Manaʻo paha ʻoe i kekahi manawa he paʻakikī ke kū aʻe mai kahi noho? Ke nāwaliwali nei kou mau wāwae i ka piʻi ʻana i nā alapiʻi, a i ʻole he paʻakikī iā ʻoe ke hāpai i kou mau lima e hiki ai i kahi mea? ʻOiai mākou e hoʻokuke pinepine nei i kēia mau hōʻailona me he luhi wale nō, hiki i kekahi manawa ke lilo i mau hōʻailona o kahi maʻi āu i ʻike ʻole ai. I kēia lā, ma Nirogi Lanka, makemake mākou e kamaʻilio me ʻoe e pili ana i kahi maʻi kakaʻikahi akā koʻikoʻi: Polymyositis.
I ka ʻōlelo maʻalahi, he aha ka Polymyositis?
He maʻi autoimmune kakaikahi ka Polymyositis. E noʻonoʻo i kāu ʻōnaehana pale ma ke ʻano he pūʻali koa e pale ana i kou kino. ʻO kāna kuleana ke kaua aku i nā germs a me nā virus e hoʻouka mai ana e mālama iā ʻoe. Eia nō naʻe, ma Polymyositis, hana hewa kēia ʻōnaehana a hoʻomaka hewa e hoʻouka i kou mau ʻiʻo olakino ponoʻī ma kahi o nā hoʻoweliweli o waho.
I ka pōkole, ke hoʻouka nei kāu mea pale ponoʻī iā ʻoe . ʻO ka hopena kēia i ka Myositis, ʻo ia hoʻi ka mumū a i ʻole ka pehu ʻana o nā ʻiʻo. I ka Polymyositis, ʻo ka prefix "Poly" ʻo ia hoʻi "nui," e hōʻike ana hiki i kēia kūlana ke hoʻopilikia i nā ʻiʻo ma nā ʻāpana he nui o kou kino i ka manawa like.
ʻO ka mea maʻamau ka hoʻopilikia ʻana i nā ʻiʻo kokoke loa i ke kikowaena o kou kino, e like me:
- Nā lima (ʻoi aku hoʻi nā poʻohiwi a me nā lima o luna)
- Nā pūhaka a me nā ʻūhā
- Umauma a me ke kua
- Nā ʻiʻo ʻāʻī
ʻAʻole ʻike ʻia ke kumu maoli o kēia maʻi, a ʻaʻohe lāʻau lapaʻau piha i kēia manawa. Eia naʻe, mai hoʻonāwaliwali. Me ka mālama pono ʻana a me ka hoʻokele ʻana, hiki i nā poʻe he nui ke kaohi i ko lākou mau hōʻailona a alakaʻi i kahi ola maʻamau a hana.
He aha nā hōʻailona?
ʻOkoʻa nā hōʻailona o ka Polymyositis mai kēlā kanaka a kēia kanaka. Eia nō naʻe, aia nā hōʻailona maʻamau e hiki ke hoʻopilikia i kou ola o kēlā me kēia lā. E nānā kākou iā lākou ma ka papa ma lalo.
| Hōʻailona | He wehewehe maʻalahi |
|---|---|
| Nāwaliwali o nā ʻiʻo | ʻO kēia ka hōʻailona nui. Lilo nā ʻiʻo ma nā poʻohiwi, nā pūhaka, a me nā ʻūhā i nāwaliwali, e paʻakikī ai ke ala aʻe mai kahi noho, piʻi i nā alapiʻi, a hāpai paha i nā mea. |
| ʻEha ʻiʻo a me ka paʻakikī | Hiki paha iā ʻoe ke manaʻo i ka ʻeha a i ʻole ka palupalu i kou mau ʻiʻo, ʻoiai ke ʻano paʻakikī ke ala ʻoe i ke kakahiaka. |
| Paʻakikī i ka ale ʻana (Dysphagia) | Hiki i ka nāwaliwali o nā ʻiʻo o ka puʻu ke hoʻopilikia i ka ale ʻana i ka meaʻai a mea inu paha a i ʻole ke kumu o ka ʻū ʻana. |
| Ka Paʻakikī o ka Hanu ʻana (Dyspnea) | ʻO ka nāwaliwali o nā ʻiʻo o ka umauma hiki ke alakaʻi i ka pōkole o ka hanu a i ʻole ka manaʻo o ka nele o ka hanu. |
| Paʻakikī i ka ʻōlelo ʻana | Inā pilikia nā ʻiʻo o ka ʻāʻī a me ka ʻāʻī, e loli paha kou leo, a i ʻole e paʻakikī paha iā ʻoe ke ʻōlelo maopopo. |
| Nā Hōʻailona ʻē aʻe | Hiki nō hoʻi ke ʻike ʻia ka luhi mau, ka ʻeha o nā hono, ka nāwaliwali laulā, ka pohō kaumaha, a i ʻole ke kuni iki. |
ʻO ka mea nui loa, inā pilikia nui ʻoe i ka hanu ʻana a i ʻole ka hiki ʻole ke ale i ka meaʻai a mea inu paha , he pilikia kēia. E ʻoluʻolu e hele koke i ka lumi pilikia (ER) o ka haukapila kokoke loa.
