingahlola ukuvuvukala kwezimpande zemizwa.
Kubaluleke kakhulu: Kubalulekile ukuxilonga lesi sifo kusenesikhathi bese uqala ukwelashwa.Kubalulekile. Kungavimbela ukulimala kwemizwa. Uma kungelashwa, izimpawu zingaba zimbi kakhulu, ngezinye izikhathi kuze kudingeke ukuthi kusetshenziswe isihlalo sabakhubazekile.
Yiziphi izindlela zokwelapha?
Abantu abaningi badinga ukwelashwa. Uma ukwelashwa kuqala ngokushesha, kulapho amathuba okululama ngokugcwele eba ngcono khona.
Izinhlobo zemithi
- Ama-Corticosteroids: Lena imithi yohlobo lwe-steroid enciphisa ukuvuvukala futhi ilawule ukusebenza kwesimiso somzimba sokuzivikela.
- Ukwelashwa Ngezifo Ezingalawuleki: Le mithi ivimba amasosha omzimba ekuhlaseleni i-myelin.
- I-Biologics: Izidakamizwa ezifana ne-Vyvgart, uhlobo olusha lwezidakamizwa olusanda kuvunyelwa, nazo zisetshenziselwa le njongo.
Ukwelashwa okuqondile
- I-Intravenous immunoglobulin (IVIG): Unikezwa umjovo wohlobo oluhlanganisiwe lwama-antibodies ahlukaniswe egazini labantu abaphilile. Lokhu kusiza ukulawula ukungasebenzi kahle kwesimiso sakho somzimba sokuzivikela.
- Ukushintshaniswa kwe-Plasma (PE): Lokhu kuhilela ukuthatha igazi lakho, ukulithumela ngomshini okhethekile, ukususa i-plasma yegazi equkethe ama-antibodies ayingozi, bese ubuyisela igazi elihlanzekile emzimbeni wakho.
- Ukufakelwa kwamaseli esiqu: Kulokhu kwelashwa okungavamile kakhulu, amaseli esiqu aphilile ayafakwa ukuze "avuselele" isimiso somzimba sokuzivikela.
Ezinye izindlela zokwelapha ezisekelayo
- Ukwelashwa ngokomzimba: Lokhu kusiza kakhulu ekubuyiseleni amandla alahlekile, ukuhamba, kanye nokuthuthukisa ibhalansi.
- Ukwelashwa Kwabasebenzi: Kukufundisa indlela yokwenza imisebenzi yansuku zonke kalula naphezu kwesimo sakho.
- Ukuzivocavoca nokudla: Ukuzivocavoca okulingene kungakusiza uhlale unamandla. Kodwa ukuzivocavoca kufanele kwenziwe kuphela ngaphansi kokuqondisa kukadokotela wakho noma uchwepheshe wezokwelapha umzimba. Ukudla okunempilo kungasiza ekuvimbeleni ukukhuluphala okungadingekile.
Ukuphila ne-CIDP kanye nombono ovulekile
Uma uthola ukuxilongwa kwe-CIDP, ungase uzizwe ukhungathekile. Lokho kuvamile. Kubalulekile ukuxhumana nodokotela wakho futhi uxoxe ngezimpawu zakho kanye nokwelashwa kwakho.
Isexwayiso Esiphuthumayo: Uma ubhekene nobunzima bokuphefumula, hamba ngokushesha eMnyangweni Wezimo Eziphuthumayo (ETU) wesibhedlela esiseduze.
Kubaluleke kakhulu futhi ukufuna usizo lochwepheshe ukuze uphathe ubuhlungu futhi uthole impumuzo yengqondo. Umndeni wakho, abangani, kanye nethimba lakho lezokwelapha bazoba umthombo omkhulu wamandla kuwe kulolu hambo.
Ngokuphathelene nombono, kuncike eminyakeni yakho, uhlobo lwesifo, ukuthi ukwelashwa kuqala kanjani, nokuthi umzimba wakho usabela kanjani ekwelashweni.Izindaba ezinhle ukuthi ngokwelashwa, cishe abantu abangu-90% bayalulama. Abanye abantu bangase babuyelwe yizimpawu. Kodwa-ke, i-CIDP ayivamisile ukufinyeza isikhathi sokuphila.
Umlayezo Wokuya Nawe Ekhaya
- I-CIDP yisimo esingavamile, sesikhathi eside lapho amasosha omzimba ehlasela khona izinzwa zawo.
- Uphawu oluyinhloko ubuthakathaka bemisipha kanye nokungazweli okukhula kancane kancane ezinyangeni eziningana.
- Lesi akusona isifo esithathelwanayo, futhi imbangela eqondile ayikatholakali.
- Uma unalezi zimpawu, kubalulekile ukubona udokotela ngokushesha. Ukuxilongwa kusenesikhathi kanye nokwelashwa kungavimbela ukulimala kwemizwa.
- Ngokwelashwa okufanele, abantu abaningi bangaphila impilo enhle, futhi lokhu akuvamile ukuba yisifo esisongela ukuphila.
I-CIDP, i-neuropathy, ukuba ndikindiki, ubuthakathaka bemisipha, i-myelin, i-Guillain-Barre syndrome, ukwelashwa nge-immunotherapy, izifo ezizimele, i-CIDP sinhala
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