Koj puas muaj tej lub sij hawm koj muaj teeb meem taug kev, koj txhais ceg tsis muaj zog, lossis koj nkees tas li yam tsis muaj laj thawj? Koj puas xav tias cov tsos mob no tsis pib sai sai, tab sis maj mam nce zuj zus? Yog li ntawd, nws yog ib qho tseem ceeb heev rau koj kom paub txog tus mob no hu ua PPMS uas peb tab tom tham txog hnub no. Txawm hais tias qhov no yog ib qho teeb meem nyuaj me ntsis, peb yuav tham txog nws yooj yim heev, hauv txoj kev uas koj nkag siab tau.
PPMS yog dab tsi yooj yim?
Zoo, ua ntej cia peb saib seb PPMS yog dab tsi. Lo lus PPMS sawv cev rau 'Primary Progressive Multiple Sclerosis' . Qhov no yog ib hom kab mob 'Multiple Sclerosis' ( MS ).
Hais yooj yim xwb, Multiple Sclerosis (MS) yog ib yam mob uas peb lub cev tiv thaiv kab mob , lub cev uas tiv thaiv peb ntawm kab mob, ua yuam kev tawm tsam peb lub paj hlwb. Qhov no cuam tshuam kev ntws ntawm cov ntaub ntawv ntawm lub hlwb, tus txha caj qaum, thiab lwm qhov ntawm lub cev.
Tam sim no muaj ob hom MS tseem ceeb.
1. Kev Rov Mob Dua-Kev Rov Mob Dua (RRMS): Qhov no yog thaum cov tsos mob tshwm sim sai sai (peb hu qhov no ua 'rov mob dua'), tom qab ntawd ib pliag cov tsos mob zoo dua lossis ploj mus tag ('kev zam txim'). Nws zoo li los nag, nws los sai sai, nws poob, thiab tom qab ntawd rov qab los dua.
2. Mob MS Qib Pib (PPMS): Hom uas peb tab tom tham txog hnub no, PPMS, yog ib zaj dab neeg txawv. Hauv no, cov tsos mob tsis tshwm sim sai sai thiab tom qab ntawd ploj mus. Hloov chaw, cov tsos mob maj mam zuj zus tuaj. Zoo li nag me ntsis, nws ntub me ntsis thiab tom qab ntawd ntub heev. Qee zaum, cov tsos mob tuaj yeem tshwm sim, tab sis qhov ntawd tsis tshua muaj.
Kwv yees li ntawm 10% ntawm cov neeg mob MS muaj hom MS no, hu ua PPMS.
Cov tsos mob tseem ceeb ntawm PPMS yog dab tsi?
Hauv PPMS, cov tsos mob yuav tsis pom tseeb thaum xub thawj. Tab sis dhau sijhawm, lawv yuav hnyav dua. Cov tsos mob no tuaj yeem txawv ntawm ib tus neeg mus rau ib tus neeg. Cia peb saib cov tsos mob tseem ceeb uas koj yuav ntsib.
