Ufuna ukwazi nge-Amniotic Band Syndrome, isimo esiyingozi lapho amabhande embozwa khona ingane yakho?

Uhlala ucabanga ngenhlalakahle yengane yakho ngesikhathi sokukhulelwa, akunjalo? Ngezinye izikhathi, uma ubona into encane ngesikhathi sokuhlolwa, uzizwa wesaba kakhulu. Yileyo ndlela omama abaningi abakhathazeka ngayo, kodwa uma unolwazi olufanele, lesi simo esibizwa ngokuthi i-amniotic band syndrome singalawuleka. Ake sixoxe ngakho kalula, ngendlela ongayiqonda.

Iyini i-Amniotic Band Syndrome?

Kalula nje, lokhu kwenzeka lapho imichilo emincane yoketshezi oluvela esikhwameni se-amniotic (esikubiza ngokuthi "i-Amniotic Sac") esizungeze umntwana osesiswini igoqa umzimba womntwana. Cabanga ngomntwana njengofana nebhaluni eligcwele amanzi. Uma ulwelwesi oluthambile ngaphakathi kwe-amnion lonakele nganoma iyiphi indlela, lungaqhekeka lube yizicucu ezifana nentambo noma njengebhande bese luntanta ngaphakathi kwesikhwama se-amniotic. Yilokhu esikubiza ngokuthi "ama-Amniotic Bands". La machilo antantayo, njengebhola lentambo, angaboshelwa engalweni, emlenzeni, emunweni, noma kwenye ingxenye yomzimba womntwana osesiswini. Uma la machilo eboshelwa ngokuqinile, ukugeleza kwegazi kuleyo ngxenye kuyancishiswa, ngezinye izikhathi kuze kume ngokuphelele. Khona-ke leyo ngxenye ayikhuli kahle. Ngezinye izikhathi lokhu kungathinta izitho zangaphakathi zomntwana ngisho nentambo yesisu. Lokhu kungaholela ezifweni zokuzalwa (Congenital Disorders) futhi, ezimweni ezimbi kakhulu, ukunqunywa. Ubunzima besimo buxhomeke ekutheni imichilo iboshelwe ngokuqinile kangakanani nokuthi iboshelwe kuphi emzimbeni womntwana. Ezinye izingane zingaba namathegi esikhumba amancane, aqinile lapho zizalwa. Kodwa-ke, ezinye izingane zingase zizalwe zingenazo izingalo, imilenze, noma iminwe. Uma la mabhande enqamula igazi lomntwana elivela ku-placenta, kungaba yingozi empilweni. Odokotela ngezinye izikhathi bangaxilonga lesi simo nge-ultrasound scan ngesikhathi sokukhulelwa. Kodwa-ke, isikhathi esiningi, lokhu akuqinisekiswa kuze kube yilapho umntwana ezelwe. Lesi simo asivamile kakhulu. Sivela cishe koyedwa kwabangu-1,200 kuya kwabangu-15,000 abazalwa bephila. Saziwa nangokuthi:

• Uchungechunge lwe-Amniotic Band
• Isifo Sokucinana Kwebhande/Amasongo
• Inkimbinkimbi Yokuphazamiseka Kwebhendi Ye-Amniotic
• Amabhande/Amasongo Okunciphisa Azalwa Nawo
• I-ADAM Complex `(I-ADAM Complex - Ukukhubazeka kwe-Amniotic/ Ukunamathela /Ukulimala kwezicubu)`
• I-Streeter Anomaly

Ziyini izimpawu zalokhu? Ungakubona kanjani?

