Ke paʻakikī nei ʻoe i kekahi manawa ke ala aʻe mai kahi noho? Ke nāwaliwali nei kou mau wāwae ke piʻi ʻoe i nā alapiʻi? A i ʻole ke manaʻo nei ʻoe ʻaʻohe ou ikaika i kou lima ke hāpai ʻoe i kahi mea? ʻOiai ke manaʻo nei mākou he mau mea maʻamau kēia mau mea e hana ʻia ma muli o ka luhi, i kekahi manawa aia paha kahi maʻi ma hope o kēia a mākou i lohe nui ʻole ai. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi maʻi laha ʻole, akā he mea pono ke makaʻala. ʻO ia ka Polymyositis.
I ka ʻōlelo maʻalahi, he aha ka Polymyositis?
He maʻi laha ʻole ka Polymyositis. He maʻi autoimmune ia. E noʻonoʻo i kēia ʻano: ua like ko kākou ʻōnaehana pale me kahi pūʻali koa e pale ana i kahi ʻāina. ʻO ka hana a kēlā pūʻali koa, ʻo ia ke pale aku i ko kākou kino ma ke kaua ʻana i nā germs a me nā virus e hele mai ana mai waho. Akā i loko o ka Polymyositis, hele hewa kēia pūʻali koa a hoʻomaka e hoʻouka i ko kākou mau ʻiʻo olakino ponoʻī ma kahi o nā ʻenemi o waho.
I ka ʻōlelo maʻalahi, ke hoʻouka mai nei ko kākou mau pale ponoʻī iā kākou . Ua kapa ʻia kēia ʻo Myositis, ʻo ia hoʻi ka mumū a i ʻole ka pehu ʻana o nā ʻiʻo. Ma Polymyositis , ʻo ka huaʻōlelo "Poly" ʻo ia hoʻi "nui." ʻO ia hoʻi, ma kēia kūlana, hiki ke hoʻopilikia ʻia nā ʻiʻo ma kekahi mau ʻāpana o ke kino i ka manawa like.
Hoʻopilikia pinepine kēia i nā ʻiʻo kokoke loa i waenakonu o ko kākou kino. Eia kekahi laʻana:
- Nā lima (ʻoi aku hoʻi nā poʻohiwi a me nā lima)
- Nā pūhaka a me nā ʻūhā
- Umauma a me ke kua
- Nā ʻiʻo ʻāʻī
ʻAʻole i loaʻa ke kumu kikoʻī o kēia maʻi. ʻAʻohe lāʻau lapaʻau no ia mea. Akā, mai hopohopo. Me ka mālama pono ʻana a me ka hoʻokele ʻana, ua hiki i nā poʻe he nui ke kāohi i kēia mau hōʻailona a ola i ke ola maʻamau.
He aha nā hōʻailona o kēia maʻi?
Hiki ke ʻokoʻa nā hōʻailona o ka polymyositis mai kēlā kanaka a kēia kanaka. Eia nō naʻe, aia kekahi mau hōʻailona maʻamau a me nā pilikia a lākou e hana ai i ke ola o kēlā me kēia lā. E nānā kākou iā lākou ma kahi papa.
| Hōʻailona | Ua wehewehe maʻalahi ʻia |
|---|---|
| Nāwaliwali o nā ʻiʻo | ʻO kēia ka hōʻailona nui. ʻO nā ʻiʻo, ʻoi aku hoʻi ma nā poʻohiwi, nā pūhaka, a me nā ʻūhā, lilo i mea nāwaliwali. Lilo i mea paʻakikī ke ala aʻe mai kahi noho, piʻi i nā alapiʻi, a hāpai i nā mea kaumaha. |
| ʻEha ʻiʻo a me ka ʻoʻoleʻa | ʻEha nā ʻiʻo, ʻike ʻia ka ʻeha ʻoiai ke hoʻopā ʻia. Hiki iā ʻoe ke manaʻo he ʻoʻoleʻa, ʻoiai ke ala ʻoe i ke kakahiaka. |
| Ka paʻakikī i ka moni ʻana (Dysphagia) | ʻO ka hoʻonāwaliwali ʻia o nā ʻiʻo o ka puʻu e paʻakikī ai ke ale i ka meaʻai a me ka mea inu, a e like me ʻoe e ʻū ana. |
| Ka paʻakikī o ka hanu ʻana (Dyspnea) | Inā nāwaliwali nā ʻiʻo o ka umauma, lilo ia i mea paʻakikī ke hanu a ua like ia me ka hanu ʻūlū. |
| Paʻakikī i ka ʻōlelo ʻana | Inā pilikia nā ʻiʻo o ka puʻu a me ka ʻāʻī, e loli paha kou leo a he mea paʻakikī paha ke ʻōlelo maopopo. |
| Nā hiʻohiʻona ʻē aʻe | Hiki paha ke loaʻa ka luhi mau, ka ʻeha o nā hono, ka nāwaliwali, ka pohō kaumaha, a me ke kuni. |
ʻO ka mea nui loa, inā pilikia ʻoe i ka hanu ʻana a i ʻole ke ale ʻana i ka meaʻai a mea inu paha , he pilikia ia. I ia hihia, pono ʻoe e hele koke i ka lumi pilikia (ETU) o ka haukapila.