| Cov tsos mob | Ib qho lus piav qhia yooj yim |
|---|---|
| Kev taug kev nyuaj | Qhov no yog cov tsos mob feem ntau ntawm PPMS. Nws tuaj yeem nyuaj rau taug kev vim yog qhov tsis muaj zog, mob nqaij, lossis poob qhov sib npaug ntawm ob txhais ceg. |
| qaug zog ntau zaus | Txawm tias pw tsaug zog zoo thiab tsis ua dab tsi los xij, koj tseem nkees heev. Qhov no yog qhov qaug zog ntau dua li qhov koj ib txwm qaug zog. |
| Kev tsis muaj zog lossis tsis muaj kev xav hauv cov ceg | Koj yuav hnov mob loog, mob pob qij txha, lossis tsis muaj kev xav ntawm ntau qhov ntawm koj lub cev, tshwj xeeb tshaj yog koj txhais tes thiab taw. |
| Kev hloov pauv ntawm qhov muag pom kev | Tej zaum yuav pom tsis meej, pom ob sab, lossis mob qhov muag. |
| Cov leeg nqaij tawv lossis tsis muaj zog | Cov leeg nqaij yuav tawv (spasticity), ua rau nws nyuaj rau khoov thiab txo qhov khoov. Lub zog ntawm cov leeg nqaij kuj txo qis. |
| Teeb meem ntawm cov zis thiab cov hnyuv | Tej zaum yuav muaj teeb meem xws li xav tso zis tam sim ntawd, tsis tuaj yeem tswj tau kev tso zis, lossis nyuaj rau tso zis. |
| Teeb meem kev xav thiab kev nco (Brain Fog) | Tej yam xws li nyuaj rau tsom ntsoov, tsis nco qab, thiab nyuaj rau nrhiav cov lus. |
Qhov tseem ceeb tshaj plaws yog, tsis txhob xav tias koj muaj PPMS tsuas yog vim koj muaj ib lossis ob qho ntawm cov tsos mob no. Cov tsos mob no kuj tuaj yeem pom hauv ntau lwm yam mob. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum mus ntsib kws kho mob kom paub tseeb tias koj mob.
Vim li cas PPMS thiaj tshwm sim? Dab tsi yog qhov ua rau?
Qhov tseeb, qhov ua rau MS lossis PPMS tseem tsis tau paub meej, tab sis cov kws tshawb fawb ntseeg tias nws yog kev sib xyaw ua ke ntawm ntau yam.
- Kev mob caj ces: Yog tias ib tug neeg hauv koj tsev neeg muaj MS, koj muaj feem yuav mob MS me ntsis thiab. Tab sis qhov no yog ib qho kev pheej hmoo me me xwb. Qhov no txhais tau tias nws tsis zoo li cov menyuam yuav mob vim lawv niam lawv txiv muaj MS.
- Tej yam ib puag ncig: Kev raug rau qee yam kab mob lossis cov kab mob bacterial kuj ntseeg tias muaj qee yam cuam tshuam rau kev loj hlob ntawm MS.
- Kev ua kom lub cev tiv thaiv kab mob ua haujlwm: Raws li peb tau hais ua ntej, qhov tshwm sim ntawm no yog tias peb lub cev tiv thaiv kab mob ua rau lub plhaub tiv thaiv ('myelin sheath') nyob ib puag ncig peb cov hlab ntsha puas tsuaj. Qhov kev puas tsuaj no cuam tshuam kev xa cov lus los ntawm cov hlab ntsha.
Yuav kuaj mob PPMS li cas?
Tsis muaj ib qho kev kuaj mob twg uas tuaj yeem lees paub PPMS. Tus kws kho mob kuaj mob los ntawm kev saib xyuas koj cov tsos mob, keeb kwm kev kho mob, thiab cov txiaj ntsig ntawm ntau qhov kev kuaj mob. Qhov no txhais tau tias nws yog ib qho txheej txheem uas siv sijhawm me ntsis.
Nov yog qee qhov kev ntsuam xyuas tseem ceeb uas tau ua.
| Kev Ntsuas | Koj pom dab tsi hauv qhov no? |
|---|---|
| Kev kuaj MRI | Qhov no pab nrhiav cov qhov txhab hauv cov hlab ntsha ntawm lub hlwb thiab tus txha caj qaum. Qhov no yog ib qho kev kuaj mob tseem ceeb hauv kev kuaj mob PPMS. |
| Kev Siv Lub Plab Hlav | Muab ib rab koob me me ntxig rau hauv tus txha caj qaum kom tshem tawm me ntsis cov kua dej hauv hlwb thiab kuaj xyuas seb puas muaj cov protein tshwj xeeb ('oligoclonal bands') uas pom hauv MS. |
| Kev Ntsuas Ntshav | Yuav kuaj ntshav kom paub tseeb tias tsis muaj lwm yam mob (piv txwv li, tsis muaj vitamin txaus, lwm yam kab mob autoimmune) uas yuav ua rau muaj cov tsos mob no. |
| Kev kuaj mob Optical Coherence Tomography (OCT) | Qhov no yog kev ntsuas uas tsis mob. Nws yog siv los ntsuas qhov kev puas tsuaj rau cov hlab ntsha ntawm sab nraub qaum ntawm lub qhov muag (cov hlab ntsha optic). MS kuj tseem tuaj yeem ua rau cov hlab ntsha no puas tsuaj. |
Feem ntau PPMS raug kuaj pom thaum muaj hnub nyoog 40 thiab 50 xyoo, tab sis tus mob no tuaj yeem tshwm sim thaum twg los tau.