Izimpawu zalesi simo zincike kakhulu ekutheni intambo iboshwe kuphi emzimbeni womntwana nokuthi iboshwe kangakanani.Cishe amaphesenti angama-80 ezimo athinta izingalo nemilenze. Kodwa la mabhande angaphinde ahlangane ekhanda, entanyeni nasesiswini. Ngezinye izikhathi lokhu akukubi kangako. Kunciphisa kuphela ukugeleza kwegazi ebusweni besikhumba. Khona-ke lapho umntwana ezalwa, kungase kube nezinto ezifana namasongo okugoba esikhumbeni, noma ukukhubazeka okuncane ezithweni. Kodwa ngezinye izikhathi la mabhande ahlangana kakhulu futhi ngokujulile kangangokuthi ukugeleza kwegazi kuleso sitho noma ingxenye yomzimba kunqanyulwe ngokuphelele. Khona-ke leyo ngxenye ingalahleka, ukunikezwa kwegazi kulahleke, futhi ngezinye izikhathi izinkinga ezisongela ukuphila zingavela. Ezinye izimpawu ezingabonakala kulesi simo yilezi:

• Ukuzalwa ungenazo izingalo, imilenze, noma iminwe.
• Iminwe enamathelene (Syndactyly). Kungase kube nesikhumba phakathi kweminwe, njengeyedada.
• Izingalo zimfushane futhi azikakhuli kahle.
• Ukuvuvukala lapho izintambo ziboshelwe khona.
• I-Clubfoot .
• Umlomo Ocwebezelayo kanye Nomlomo Ocwebezelayo .
• Ukukhubazeka kwamathambo, njenge-scoliosis.
• I-Choanal Atresia (ukukhula okungaphelele kwamakhala). Lokhu kungenza kube nzima ngengane ukuphefumula.
• Amehlo amancane kakhulu noma angakakhuli kahle (i-Microphthalmia).

Yiziphi izinkinga ezingabangelwa yilokhu?

I-Amniotic band syndrome ingabangela izinkinga eziningana, ezinye zazo ezingaba khona impilo yonke. Ezinye izinkinga zimbi kakhulu futhi zisongela ngisho nokuphila. Isibonelo:

• Izimbobo ekhanda (i-Encephalocele). Kulesi simo, ingxenye yobuchopho ingaphuma ekhanda.
• Izimbobo noma ukukhubazeka ezindongeni zesisu noma zesifuba.
• Ukulimala kwezinhlelo ezibalulekile njengohlelo lokugaya ukudla noma uhlelo lwe-genitourinary .
• Izinkinga ezingaba khona uma lezi zintambo zibhajwa entanjeni yesisu futhi zivimbele ukugeleza kwegazi lomntwana.

Lesi simo sivame ukubangela ukuthi umntwana azalwe ngaphambi kwesikhathi. Ukuzalwa ngaphambi kwesikhathi kunezingozi zako. Kukhona futhi nengozi yokuphuphuma kwesisu noma ukuzalwa efile. Izingane ezinalesi simo zingadinga ukwelashwa ngokomzimba kanye nokwelashwa ngomsebenzi iminyaka eminingi, noma kuze kube yilapho zijwayela izinselele zokulahlekelwa yizitho zomzimba noma ukukhula okulinganiselwe.

Kungani kwenzeka i-amniotic band syndrome (ABS)? Ziyini izimbangela?

Izifundo eziningi zibonisa ukuthi asikho isizathu esicacile nesiqondile salokhu.Kucatshangwa ukuthi kubangelwa kakhulu ukulimala kwengqimba yangaphakathi ye-amnion (isikhwama samanzi esizungeze umntwana). Ezinye zezimbangela ezingaba khona zokulimala kwalesi sikhwama samanzi zifaka:

• Ezinye izivivinyo zenziwa ngesikhathi sokukhulelwa , njenge-Chorionic Villus Sampling (CVS) noma i-Amniocentesis. Lokhu kuhilela ukubhoboza isikhwama samanzi ngenaliti bese uthatha isampula yoketshezi noma izicubu zengane. Kodwa-ke, akuvamile kakhulu ukuthi lezi zivivinyo zibangele ingozi.
• Ukuhlinzwa okukhulu okwenziwa embungwini osesibelethweni (Open Fetal Surgery). Lokhu kwenziwa kuphela ezimweni ezimbi kakhulu, ezisongela ukuphila.