Nā Kumu a me nā Kumu Pōpilikia
E like me ka mea i ʻōlelo ʻia, ʻaʻole ʻike ʻia ke kumu kikoʻī, akā hiki i kekahi mau mea ke hoʻonui i ka likelika o ka hoʻomohala ʻana i kēia ʻano.
Nā mea hoʻoulu kūpono
- Nā maʻi autoimmune ʻē aʻe: Inā loaʻa iā ʻoe nā maʻi e like me Lupus, Rheumatoid arthritis , a i ʻole Scleroderma, ʻoi aku ka kiʻekiʻe o kou pilikia o ka hoʻomohala ʻana i ka Polymyositis.
- Nā maʻi viral: ʻO nā maʻi e like me COVID-19, Influenza, ke anu maʻamau, a i ʻole HIV hiki ke hana ma ke ʻano he mea hoʻoulu no kēia kūlana.
ʻO wai ka mea i ʻoi aku ka nui o ka pilikia?
- Nā wāhine: ʻOi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā wāhine ma mua o nā kāne i ʻelua manawa.
- Makahiki 30-60: ʻOiai hiki ke hana ia i kēlā me kēia makahiki, ʻike pinepine ʻia ia i kēia hui makahiki.
- ʻO nā kānaka me nā maʻi autoimmune mua.
Pehea e ʻike ʻia ai?
Ke kipa aku ʻoe i ke kauka me nā hōʻailona i ʻōlelo ʻia ma luna, e lawe mua lākou i kahi mōʻaukala kikoʻī o kāu mau hōʻailona a hana i kahi hoʻokolokolo kino o kou mau ʻiʻo. No ka hōʻoia ʻana i ka maʻi, hiki iā lākou ke paipai i kekahi mau hoʻokolohua lapaʻau kikoʻī.
| Hoʻāʻo | ʻO ka mea e haʻi mai nei iā mākou |
|---|---|
| Nā hoʻāʻo koko | Ke nānā nei kēia i nā enzymes kikoʻī e kahe ana i loko o kou koko ke hana ʻia ka hōʻino ʻana o nā ʻiʻo, a me nā autoantibodies, e hōʻike ana e hoʻouka ana kāu ʻōnaehana pale i kāu mau ʻiʻo ponoʻī. |
| MRI Scan | Hāʻawi kēia i nā kiʻi maopopo a kikoʻī e kōkua iā mākou e ʻike i ka pehu ʻana o nā ʻiʻo a me ka mumū. |
| EMG (Electromyography) | Hoʻohana mākou i kēia e ana i ka hana uila i loko o kou mau ʻiʻo, e kōkua ana iā mākou e ʻike i nā ʻano ʻē i ke ʻano o ka hana ʻana o kou mau ʻiʻo. |
| ʻO ka Biopsy ʻiʻo | Lawe ʻia kahi hāpana liʻiliʻi o nā ʻiʻo i hoʻopilikia ʻia a nānā ʻia ma lalo o kahi microscope. ʻO kēia ke ala maopopo e hōʻoia ai i ka nui o ka pōʻino. |
Pehea e mālama ʻia ai?
E like me kā mākou i ʻōlelo ai, ʻoiai ʻaʻohe lāʻau hoʻokahi no kēia maʻi, ʻo kā mākou pahuhopu ma Nirogi Lanka ka mālama ʻana i ka mumū, hōʻoluʻolu i kāu mau hōʻailona, a kōkua iā ʻoe e mālama i kou ʻano ola o kēlā me kēia lā. He nui nā mea maʻi i hoʻokō pono i ke kala ʻana me ka hoʻolālā lapaʻau kūpono.
ʻO nā koho lapaʻau mua:
- Corticosteroids: Nā lāʻau lapaʻau anti-inflammatory ikaika e lilo i ka laina mua o ka pale e hoʻomalu i ka mumū.
- Nā Immunosuppressants: Kōkua kēia mau lāʻau lapaʻau e hoʻonāwaliwali i kāu ʻōnaehana pale kino overactive, e pale ana iā ia mai ka hoʻomau ʻana i ka hōʻino ʻana i kou mau ʻiʻo.