He aha nā kumu a me nā pilikia no ka hoʻomohala ʻana i ka polymyositis?
E like me kā mākou i kūkākūkā ai ma mua, ʻaʻohe kumu paʻa i loaʻa no kēia. Eia nō naʻe, hiki i kekahi mau mea ke hoʻonui i ka likelika o kēia ʻano.
Nā kumu kūpono
- Nā maʻi autoimmune ʻē aʻe: Inā loaʻa iā ʻoe kekahi maʻi autoimmune ʻē aʻe e like me '(Lupus)', '(Rheumatoid arthritis )', '(Scleroderma)', ʻoi aku ka nui o kou pilikia o ka hoʻomohala ʻana i ka Polymyositis.
- Nā maʻi viral: I kekahi manawa, ʻo kahi maʻi viral e like me `(COVID-19)`, `(Influenza)` (flu), ke anu maʻamau, `(HIV)` hiki ke lilo i mea hoʻoulu no kēia maʻi.
ʻO wai ka mea i ʻoi aku ka nui o ka pilikia?
- No nā wāhine: ʻOi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā wāhine ma mua o nā kāne.
- No nā kānaka ma waena o 30-60 mau makahiki: ʻOiai hiki ke ulu i kēlā me kēia makahiki, ʻike pinepine ʻia ka maʻi i kēia hui makahiki.
- No nā poʻe me nā maʻi autoimmune ʻē aʻe.
Pehea ʻoe e ʻike ai i kēia, e Kauka?
Ke ʻike ʻoe i ke kauka me nā hōʻailona āu i ʻōlelo ai ma luna, e nīnau mua ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona me ka kikoʻī. A laila e nānā ʻo ia i kou mau ʻiʻo. Eia kekahi, e kauoha ʻo ia i kekahi mau hoʻokolohua e ʻike pololei i ka maʻi.
| Hoʻāʻo | He aha kāu e ʻike ai ma kēia? |
|---|---|
| Nā hoʻāʻo koko | Nānā kēia hoʻokolohua i kekahi mau enzymes i hoʻokuʻu ʻia i loko o ke koko ke hōʻino ʻia nā ʻiʻo a me nā ʻano antibodies i hana ʻia e kūʻē i ko mākou kino ponoʻī. |
| Nānā MRI | ʻAe kēia iā ʻoe e ʻike maopopo i nā mea e like me ka pehu ʻana a me ka mumū i loko o nā ʻiʻo. |
| Hoʻāʻo EMG (Electromyography) | Nānā kēia i ka hana uila o nā ʻiʻo. Hiki i kēia ke ʻike i kekahi mau ʻano ʻē i ka hana o nā ʻiʻo. |
| ʻO ka Biopsy ʻiʻo | ʻO kēia ke kumu o ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo i hoʻopilikia ʻia a nānā iā ia ma lalo o kahi microscope. Kōkua kēia i ka hoʻoholo pono ʻana i ka pōʻino i loaʻa i ka ʻiʻo. |
Pehea e mālama ʻia ai?
E like me kā mākou i ʻōlelo ai ma mua, ʻaʻohe lāʻau lapaʻau no kēia maʻi. Eia nō naʻe, ʻo ka pahuhopu o ka lāʻau lapaʻau ke kāohi i ka mumū i loko o nā ʻiʻo, hōʻemi i nā hōʻailona, a kōkua iā ʻoe e hana maʻamau e like me ka hiki. Nui ka poʻe e hoʻomaha me ka lāʻau lapaʻau.
Aia kekahi mau ʻano lapaʻau nui:
- Corticosteroids: He papa lāʻau lapaʻau ikaika kēia e hōʻemi ana i ka mumū. ʻO kēia ka lāʻau lapaʻau mua e hoʻomaka ai.
- Nā Immunosuppressants: Hana kēia mau lāʻau lapaʻau ma ka hoʻemi iki ʻana i ka hana o kā mākou ʻōnaehana pale, kahi e hoʻemi ai i ka hōʻino ʻia i ko mākou mau ʻiʻo ponoʻī.