Kodwa-ke, kwezinye izimo ze-amniotic band syndrome, isikhwama samanzi asonakali nhlobo. Ngakho-ke, abanye ochwepheshe bakholelwa ukuthi lokhu kungenxa yenkinga yokujikeleza kwegazi emzimbeni womntwana. Mhlawumbe ezinye izingane zinamathuba amaningi okuba nokujikeleza kwegazi okubi ngenxa yethonya lezakhi zofuzo.

Ubani osengozini enkulu yalesi simo?

Amathuba akho okuba nomntwana onalesi simo angase abe phezulu kancane uma:

• Uma unezinye izinkinga ngesikhathi sokukhulelwa.
• Uma unesifo esibizwa ngokuthi `(Vascular Ehlers-Danlos Syndrome)`.
• Uma ubhema ngesikhathi sokukhulelwa.
• Uma usebenzisa imithi ongazange uyinikezwe ngaphandle kweseluleko sikadokotela, noma uma uthatha imithi ethile ngesikhathi sokukhulelwa.

Ukuthola kanjani lokhu ngqo?

Udokotela uvame ukubona lesi simo ngemva kokuzalwa komntwana, lapho ehlola umntwana. Kodwa ngezinye izikhathi, izimpawu zalokhu zingabonakala ngesikhathi sokuhlolwa kwe-ultrasound ngesikhathi sokukhulelwa. Ukuhlolwa kungabonisa imigqa ebangelwa amabhande aqinile. Kodwa kaningi, ukuhlolwa kukhombisa ukuthi amalungu omzimba awatholakali, noma ukuthi izingxenye zomzimba azikakhuli kahle.

Lokhu kungabonakala ngokushesha kangakanani kuskeni?

Izimpawu ze-amniotic band syndrome ngezinye izikhathi zingabonakala emavikini angu-12 okukhulelwa, kodwa kunzima kakhulu. Esikhathini esiningi, udokotela wakho uzobona izimpawu zalokhu ngesikhathi sokuhlolwa kwe-anatomy, okwenziwa cishe emavikini angu-20. Uma kukhona ukungabaza, udokotela wakho angase acele ukuhlolwa okwengeziwe, njenge-MRI (Magnetic Resonance Imaging).

Yiziphi izindlela zokwelapha lokhu?

Ukwelashwa kuvame ukwenziwa ngemva kokuzalwa komntwana wakho. Uhlobo lokwelashwa luncike ekutheni itheyiphu yayikuphi nokuthi yayiqine kangakanani. Ezimweni ezincane, ukubhekwa eduze ngudokotela kungaba yikho kuphela okudingekayo.Kodwa uma lesi simo sinzima ngokwanele ukuthi sithinte izinzwa zengane, sidinga ukwelashwa ngokushesha. Ngezinye izikhathi ukuhlinzwa kungalungisa izinkinga ezifana ne-clubfoot, i-cleft lip kanye ne-palate, kanye ne-syndactyly. Izinsana nezingane ezinezitho ezilahlekile noma ezimfushane zingazuza nge-prosthetics. Ukwelashwa ngokomzimba kanye nokwelashwa komsebenzi kungabasiza ukuthi basebenzise lezi zitho zokwenziwa futhi bathuthukise ukusebenza kwazo konke.

Akuvamile kakhulu, udokotela angenza inqubo ebizwa ngokuthi i-fetoscopy yokukhipha isikhwama se-amniotic ngesikhathi umntwana esesesibelethweni. Umgomo walokhu kuhlinzwa ukukhulula isikhwama esiqinile nokuvimbela umonakalo owengeziwe. Kodwa-ke, le nqubo ingaba yingozi enkulu empilweni kumama nakumntwana. Lokhu kuvame ukwenziwa kuphela uma isikhwama siqinile kangangokuthi sisongela impilo.

Ingabe ingane ingasinda nalesi simo?

Yebo, izingane eziningi ziphila nalesi simo. Ukuthi ziyasinda noma cha kuncike ezintweni ezifana nokuthi izintambo zazikuphi nokuthi zaziqine kangakanani.

Ingabe la ma-amniotic bands ayaphela?