Cov kev kho mob rau PPMS yog dab tsi?
Tseem tsis tau muaj tshuaj kho tau PPMS. Txawm li cas los xij, muaj cov kev kho mob uas tuaj yeem ua rau tus kab mob qeeb zuj zus thiab ua rau lub neej yooj yim dua los ntawm kev tswj cov tsos mob.
Kev kho mob muaj ob ntu tseem ceeb:
1. Kev Kho Mob Hloov Kho Kab Mob (DMTs)
Cov tshuaj no ua haujlwm los ntawm kev ua kom qeeb qeeb qhov kev puas tsuaj rau cov hlab ntsha uas tshwm sim los ntawm tus kab mob thiab ua kom qeeb qeeb qhov kev mob hnyav zuj zus. Ib qho ntawm cov DMTs tseem ceeb uas tau pom zoo rau PPMS yog ocrelizumab (Ocrevus®) . Cov tshuaj no tuaj yeem pab tswj qhov kev mob hnyav zuj zus, rau qee qhov.
2. Kev Tswj Xyuas Cov tsos mob
Qhov no tseem ceeb heev. Muaj ntau yam kev kho mob siv los tswj cov tsos mob uas cuam tshuam rau lub neej txhua hnub.
- Kev Kho Mob Lub Cev : Kev tawm dag zog thiab lwm yam kev kho mob muab kev pab txo qhov mob ntawm cov leeg nqaij, tsis muaj zog, thiab teeb meem sib npaug .
- Kev Kho Mob Ua Haujlwm: Qhia cov txheej txheem thiab cov cuab yeej siv los ua kom yooj yim dua rau cov haujlwm txhua hnub (piv txwv li, hnav khaub ncaws, ua noj ua haus).
- Tshuaj: Koj tus kws kho mob yuav sau ntawv rau ntau yam tshuaj rau cov tsos mob xws li teeb meem tswj kev tso zis, mob, qaug zog, thiab kev nyuaj siab .
Koj tus kws kho mob yuav tsim ib txoj kev npaj kho mob uas haum rau koj. Ua ntej pib kho mob, nrog koj tus kws kho mob tham txog cov kev mob tshwm sim uas yuav tshwm sim.
Yuav tsum xav li cas thaum nyob nrog PPMS?
PPMS yog ib yam mob uas muaj feem cuam tshuam loj heev rau koj lub neej txhua hnub. Thaum cov tsos mob zuj zus tuaj, koj yuav tsum tau hloov qee yam kom koj muaj kev nyab xeeb thiab zam kev raug mob.
Piv txwv li, tej zaum koj yuav tau siv lub cuab yeej taug kev lossis lub rooj zaum muaj log thaum koj muaj teeb meem taug kev. Nco ntsoov tias, kev siv cov no tsis yog kev swb, nws yog ib txoj hauv kev los tswj koj txoj kev ywj pheej thiab pab koj ua tej yam koj xav tau ua.
Kev nyob nrog tus kab mob ntev li no tuaj yeem ua rau koj lub cev thiab lub hlwb puas tsuaj. Nws yog ib qho ib txwm muaj uas yuav tu siab thiab ntxhov siab. Thaum lub sijhawm zoo li no, tham nrog tus kws pab tswv yim kev noj qab haus huv ntawm lub hlwb thiab qhia koj txoj kev xav rau ib tus neeg uas koj ntseeg siab yuav yog qhov kev nplij siab zoo heev.