- ʻO ka immunoglobulin intravenous (IVIG): Hāʻawi kēia lāʻau lapaʻau kūikawā i nā antibodies olakino mai nā mea hāʻawi i loko o kou koko ma o ka hoʻokomo ʻana. E noʻonoʻo i kēia ma ke ʻano he ala e hoʻohuli ai i ka manaʻo o kāu ʻōnaehana pale mai ka hoʻouka ʻana i kou mau ʻiʻo.
- Hoʻōla Kino: He ʻāpana koʻikoʻi kēia o kou hoʻōla ʻana. E alakaʻi kekahi mea hoʻōla iā ʻoe ma o nā hoʻomaʻamaʻa e hoʻoikaika i kou mau ʻiʻo a hoʻomaikaʻi i ka maʻalahi, e pale ana i ka atrophy a i ʻole ka nāwaliwali hou aʻe.
Āhea ʻoe e ʻike ai i ke kauka?
He mea nui ka ʻimi ʻana i ke alakaʻi lapaʻau mua no ka mālama pono ʻana i kēia ʻano.
- Inā loaʻa iā ʻoe ka nāwaliwali o nā ʻiʻo hou a i ʻole ka ʻeha mau e pau ʻole ana i loko o kekahi mau lā, e ʻoluʻolu e nīnau koke aku i kāu kauka .
- Inā ke loaʻa nei iā ʻoe ka lāʻau lapaʻau akā ʻike ʻoe e ʻoi aʻe ana kou mau hōʻailona a i ʻole manaʻo ʻoe e emi ana ka maikaʻi o kāu mau lāʻau lapaʻau, e hoʻomaopopo koke i kāu hui mālama ola .
| E ʻimi koke i ka mālama ulia pōpilikia! | |
|---|---|
| Inā loaʻa iā ʻoe ka pōkole nui o ka hanu a i ʻole manaʻo ʻoe ʻaʻole hiki iā ʻoe ke hopu i kou hanu. | |
| Inā pilikia ʻoe i ka moni ʻana, ʻo ia ka mea e lilo ai ka ʻai ʻana a i ʻole ka inu ʻana i mea palekana ʻole a i ʻole ke kumu o ka ʻū pinepine ʻana. | |
| Inā loaʻa iā ʻoe kahi nalowale koke o ka hana o nā ʻiʻo ma kekahi ʻāpana o kou kino. | |
He hoʻoilina anei kēia?
Hōʻike ka noiʻi aia paha he ʻāpana genetic i kēia maʻi, ʻo ia hoʻi, aia paha kahi predisposition iki inā loaʻa i kahi lālā o ka ʻohana. Eia naʻe, ʻaʻole kēia he hoʻoilina i hōʻoia ʻia. ʻAʻole ʻoe e hopohopo e loaʻa ana i kāu mau keiki kēia maʻi.
He kūpaʻa no ke ola holoʻokoʻa ka mālama ʻana i ka Polymyositis, akā, ʻaʻole pono ia e pale iā ʻoe mai ke ola piha ʻana. Me ke komo ʻana o ke kauka kūpono, ka hoʻōla kino, a me nā hoʻololi ʻana i ke ʻano o ka nohona, nui ka poʻe e ola hauʻoli a hana. ʻO ka mea nui loa, ʻo ia ke makaʻala e pili ana i nā loli o kou kino a pili i kāu mau manawa lapaʻau.
Leka Lawe-Home
- He maʻi laha ʻole ka Polymyositis kahi e hoʻouka hewa ai kāu ʻōnaehana pale i kou mau ʻiʻo.
- ʻO nā hōʻailona koʻikoʻi e pili ana i ka nāwaliwali o nā ʻiʻo, ka ʻeha, a me ka paʻakikī i ka ale ʻana a i ʻole ka hanu ʻana.
- ʻOiai ʻaʻohe lāʻau ola mau loa, he kūpono loa nā lāʻau lapaʻau a me ka hoʻoikaika kino i ka mālama ʻana i kāu mau hōʻailona.
- Inā pilikia ʻoe i ka hanu ʻana a i ʻole ke ale ʻana, e ʻimi koke i ke kōkua lapaʻau pilikia.
- E mālama mau i kahi laina kamaʻilio ākea me kāu kauka e pili ana i kāu mau hōʻailona a me kāu huakaʻi lapaʻau.
ʻO ka Polymyositis, nāwaliwali o nā mākala, ʻeha mākala, maʻi autoimmune, myositis, nāwaliwali o nā mākala, maʻi autoimmune