Cha. Ezimweni eziningi , ukuvaleka noma izibazi ezibangelwa ama-amniotic bands azipheli. Lokhu kuncike ekutheni ama-bands angene esikhumbeni ngokujule kangakanani. Buza udokotela wakho mayelana nokwelashwa okungenzeka kwalezi zinhlobo zama-backs.

Ingabe ikhona indlela yokuvimbela lokhu?

Empeleni ayikho indlela eqondile yokuvimbela i-amniotic band syndrome. Odokotela bakholelwa ukuthi isikhathi esiningi kwenzeka ngokungahleliwe, ngaphandle kwesizathu.

Yini esingayicabanga ngalesi simo esizayo? (I-Outlook)

Kubantwana abane-ABS emnene, isimo siba sibi. Izingane ezizalwa zinezinkinga ezithile zemilenze zivame ukuzivumelanisa kahle nezinhlelo zokufakelwa kanye nokuvuselelwa. Kodwa-ke, izingane ezinomonakalo omkhulu wezitho zomzimba kanye nokugeleza kwegazi okulinganiselwe ngentambo yesisu ngokuvamile azisindi. Cishe eyodwa kwezingu-70 ezizalwa zifile ibangelwa yi-amniotic band syndrome.

Yini okufanele uyenze uma ingane yakho ine-amniotic band syndrome?

Izingane ezinalesi simo zidinga ukwesekwa okuqinile nokunakekelwa kwesikhathi eside.Abazali, amalungu omndeni, kanye nodokotela bonke kudingeka basebenzisane ukusiza ingane yakho ukuba ivumelane nezinguquko ekubukekeni kanye nezinselele zokusebenza ezilethwa yilesi simo. Ingane yakho ingadinga ukubona ochwepheshe abahlukahlukene. Isibonelo, odokotela abahlinzayo bamathambo kanye nodokotela bezinzwa (kuye ngokuthi yiziphi izingxenye zomzimba ezithintekile). Amalungu omndeni kanye nezingane zakini bangathola nokusekelwa emaqenjini okusekela imindeni enezingane ezinalesi simo. Uma uthola ukuthi ingane yakho ine-amniotic band syndrome, ungase ube nemibuzo eminingi nokwesaba. Okokuqala, khumbula ukuthi ithimba lakho lezokwelapha likhona ukukusiza wena nengane yakho, ukukunakekela kahle. Uhlobo oluqondile lwesimo sakho luzoncika ekutheni amabhande aqine kangakanani nokuthi akuphi. Lokhu kungasho ukuthi kuzodingeka ukuthi uhlolwe njalo nge-ultrasound ngesikhathi sokukhulelwa kwakho. Noma ungadinga ukuhlinzwa ngemva kokuzalwa kwengane, ukuvuselelwa kwesikhathi eside, noma ukusetshenziswa kwezitho zokwenziwa ukuze ubuyisele ukusebenza. Ungesabi ukukhuluma nodokotela wakho wekliniki yangaphambi kokubeletha noma ithimba lezokwelapha lengane yakho mayelana nalokhu kutholakala nokuthi kuzowuthinta kanjani umndeni wakho.

Umyalezo Wokugcina Wokuya Nasekhaya

I-Amniotic Band Syndrome iyinto eyesabekayo ngempela, kodwa kubaluleke kakhulu ukuqaphela.

• Lesi yisimo esingavamile kakhulu.
• Esikhathini esiningi, lokhu kwenzeka ngokungahleliwe, okusho ukuthi akulona iphutha lanoma ubani.
• Izingane eziningi ezizalwa nalesi simo ziphila kahle ngokunakekelwa okuhle kwezokwelapha nokusekelwa komndeni.
• Uma lokhu kungabonakala ngesikhathi sokukhulelwa, kuzosiza ukuhlela ukwelashwa okudingekayo kumntwana.
• Uma unemibuzo noma ukungabaza, qiniseka ukuthi ukhuluma nodokotela wakho. Bazokunikeza lonke ulwazi kanye nokusekelwa okudingayo. Ungakhathazeki, awuwedwa.