PPMS tsis cuam tshuam ncaj qha rau lub neej, tab sis cov teeb meem ntawm tus kab mob tuaj yeem cuam tshuam rau lub neej zoo.
Kuv yuav tsum mus ntsib kws kho mob thaum twg?
Yog tias koj muaj PPMS, nws yog ib qho tseem ceeb uas yuav tsum tau sib cuag nrog koj tus kws kho mob tsis tu ncua. Nrhiav kev pab tswv yim kho mob, tshwj xeeb tshaj yog tias:
- Yog tias koj cov tsos mob hnyav heev uas cuam tshuam rau koj cov dej num txhua hnub.
- Yog tias muaj kev tuag tes tuag taw, mob tas li lossis loog ntawm ceg.
- Yog koj ntog thiab raug mob vim tsis muaj zog, mus rau ETU (Emergency Treatment Unit) tam sim ntawd.
- Yog tias cov kev mob tshwm sim ntawm kev kho mob hnyav heev.
Cov lus nug uas yuav tsum nug koj tus kws kho mob
- Kuv puas muaj PPMS lossis lwm hom MS?
- Kuv yuav tswj kuv cov tsos mob li cas?
- Kuv puas xav tau kev kho lub cev lossis kev kho mob ua haujlwm?
- Cov kev mob tshwm sim ntawm cov tshuaj uas koj pom zoo yog dab tsi?
- Kuv puas yuav xav tau ib yam khoom pab txhawb kev txav mus los xws li lub rooj zaum muaj log?
Cov Lus Qhia Txog Kev Coj Mus Tsev
- PPMS yog ib hom MS uas cov tsos mob tsis tshwm sim sai sai, tab sis maj mam zuj zus tuaj.
- Tsis muaj ib yam ua rau mob thiab tsis muaj kev kho, tab sis muaj cov kev kho mob zoo heev los qeeb qhov kev loj hlob ntawm tus kab mob thiab tswj cov tsos mob.
- Yuav tsum muaj ntau yam kev kuaj mob, xws li kev luam theej duab MRI thiab kev ntsuas tus txha nqaj qaum, rau kev kuaj mob.
- Nrog kev kho mob thiab kev hloov pauv hauv lub neej, koj tuaj yeem tswj hwm koj cov tsos mob thiab ua neej nyob tau zoo.
- Yog koj pom muaj kev hloov pauv ntawm koj cov tsos mob lossis muaj kev txhawj xeeb, nrog koj tus kws kho mob tham tam sim ntawd.
👩🏽⚕️ Cov Lus Nug Ntxiv (FAQs)
💬 PPMS (Primary Progressive Multiple Sclerosis) yog hom kab mob dab tsi?
PPMS yog ib yam kab mob loj heev (MS) uas tshwm sim thaum peb lub cev tiv thaiv kab mob tawm tsam lub myelin sheath (lub plhaub ntawm cov hlab ntsha) hauv peb lub hlwb thiab tus txha caj qaum. Nws tsis tshwm sim sai sai, tab sis maj mam zuj zus mus raws sijhawm, ua rau tus neeg mob tsis muaj peev xwm taug kev thiab ua haujlwm.
💬 Cov tsos mob thawj zaug ntawm PPMS yog dab tsi?
Thaum pib mob, koj yuav hnov qhov hnyav ntawm koj ob txhais ceg, loog, thiab qaug zog sai sai. Koj yuav feem ntau poob koj qhov sib npaug thiab ntog thaum taug kev. Cov tsos mob no yuav maj mam nce ntxiv txhua hnub thiab yuav tsis ploj mus.
💬 Puas kho tau tus kab mob no kom zoo tag nrho?
Tu siab kawg li, tseem tsis tau muaj tshuaj kho tau PPMS. Txawm li cas los xij, cov tshuaj tshiab (Ocrelizumab) thiab kev kho lub cev tuaj yeem pab tswj kev mob hnyav mus rau qhov zoo thiab pab tus neeg mob kom zoo.
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