- Intravenous immunoglobulin (IVIG): He ʻano lapaʻau ʻokoʻa iki kēia. Pili ia i ka hāʻawi ʻana i kou kino i nā antibodies i lawe ʻia mai nā poʻe olakino ma o kahi wai saline. I ka ʻōlelo maʻalahi, ua like ia me ka hāʻawi ʻana i kāu ʻōnaehana pale i kahi mea ʻē aʻe a me ka hoʻohuli ʻana i kona manaʻo. Hoʻemi kēia i ka nui o nā hoʻouka kaua ʻana ma kou mau ʻiʻo.
- Hoʻōla Kino: He mea nui loa kēia. E aʻo aku kahi mea hoʻōla kino iā ʻoe i nā hoʻomaʻamaʻa e kōkua i ka hoʻoikaika ʻana i kou mau ʻiʻo a mālama iā lākou i ka palupalu. Hiki i kēia ke kōkua i ka pale ʻana i kou mau ʻiʻo mai ka nāwaliwali ʻana.
Āhea wau e ʻike ai i ke kauka?
He mea nui loa ka ʻimi koke ʻana i ke kōkua lapaʻau i kēlā ʻano maʻi.
- Inā loaʻa iā ʻoe ka nāwaliwali o nā ʻiʻo hou a i ʻole ka ʻeha, ʻoiai inā ʻaʻole ia e emi i loko o kekahi mau lā, e ʻike koke i ke kauka .
- Inā ke loaʻa nei iā ʻoe ka lāʻau lapaʻau a manaʻo ʻoe e ʻoi aku ka ʻino o kāu mau hōʻailona, a i ʻole inā manaʻo ʻoe ʻaʻole e hana ana ka lāʻau lapaʻau, e haʻi i kāu kauka .
| E hele koke aku i ka Emergency Treatment Unit (ETU) o ka haukapila! | |
|---|---|
| Inā paʻakikī iā ʻoe ke hanu a i ʻole manaʻo ʻoe e like me ʻoe e hanu ana. | |
| Inā pilikia ʻoe i ka ale ʻana i ka meaʻai a mea inu paha a inā paha e ʻū mau ana ʻoe. | |
| Inā ʻaʻole hiki ke neʻe koke kahi ʻāpana o ke kino i hiki ke hoʻoneʻe ʻia ma ke ʻano maʻamau. | |
He maʻi hoʻoilina anei kēia?
Ua hōʻike kekahi mau noiʻi aia paha kahi pilina hoʻoilina i kēia maʻi. ʻO ke ʻano kēia, inā loaʻa i kekahi o ka ʻohana, loaʻa paha i kekahi poʻe kahi manawa liʻiliʻi e loaʻa ai. Akā, ʻaʻole i hōʻoia ʻia he 100%. No laila, no ka mea wale nō ua loaʻa iā ʻoe kēia maʻi, ʻaʻole pono ʻoe e hopohopo e loaʻa maoli ana i kāu mau keiki.
He maʻi ola ka Polymyositis e pono ai ke mālama ʻia. Akā, ʻaʻole pono ia e pale iā ʻoe mai ke ola ʻana. Me ka mālama lapaʻau kūpono, ka hoʻōla kino, a me nā loli o ke ʻano o ka nohona, hiki i ka hapa nui o ka poʻe ke kāohi i ko lākou mau hōʻailona a ola i kahi ola hauʻoli. ʻO ka mea nui loa, ʻo ia ka hoʻolohe ʻana i nā loli i kou kino a ʻimi i ke aʻo lapaʻau i ka manawa kūpono.
Leka Lawe-Home
- He maʻi laha ʻole ka Polymyositis kahi e hoʻouka ai kā mākou ʻōnaehana ponoʻī i ko mākou mau ʻiʻo.
- ʻO ka nāwaliwali o nā ʻiʻo, ka ʻeha, ka paʻakikī i ke ale ʻana a me ka hanu ʻana nā hōʻailona nui.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha no kēia, hiki ke hoʻomalu maikaʻi ʻia nā hōʻailona me ka lāʻau lapaʻau a me ka hoʻoikaika kino.
- Inā pilikia ʻoe i ka hanu ʻana a i ʻole ke ale ʻana, e manaʻo he pilikia ia a e hele koke i ka ʻOihana Pilikia o ka haukapila (ETU).
- Inā he mau hopohopo kou e pili ana i kāu mau hōʻailona a i ʻole ka lāʻau lapaʻau, e kamaʻilio ākea me kāu kauka.
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